Professor Jane Seymour
RGN, BA(hons); MA, PhD
Division of Nursing and Midwifery, Health Sciences School
Professor of Palliative and End-of-Life Care
+44 114 222 2078
Full contact details
Division of Nursing and Midwifery, Health Sciences School
Barber House Annexe
3 Clarkehouse Road
Sheffield
S10 2HQ
- Profile
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I qualified as a nurse in 1982 and gained a PhD from the University of Sheffield in 1994. After that I worked as a research fellow, Senior Lecturer and Reader. I rejoined the University of Sheffield in April 2016 as Professor of Palliative and End-of-Life Care following ten years at the University of Nottingham as the leader of the Sue Ryder Care Centre for the Study of Supportive, Palliative and End-of-Life Care.
I have contributed to research grants and awards totalling over £7.5 million and have published over 140 outputs in peer reviewed journals. I have made contributions to more than 20 key texts on palliative care, most recently publishing book chapters in edited collections about end-of-life care for older people (2010; 2015); palliative sedation (2014) and advance care planning (2010; 2015).
- Research interests
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My current research interests include: advance care planning and end-of-life decision-making, palliative and end-of-life care for frail older people; palliative and end-of-life care in resource poor contexts nationally and internationally; public education for end-of-life care.
Current projects
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Van der Heide, A. (EU study co-ordinator)Advance care planning. An innovative palliative care intervention to improve quality of life in oncology (ACTION). A multi-centre cluster randomised trial.
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Seymour, J., Tod, A., Wilcock, A et al.Improving Palliative Care for Patients with Advanced Cancer: A Systematic Review of Evidence on the Role and Outcomes of Clinical Nurse Specialists and Related Complex Interventions
- Johnston, B. , Almack K., Wilson, E. and Seymour, J.E. Macmillan Specialist palliative care at home service: a national evaluation.
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- Publications
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Journal articles
- OP13 Evaluating experiences of advance care planning facilitators: results from the international ACTION study. Oral Presentations.
- Trained facilitators’ experiences with structured advance care planning conversations in oncology : an international focus group study within the ACTION trial. BMC Cancer, 19(1). View this article in WRRO
- Patient and carer involvement in palliative care research : an integrative qualitative evidence synthesis review. Palliative Medicine, 33(8), 969-984. View this article in WRRO
- Staff perception of obstacles and facilitators when providing end of life care in critical care units of two teaching hospitals: A survey design. Intensive and Critical Care Nursing. View this article in WRRO
- The practice of mutual protection in the care of children with palliative care needs: A multiple qualitative case study approach from Jordan. Journal of Pediatric Nursing, 45, e9-e18. View this article in WRRO
- Comparing the predictive ability of the Revised Minimum Dataset Mortality Risk Index (MMRI-R) with nurses' predictions of mortality among frail older people: a cohort study.. Age and Ageing. View this article in WRRO
- Advance care planning: A systematic review about experiences of patients with a life-threatening or life-limiting illness. Palliative Medicine, 32(8), 1305-1321. View this article in WRRO
- Preregistration nursing students' experiences of a palliative care course in a resource-poor setting. International Journal of Palliative Nursing, 24(8), 388-397. View this article in WRRO
- Internationale definitie van advance care planning. Huisarts en wetenschap, 61(8), 22-29.
