Jonathan Boote MA (Cantab), MSc, PhD, FRSA
University of Sheffield
School of Health and Related Research (ScHARR)
Section of Public Health
30 Regent Street
Office: Room 2037, 2nd Floor, Regent Court
Tel: +44 (0)114 2220768
Fax: +44 (0)114 272 4095
I studied history at the University of Cambridge, and then undertook an MSc and PhD in marketing management at the University of Bedfordshire. I started my career in the NHS, working as a Senior Research Officer at Sheffield Health and Social Care NHS Foundation Trust, and then as a Research Manager for Sheffield Health and Social Research Consortium. Between 2008-2013 I was employed as a Research Fellow by the NIHR Research Design Service Yorkshire and the Humber, where I had regional responsibility for patient and public involvement (PPI). Over the last 10 years, I have been involved in a research programme in the field of patient and public involvement in health and social care research. As chief investigator or co-investigator, I have obtained over £6.5 million in external funding.
I am currently a Research Fellow based in the Public Health Section of ScHARR, where I am working on a number of externally-funded research studies, either as a qualitative researcher or as a PPI advisor. Among the research projects in which I am currently involved, I am Principal Investigator of a three-year external evaluation of PPI in the NIHR Greater Manchester Primary Care Patient Safety Translational Research Centre.
- Public involvement in health research, particularly its impact on research processes and outcomes
- The health of older adults
- Patient expectations, satisfaction and complaining behaviour
- Applications of the Delphi method for reaching consensus
- Explanatory qualitative research nested within randomised controlled trials
I teach on aspects of PPI in research and evidence-based healthcare on the MPH, DClinPsy and MSc in Clinical Research degree programmes. I supervise MPH and MSc in Clinical Research dissertations, and contribute to a Master's level course on public involvement run by King's College, London. I am interested in hearing from students wishing to pursue doctoral studies in any aspect of PPI in research.
- I am a Fellow of the Royal Society of Arts.
- I undertake peer reviews for the following journals: BMJ, Milbank Quarterly, Annals of Internal Medicine, Trials, Social Science and Medicine, Rheumatology, Journal of Clinical Epidemiology, Health Policy, Health Expectations, Health Research Policy and Systems, Journal of Comparative Effectiveness Research, Systematic Reviews, Journal of Advanced Nursing, Science and Public Policy, Clinical Governance: An International Journal, Drug and Alcohol Review, the International Journal of Consumer Studies and the International Journal of Interdisciplinary Social Sciences.
- I review funding applications for the Medical Research Council, the Economic and Social Research Council, the National Institute for Health Research, the Parkinson's Disease Society of the United Kingdom, and the Netherlands Organisation for Health Research and Development.
- I am a member of the following groups and organisations: INVOLVE (including the organising committee for the 2014 INVOLVE conference); the HTAi Interest Sub-Group on Patient and Citizen Involvement in HTA; the International Collaboration on Participatory Health Research; the NIHR Stroke Research Network's Clinical Studies Group on Patient, Carer and Public Involvement and invoNET.
- I am an external PhD examiner for Bournemouth University and the University of Newcastle, Australia.
- Within the University of Sheffield, I am a member of the University Senate. I am also the ScHARR lead for PPI in research and sit on the School's Research Committee.
- I am an advisory group member for an MRC-funded study entitled, 'What are the impacts of public and user involvement (PUI) in health and social care research and how can these be measured?' (Principal Investigator: Prof Jennie Popay).
- I am an advisor to CFUnite, an initiative aimed at bridging the gap between researchers and people with CF and their families.
- I was a member of an international expert panel reviewing the research activity of the Centre for Welfare, Health & Sport at Halmstad University, Sweden, in August 2013.
- I am an associate member of the Sheffield Motor Neurone Disorders Research Advisory Group.
- I was an invited member of an invoNET-sponsored round-table discussion on future research directions for public involvement in health research, held at the King' Fund in March 2014.
- I was an invited member of an EQUATOR network-sponsored consensus meeting to develop guidance for the reporting of public involvement in research, held at the Royal College of Nursing in March 2014.