- Reappraising ‘the good death’ for populations in the age of ageing. Age And Ageing, 47(3), 328-330. View this article in WRRO
- The Liverpool Care Pathway for the Dying Patient: a critical analysis of its rise, demise and legacy in England [version 2; referees: 2 approved].. Wellcome Open Research, 3. View this article in WRRO
- The involvement of cancer patients in the four stages of decision-making preceding continuous sedation until death: A qualitative study. Palliative Medicine, 32(7), 1198-1207. View this article in WRRO
- Impact of the Macmillan specialist Care at Home service: a mixed methods evaluation across six sites. BMC Palliative Care, 17(1). View this article in WRRO
- The costs, resource use and cost-effectiveness of Clinical Nurse Specialist–led interventions for patients with palliative care needs: A systematic review of international evidence. Palliative Medicine, 32(2), 447-465. View this article in WRRO
- The Impact of Public Health Awareness Campaigns on the Awareness and Quality of Palliative Care.. Journal of Palliative Medicine, 21(S1), S30-S36. View this article in WRRO
- Communication practices that encourage and constrain shared decision making in health-care encounters: Systematic review of conversation analytic research. Health Expectations, 20(6), 1228-1247. View this article in WRRO
- Making sense of frailty: An ethnographic study of the experience of older people living with complex health problems.. International Journal of Older People Nursing. View this article in WRRO
- Palliative care in the USA and England: a critical analysis of meaning and implementation towards a public health approach. Mortality, 22(4), 275-290. View this article in WRRO
- Definition and recommendations for advance care planning: an international consensus supported by the European Association for Palliative Care.. Lancet Oncology, 18(9), e543-e551. View this article in WRRO
- Supporting family carers in home-based end-of-life care: using participatory action research to develop a training programme for support workers and volunteers. BMJ Supportive and Palliative Care. View this article in WRRO
- The Experience of Decision Making in the Care of Children with Palliative Care Needs: The Experiences of Jordanian Mothers. Comprehensive Child and Adolescent Nursing, 40(4), 240-256. View this article in WRRO
- The importance of interdisciplinary communication in the process of anticipatory prescribing. International Journal of Palliative Nursing, 23(3), 129-135. View this article in WRRO
- Lung cancer diagnosed following an emergency admission: exploring patient and carer perspectives on delay in seeking help.. Supportive Care in Cancer. View this article in WRRO
- What do we know about the application of the Mental Capacity Act (2005) in healthcare practice regarding decision‐making for frail and older people? A systematic literature review. Health & Social Care in the Community, 25(2), 295-308.
- Older people’s perspectives on dignity: the benefits and challenges of a qualitative longitudinal approach to researching experiences of later life. International Journal f Social Research Methodology, 1-12. View this article in WRRO
- Anticipatory prescribing for end of life care in the community: a survey of community nurses in England. Primary Health Care, 26(9), 22-27. View this article in WRRO
- Engaging Terminally Ill Patients in End of Life Talk: How Experienced Palliative Medicine Doctors Navigate the Dilemma of Promoting Discussions about Dying. PLoS ONE, 11(5), e0156174-e0156174. View this article in WRRO
- Lung cancer diagnosed following an emergency admission: Mixed methods study of the management, outcomes and needs and experiences of patients and carers. Respiratory Medicine, 114, 38-45. View this article in WRRO
- Cardiopulmonary resuscitation decisions in the emergency department: An ethnography of tacit knowledge in practice. Social Science & Medicine, 156, 47-54. View this article in WRRO
- Advance care planning – a multi-centre cluster randomised clinical trial: the research protocol of the ACTION study. BMC Cancer, 16(1), 264-264. View this article in WRRO
- A qualitative evaluation of the impact of a palliative care course on preregistration nursing students’ practice in Cameroon. BMC Palliative Care, 15(1), 37-37. View this article in WRRO
- Sharing news of a lung cancer diagnosis with adult family members and friends: a qualitative study to inform a supportive intervention. Patient Education and Counseling, 99(3), 378-385.
- Do patients with lung cancer recall physician-initiated discussions about planning for end-of-life care following disclosure of a terminal prognosis?. BMJ Supportive & Palliative Care.
- Living with AIDS in Uganda: a qualitative study of patients’ and families’ experiences following referral to hospice. BMC Palliative Care, 14(1). View this article in WRRO
- O-59 Living with frailty: Implications for the conceptualisation of acp. BMJ Supportive & Palliative Care, 5(Suppl 2), A19.2-A19.
- O-68 Beyond planning for incompetency: reshaping advance care planning for frail older people. BMJ Supportive & Palliative Care, 5(Suppl 2), A21.5-A22.
- An Educational Intervention to Reduce Pain and Improve Pain Management for Malawian People Living With HIV/AIDS and Their Family Carers: A Randomized Controlled Trial. Journal of Pain and Symptom Management, 50(1), 80-90.e4.
- A survey of older peoples' attitudes towards advance care planning. Age and Ageing, 44(3), 371-376.
- Seymour et al. Palliative sedation: Improvement of guidelines necessary, but not sufficient: A reply.. Palliative Medicine, 29(5), 481-481.
- 50 * A SURVEY OF OLDER PEOPLES' ATTITUDES TOWARDS ADVANCE CARE PLANNING. Age and Ageing, 44(suppl 1), i14-i14.
- HOW DO PATIENTS SHARE NEWS OF A CANCER DIAGNOSIS WITH FAMILY/FRIENDS; NEW UNDERSTANDINGS OF THE PROCESS AFTER BAD NEWS HAS BEEN BROKEN. BMJ Supportive & Palliative Care, 5(1), 114.2-114.
- Palliative Care in the US and UK: Similar Challenges, Different Responses (TH344). Journal of Pain and Symptom Management, 49(2), 348-348.
- Administering anticipatory medications in end-of-life care: A qualitative study of nursing practice in the community and in nursing homes. Palliative Medicine, 29(1), 60-70. View this article in WRRO
- Using continuous sedation until death for cancer patients: A qualitative interview study of physicians’ and nurses’ practice in three European countries. Palliative Medicine, 29(1), 48-59. View this article in WRRO
- The language of sedation in end-of-life care: The ethical reasoning of care providers in three countries. Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine, 19(4), 339-354.
- Descriptions by General Practitioners and Nurses of Their Collaboration in Continuous Sedation Until Death at Home: In-Depth Qualitative Interviews in Three European Countries. Journal of Pain and Symptom Management, 49(1), 98-109.
- A modified systematic review of research evidence about education for pre-registration nurses in palliative care. BMC Palliative Care, 13(1). View this article in WRRO
- Making sense of continuous sedation in end-of-life care for cancer patients: an interview study with bereaved relatives in three European countries. Supportive Care in Cancer, 22(12), 3243-3252.
- HOW DO COMMUNITY NURSES DECIDE WHEN TO USE ANTICIPATORY PRESCRIPTIONS IN END OF LIFE CARE AND WHAT DO THEY WORRY ABOUT? FINDINGS FROM A QUALITATIVE STUDY. BMJ Supportive & Palliative Care, 4(1), 106.1-106.
- INFORMATION PROVISION AND THE WIDER EXPERIENCE OF CARE: A QUALITATIVE STUDY OF PATIENTS DIAGNOSED WITH LUNG CANCER FOLLOWING EMERGENCY ADMISSION AND THEIR CARERS. BMJ Supportive & Palliative Care, 4(Suppl 1), A25.3-A25.
- SHARING BAD NEWS: DEVELOPMENT OF AN INTERVENTION TO SUPPORT PATIENTS WITH LUNG CANCER SHARE NEWS OF THEIR CANCER DIAGNOSIS WITH FAMILY MEMBERS AND FRIENDS. BMJ Supportive & Palliative Care, 4(1), 114.2-114.
- NURSES' ROLES IN ANTICIPATORY PRESCRIBING IN END OF LIFE CARE. BMJ Supportive & Palliative Care, 4(Suppl 1), A23.2-A23.
- PRINCIPLES OF SPIRITUAL CARE IN END-OF-LIFE CARE IN INDIA: A HISTORICAL-CULTURAL INVESTIGATION. BMJ Supportive & Palliative Care, 4(Suppl 1), A18.1-A18.
- Dying at home: A qualitative study of the perspectives of older South Asians living in the United Kingdom. Palliative Medicine, 28(3), 264-272.
- DEVELOPING TRAINING FOR SUPPORTERS OF LAY-CARERS INVOLVED WITH HOME BASED END OF LIFE CARE: A PARTICIPATORY APPROACH. BMJ Supportive & Palliative Care, 4(1), 107.3-107.
- Papavasiliou ES, Brearley SG, Seymour JE, Brown J, Payne SA, on behalf of EUROIMPACT. From Sedation to Continuous Sedation Until Death: How Has The Conceptual Basis of Sedation in End-of-Life Care Changed Over Time? J Pain Symptom Manage 2013; 5:706–723. Journal of Pain and Symptom Management, 47(2), 370-370.
- 102 Sharing Bad News: Understanding the communication processes of a lung cancer diagnosis. Lung Cancer, 83, S38-S38.
- 107 Development of an intervention to support patients with lung cancer share news of their diagnosis with family and friends. Lung Cancer, 83, S39-S39.
- Identity in the fourth age: perseverance, adaptation and maintaining dignity. Ageing and Society, 34(1), 1-19.