Current and recently-completed projects (as applicant or collaborator)
- Provision of an NIHR Research Design Service for Yorkshire and the Humber. £5.25 million from the National Institute for Health Research. Co-applicant. Collaborators: Wendy Baird, Stephen Walters, Simon Dixon, Allan Wailoo, Tracey Young, David Torgerson, Julia Brown, Yvonne Birks, Maureen Twiddy. 2013-2018.
- External evaluation of PPI in the NIHR Greater Manchester Primary Care Patient Safety Translational Research Centre. £72,353 from the National Institute for Health Research. Principal Investigator. Collaborator: Jill Thompson. 2013-2017.
- Potential prediction of preterm labour and birth by novel devices. Consultant advisor on patient and public involvement. £320,138 from NIHR Invention for Innovation Stage 2. Collaborators: Dilly Anumba, Timothy Healey, Brian Brown. 2013-2014.
- Assessing the Risk of Spontaneous Premature Birth by Electrical Impedance Spectroscopy of the Cervix. Co-investigator. £622,048 from the MRC Development Pathway Funding Scheme. Collaborators: Dilly Anumba, Graham Stafford, Georgina Jones, Stephen Walters, Simon Dixon, Brian Brown. 2013-2016.
- Preventing and Lessening Exacerbations of Asthma in School-age Asthmatics associated with a New Term (PLEASANT). £486,000 from NIHR Health Technology Assessment. Co-investigator. Collaborators: Steven Julious, Henry Smithson, Heather Elphick, Michelle Horspool, Paul Norman, Tjeerd Van Staa, Gerard MCann, Sarah Davis. 2013-2015.
- Improving management of Type 1 diabetes in the UK: the DAFNE programme as a research test-bed (Chief Investigator - Prof Simon Heller). Lead for the evaluation of user involvement within the programme. Total grant funding: £2 million from NIHR Programme Grants for Applied Research. Collaborator on the evaluation: Wendy Baird. 2010-2013.
- Can physiotherapy effectively treat patients with lumbar radicular syndrome secondary to MRI demonstrable disc prolapse? A preliminary randomised trial of patients awaiting lumbar micro-discectomy. Co-investigator. £169,000 from NIHR Research for Patient Benefit. Collaborators: Ruth Newsome, Michael Reddington, Munyaradzi Dimairo. 2011-2013.
- Quality improvement in cystic fibrosis: What can we learn from each other? Co-investigator. £241,288 from NIHR Health Services and Delivery Research Programme. Collaborators: Stephanie MacNeill, Diana Bilton, Siobhan Carr, Paul Cullinan, Caroline Elston, Katherine Collins, Mohammed Mohammed, Joanne Osmond, Martin Wildman, Steven Harrison. 2013-2015.
- Accessing participatory research impact and legacy (APRIL). Co-applicant. £30,000 from JISC. Collaborators: Tina Cook, Emma Barron, Nicola Buckley, Chris Turnock, Sonia Vougioukalou, Michael Wright. 2012-2013.
I have so far published 25 peer-reviewed journal articles and one book chapter. According to Google Scholar, I have an h-index of 13 and an i10 index of 16.
Public Involvement in Health Research
- Boote J, Twiddy M, Baird W, Birks Y, Clarke C, Beever D (2013). Supporting public involvement in research design and grant development: a case study of a public involvement award scheme managed by a National Institute for Health Research (NIHR) Research Design Service (RDS). Health Expectations. Early View (online version). DOI: 10.1111/hex.12130
- Boote J, Baird W, Sutton A (2012). Involving the public in systematic reviews: a narrative review of organisational approaches and eight case examples. Journal of Comparative Effectiveness Research, 1(5), 409-420.
- Boote J, Wong R, Booth A (2012). "Talking the talk or walking the walk?" A bibliometric review of the literature on public involvement in health research published between 1995 and 2009. Health Expectations, DOI: 10.1111/hex.12007
- Boote J, Dalgleish M, Freeman J, Jones Z, Miles M, Rodgers H (2012) "But is it a question worth asking?" A reflective case study describing how public involvement can lead to researchers' ideas being abandoned. Health Expectations, DOI: 10.1111/j.1369-7625.2012.00771x
- Barber R, Boote J, Parry G, Cooper C, Yeeles P, Cook S (2011) Can the impact of public involvement on research be evaluated? A mixed methods study. Health Expectations, doi: 10.1111/j.1369-7625.2010.00660.x
- Barber R, Beresford P, Boote J, Cooper C, Faulkner A. Evaluating the impact of public involvement on research: a prospective case study. International Journal of Consumer Studies. (2011) 35(6), 509-615.