- How to communicate with patients about future illness progression and end of life: a systematic review. BMJ Supportive & Palliative Care, 4(4), 331-341. View this article in WRRO
- Physicians' experiences and perspectives regarding the use of continuous sedation until death for cancer patients in the context of psychological and existential suffering at the end of life. Psycho-Oncology, 23(5), 539-546. View this article in WRRO
- From Sedation to Continuous Sedation Until Death: How Has the Conceptual Basis of Sedation in End-of-Life Care Changed Over Time?. Journal of Pain and Symptom Management, 46(5), 691-706.
- Talking about end-of-life care: the perspectives of older South Asians living in East London. Journal of Research in Nursing, 18(5), 394-406.
- The withdrawal of the Liverpool Care Pathway in England: implications for clinical practice and policy. International Journal of Palliative Nursing, 19(8), 369-371.
- Living into old age with the consequences of breast cancer. European Journal of Oncology Nursing, 17(3), 311-316.
- Continuous Sedation (CS) Until Death: Mapping the Literature by Bibliometric Analysis. Journal of Pain and Symptom Management, 45(6), 1073-1082.e10.
- Exploring education and training needs among the palliative care workforce. BMJ Supportive & Palliative Care, 3(2), 207-212.
- ENCOURAGING AND DISCOURAGING TALK ABOUT ILLNESS PROGRESSION, DYING AND DEATH: A SYSTEMATIC REVIEW OF COMMUNICATION RESEARCH. BMJ Supportive & Palliative Care, 3(1), 130.2-130.
- What is different about living alone with cancer in older age? A qualitative study of experiences and preferences for care. BMC Family Practice, 14(1). View this article in WRRO
- What is the extent of potentially avoidable admissions amongst hospital inpatients with palliative care needs?. BMC Palliative Care, 12(1). View this article in WRRO
- Lung cancer diagnosed following emergency admission: a mixed methods study protocol to improve understanding of patients’ characteristics, needs, experiences and outcomes. BMC Palliative Care, 12(1). View this article in WRRO
- An educational intervention to reduce pain and improve pain management for Malawian people living with HIV/AIDS and their family carers: study protocol for a randomised controlled trial. Trials, 14(1), 216-216. View this article in WRRO
- Extent of palliative care need in the acute hospital setting: A survey of two acute hospitals in the UK. Palliative Medicine, 27(1), 76-83. View this article in WRRO
- Public attitudes to death and dying in the UK: a review of published literature. BMJ Supportive & Palliative Care, 3(1), 37-45.
- Peer education for advance care planning: volunteers’ perspectives on training and community engagement activities. Health Expectations, 16(1), 43-55. View this article in WRRO
- From ‘conductor’ to ‘second fiddle’: Older adult care recipients’ perspectives on transitions in family caring at hospital admission. International Journal of Nursing Studies, 50(9), 1197-1205.
- Combined qualitative and quantitative research designs. Current Opinion in Supportive and Palliative Care, 6(4), 514-524.
- Older patients’ attitudes towards and experiences of patient-physician end-of-life communication: a secondary analysis of interviews from British, Dutch and Belgian patients. BMC Palliative Care, 11(1). View this article in WRRO
- Liminality as a framework for understanding the experience of cancer survivorship: a literature review. Journal of Advanced Nursing, 68(10), 2155-2164.
- The Experiences of Relatives With the Practice of Palliative Sedation: A Systematic Review. Journal of Pain and Symptom Management, 44(3), 431-445.
- The Practice of Continuous Deep Sedation Until Death in Flanders (Belgium), The Netherlands, and the U.K.: A Comparative Study. Journal of Pain and Symptom Management, 44(1), 33-43.
- Older Adults' Experiences of Transitions Between Care Settings at the End of Life in England: A Qualitative Interview Study. Journal of Pain and Symptom Management, 44(1), 74-83.
- Maintaining integrity in the face of death: A grounded theory to explain the perspectives of people affected by lung cancer about the expression of wishes for end of life care. International Journal of Nursing Studies, 49(6), 718-726.
- Funding health and social services for older people – a qualitative study of care recipients in the last year of life. Journal of the Royal Society of Medicine, 105(5), 201-207.
- ‘There is always something else we can do’: staff perspectives on sedation in end of life care. BMJ Supportive & Palliative Care, 2(Suppl 1), A10.3-A11.
- Extent of palliative care need in the acute hospital setting: a prospective survey of two acute hospitals in the UK. BMJ Supportive & Palliative Care, 2(Suppl 1), A13.2-A13.
- Breaking bad news sensitively: what is important to patients in their last year of life?. BMJ Supportive & Palliative Care, 2(1), 24-28.
- Muslim Women's Narratives About Bodily Change and Care During Critical Illness: A Qualitative Study. Journal of Nursing Scholarship, 44(1), 99-107.
- Looking back, looking forward: the evolution of palliative and end-of-life care in England. Mortality, 17(1), 1-17.
- Why is the Liverpool care pathway used for some dying cancer patients and not others? Healthcare professionals’ perspectives. BMC Research Notes, 5(1). View this article in WRRO
- After you: conversations between patients and healthcare professionals in planning for end of life care. BMC Palliative Care, 11(1). View this article in WRRO
- An evaluation of research capacity building from the Cancer Experiences Collaborative. BMJ Supportive & Palliative Care, 2(3), 280-285.
- A comparison of strategies to recruit older patients and carers to end-of-life research in primary care. BMC Health Services Research, 12(1). View this article in WRRO
- ‘That’s part of everybody’s job’: the perspectives of health care staff in England and New Zealand on the meaning and remit of palliative care. Palliative Medicine, 26(3), 232-241.
- Perspectives of staff providing care at the end of life for people with progressive long-term neurological conditions. Palliative and Supportive Care, 9(4), 377-385.
- Interviews on End-of-Life Care With Older People. Qualitative Health Research, 21(11), 1588-1600.
- Older people living alone at the end of life in the UK: Research and policy challenges. Palliative Medicine, 25(6), 650-657.
- The role of health care assistants in supporting district nurses and family carers to deliver palliative care at home: findings from an evaluation project. Journal of Clinical Nursing, 20(13-14), 2043-2052.
- Benefits and challenges of collaborative research: lessons from supportive and palliative care. BMJ Supportive & Palliative Care, 1(1), 5-11.
- Do nursing homes for older people have the support they need to provide end-of-life care? A mixed methods enquiry in England. Palliative Medicine, 25(2), 125-138. View this article in WRRO
- Jacqueline H. Watts, Death, Dying and Bereavement: Issues for Practice, Dunedin Academic Press, Edinburgh, UK, 2010, 124 pp., pbk £14.50, ISBN 13: 978 1 906716 08 0.. Ageing and Society, 31(1), 173-174.
- Factors influencing the referral of non-cancer patients to community specialist palliative care nurses. International Journal of Palliative Nursing, 17(1), 35-41.
- Changing times: preparing to meet palliative needs in the 21st Century. British Journal of Community Nursing, 16(1), 18-18.
- Is it recorded in the notes? Documentation of end-of-life care and preferred place to die discussions in the final weeks of life. BMC Palliative Care, 10(1). View this article in WRRO
- The perspectives of clinical staff and bereaved informal care-givers on the use of continuous sedation until death for cancer patients: The study protocol of the UNBIASED study. BMC Palliative Care, 10(1). View this article in WRRO
- “At the Foot of a Very Long Ladder”: Discussing the End of Life with Older People and Informal Caregivers. Journal of Pain and Symptom Management, 40(6), 857-869.
- Exploring the Impact of Sexual Orientation on Experiences and Concerns about End of Life Care and on Bereavement for Lesbian, Gay and Bisexual Older People. Sociology, 44(5), 908-924.
- Dying matters: let's talk about it. BMJ, 341(sep16 2), c4860-c4860.
- P27 Older adults with cancer--are those who live alone at the end of life a disadvantaged group? A qualitative study. Journal of Epidemiology & Community Health, 64(Suppl 1), A44-A44.
- P29 Out of control? Experiences of transitions between care settings at the end of life for older adults with heart failure: a qualitative study. Journal of Epidemiology & Community Health, 64(Suppl 1), A45-A45.
- Working with the Mental Capacity Act: findings from specialist palliative and neurological care settings. Palliative Medicine, 24(4), 396-402.
- Muslim women's experiences of suffering in Jordanian intensive care units: A narrative study. Intensive and Critical Care Nursing, 26(3), 175-184.
- The Mental Capacity Act 2005: Making decisions on capacity. British Journal of Neuroscience Nursing, 6(4), 182-185.
- Death and Dying in America. Sociology of Health & Illness, 32(3), 509-510.
- Implementing advance care planning: a qualitative study of community nurses' views and experiences. BMC Palliative Care, 9(1).