- Boote J, Baird W, Sutton A. (2011) Public involvement in the systematic review process in health and social care: a narrative review of case examples. Health Policy. 102, 105-116.
- Boote J, Baird W, Sutton A. (2011) Public involvement in the design and conduct of clinical trials: a review. The International Journal of Interdisciplinary Social Sciences, 5(11), 91-111.
- Barber R, Boote J, Parry G, Cooper C, Yeeles P. (2011) Evaluating the impact of public involvement on research. In: Barnes M, Cottrell P (eds), Critical Perspectives on User Involvement. Bristol: Policy Press.
- Boote J, Baird W, Beecroft C. Public involvement at the design stage of primary health research: a narrative review of case examples. Health Policy (2010) 95, 10-23.
- Ward PR, Thompson J, Barber R, Armitage CJ, Boote JD, Cooper CL, Jones GL. (2010) Critical perspectives on 'consumer involvement' in health research: epistemological dissonance and the know-do gap. Journal of Sociology 46(11), 63-82.
- Thompson J, Ward P, Barber, R, Boote J, Armitage C, Cooper C, Jones G. (2009) Health researchers' attitudes to public involvement in health research. Health Expectations, 12(2), 209-220.
- Barber R, Boote J, Cooper C (2007) Involving consumers successfully in NHS research: A national survey. Health Expectations, 10 (4), 380-391.
- Boote J, Barber R, Cooper C (2006) Principles and indicators of successful consumer involvement in NHS research: results of a Delphi study and subgroup analysis. Health Policy, 75 (3), 280-297.
- Telford R, Boote J, Cooper C. (2004) What does it mean to involve consumers successfully in NHS research? A consensus study. Health Expectations, 7 (3), 209-220.
- Boote J, Telford R, Cooper C (2002) Consumer involvement in health research: a review and research agenda. Health Policy, 61 (2), 213-236.
- Telford R, Beverley C, Cooper C, Boote J (2002) Consumer involvement in health research: fact or fiction? Clinical Governance: An International Journal 7 (2), 92-103.
Outputs from the PLEASANT trial
Horspool M, Julious SA, Boote J, Bradburn MJ, Cooper CL, Davis S, Elphick H, Norman P, Smithson WH, van Staa T. Preventing and lessening exacerbations of asthma in school-age children associated with a new term (PLEASANT): study protocol for a cluster randomised control trial. Trials, 2013, 14:297. doi: 10.1186/1745-6215-14-297
Applications of the Delphi method for reaching consensus.
Taylor-Buck E, Dent-Brown K, Perry G, Boote J.
(2014) Dyadic arts therapy: key principles, practices and competences. The Arts in Psychotherapy. In press.
Health of older adults
Boote J, Lewin V, Beverley C, Bates J. (2006) Psychological interventions for people with moderate to severe dementia: a systematic review. Clinical Effectiveness in Nursing. 9S1, e1-e15.
Ledsham R, Boote J, Kirkland A, Davies S. (2006) What is it like to use hip protectors? A qualitative study of the views and experiences of nurses and patients. Clinical Effectiveness in Nursing. 9S1, e97-e105.
Bates J, Boote J, Beverley C. (2004) Psychosocial interventions for people with a milder dementing illness: a systematic review. Journal of Advanced Nursing, 45(6), 1-15.
Allmark P, Boote J, Chambers E, McDonnell A, Thompson A, Tod A. (2009) Ethical issues in the use of in-depth interviews: literature review and discussion. Research Ethics Review, 5(2), 48-55.
Boote J, Mathews A. (1999) "Saying is one thing: doing is another": the role of observation in marketing research. Qualitative Market Research: An International Journal 2 (1), 15-21.
Expectation Management and Complaining Behaviour
Santos J, Boote J. (2003) A theoretical exploration and model on consumer expectations, post-purchase affective states and affective behaviours. Journal of Consumer Behaviour: An International Research Review 3(2), 142-156.
Boote J. (1998) Towards a comprehensive taxonomy and model of consumer complaining behaviour. Journal of Consumer Satisfaction, Dissatisfaction and Complaining Behaviour 11, 140-151.