- Barriers to achieving care at home at the end of life: transferring patients between care settings using patient transport services. Palliative Medicine, 23(8), 723-730.
- How to improve end of life care in acute hospitals. Nursing Older People, 21(7), 26-29.
- The role of the nurse in palliative care settings in a global context. Cancer Nursing Practice, 8(5), 21-26.
- Key stakeholders' experiences and views of the NHS End of Life Care Programme: findings from a national evaluation. Palliative Medicine, 23(4), 283-294.
- Advance care planning: evidence and implications for practice. End of Life Journal, 3(1), 58-64.
- Evaluating a peer education programme for advance end-of-life care planning for older adults: The peer educators' perspective. International Journal on Disability and Human Development, 8(1).
- Key stakeholders' experiences and views of the NHS End of Life Care Programme: findings from a national evaluation. Palliative Medicine, 23(4), 283-294.
- Older Chinese people's views on food: implications for supportive cancer care. Ethnicity & Health, 13(5), 497-514.
- A UK literature review of progressive long-term neurological conditions. British Journal of Community Nursing, 13(5), 206-212.
- Needs and preferences of patients with diseases other than cancer: the UK experience. Progress in Palliative Care, 15(3), 108-112.
- Exploring the palliative and end-of-life care needs of those affected by progressive long-term neurological conditions. Journal of Care Services Management, 2(1), 92-102.
- Hospice or home? Expectations of end-of-life care among white and Chinese older people in the UK. Sociology of Health & Illness, 29(6), 872-890.
- Relieving suffering at the end of life: Practitioners’ perspectives on palliative sedation from three European countries. Social Science & Medicine, 64(8), 1679-1691.
- Commentary 1. ‘Quality of life to the end’. Communication, 4(1).
- 71 Patients' and carers' experience of mesothelioma. Lung Cancer, 54, S18-S18.
- Development of a peer education programme for advance end-of-life care planning. International Journal of Palliative Nursing, 12(5), 216-223.
- Advance care planning for patients with inoperable lung cancer. International Journal of Palliative Nursing, 12(4), 172-178.
- The Cancer Experiences Research Collaborative (CECo): building research capacity in supportive and palliative care. Progress in Palliative Care, 14(6), 265-270.
- Viewing patient need through professional writings: a systematic 'ethnographic' review of palliative care professionals' experiences of caring for people with cancer at the end of life. Progress in Palliative Care, 14(1), 9-18.
- Making sense of dying: a review of narratives written since 1950 by people facing death from cancer and other diseases. Palliative Medicine, 20(3), 183-195.
- Mesothelioma from the Patient's Perspective. Hematology/Oncology Clinics of North America, 19(6), 1175-1190.
- Using technology to help obtain the goals of palliative care. International Journal of Palliative Nursing, 11(5), 240-241.
- Ethical and methodological issues in palliative care studies. Journal of Research in Nursing, 10(2), 169-188.
- Stories of cancer pain: a historical perspective. Journal of Pain and Symptom Management, 29(1), 22-31.
- Chinese Community Views: Promoting Cultural Competence in Palliative Care. Journal of Palliative Care, 21(2), 111-116.
- The measurement of pain, 1945–2000. Journal of Pain and Symptom Management, 29(1), 14-21.
- Pain and palliative care: the emergence of new specialties. Journal of Pain and Symptom Management, 29(1), 2-13.
- Older people's views about home as a place of care at the end of life. Palliative Medicine, 18(5), 460-467.
- Planning for the end of life:. Social Science & Medicine, 59(1), 57-68.
- Changing technologies of cancer pain relief: case studies of innovation. Progress in Palliative Care, 12(3), 123-133.
- JAN Forum: your views and letters. Journal of Advanced Nursing, 44(5), 547-548.
- Technology and ?natural death?: A study of older people. Zeitschrift f�r Gerontologie und Geriatrie, 36(5), 339-346.
- Specialist palliative care: patients' experiences. Journal of Advanced Nursing, 44(1), 24-33.
- Economic evaluation of specialist cancer and palliative nursing: Macmillan Evalution Study findings. International Journal of Palliative Nursing, 9(10), 429-438. View this article in WRRO
- Economic evaluation of specialist cancer and palliative nursing: a literature review. International Journal of Palliative Nursing, 9(10), 424-427. View this article in WRRO
- Exploring nursing outcomes for patients with advanced cancer following intervention by Macmillan specialist palliative care nurses. Journal of Advanced Nursing, 41(6), 561-574. View this article in WRRO
- Changing technologies of cancer pain relief: themes from the twentieth century. Progress in Palliative Care, 11(5), 256-260.
- Meeting complex needs: an analysis of Macmillan nurses’ work with patients. International Journal of Palliative Nursing, 8(12), 574-582.
- Good deaths, bad deaths: Older people's assessments of the risks and benefits of morphine and terminal sedation in end-of-life care. Health, Risk & Society, 4(3), 287-303.
- Ethical considerations in researching user views. European Journal of Cancer Care, 11(3), 215-219.
- Clinical nurse specialists in palliative care. Part 3. Issues for the Macmillan Nurse role. Palliative Medicine, 16(5), 386-394. View this article in WRRO
- Clinical nurse specialists in palliative care. Part 2. Explaining diversity in the organization and costs of Macmillan nursing services. Palliative Medicine, 16(5), 375-385. View this article in WRRO
- Clinical nurse specialists in palliative care. Part 1. A description of the Macmillan Nurse caseload. Palliative Medicine, 16(4), 285-296. View this article in WRRO
- Using focus groups to explore older people's attitudes to end of life care. Ageing and Society, 22(04), 517-526.
- Death Foretold. Prophecy and Prognosis in Medical Care,. Social Science & Medicine, 54(6), 997-998.
- Palliative care and policy in England: a review of health improvement plans for 1999–2003. Palliative Medicine, 16(1), 5-11.
- Palliative care and geriatric medicine: shared concerns, shared challenges. Palliative Medicine, 15(4), 269-270.
- Analysing qualitative data: examples from two studies of end-of-life care. International Journal of Palliative Nursing, 7(5), 227-233.
- Negotiating natural death in intensive care. Social Science & Medicine, 51(8), 1241-1252.
- Support and supervision in palliative care research. Palliative Medicine, 14(5), 441-446.
- Changing times for the independent hospice. British Journal of Healthcare Management, 6(2), 53-56.
- Revisiting medicalisation and ‘natural’ death. Social Science & Medicine, 49(5), 691-704.
- Ethical issues in qualitative research at the end of life. International Journal of Palliative Nursing, 5(2), 65-73.
- Phenomenological approaches to palliative care research. Palliative Medicine, 12(2), 127-131.
- The Liverpool Care Pathway for the Dying Patient: a critical analysis of its rise, demise and legacy in England. Wellcome Open Research, 3, 15-15. View this article in WRRO
- Transitions at the end of life for older adults – patient, carer and professional perspectives: a mixed-methods study. Health Services and Delivery Research, 2(17), 1-102.
- Transitions to palliative care for older people in acute hospitals: a mixed-methods study. Health Services and Delivery Research, 1(11), 1-138. View this article in WRRO
- Utjecaj političkih čimbenika na razvoj palijativne skrbi u Velikoj Britaniji. Revija za socijalnu politiku, 9(3).
- Establishing key criteria to define and compare models of specialist palliative care : a mixed-methods study using qualitative interviews and Delphi survey. Palliative Medicine. View this article in WRRO
Chapters
- Communication and advance care planning for older people, Palliative care for older people (pp. 236-248). Oxford University Press
- Advance care planning in patients with end-stage renal disease, Supportive Care for the Renal Patient (pp. 49-74). Oxford University Press
- Advance Care Planning for the end of life: an overview, Advance Care Planning in End of Life Care (pp. 16-27). Oxford University Press
- Ethnography, Research Methods in Palliative Care (pp. 211-228). Oxford University Press
- Understanding the role of nurses in the management of symptoms and distress in the last days of life, Continuous Sedation at the End of Life (pp. 100-115). Cambridge University Press
- Hospice or Home? Expectations of End-of-Life Care Among White and Chinese Older People in the UK, Ethnicity, Health and Health Care (pp. 74-91). Blackwell Publishing Ltd.
Conference proceedings papers
- 165 Existential suffering in the day-to-day lives of those living with pallaitive care needs arising from chronic obstructive pulmonary disease. Poster presentations
- The Involvement of Cancer Patients in the Four Stages of Decision-making in Continuous Sedation Until Death. Journal of Pain and Symptom Management, Vol. 56(6) (pp e19-e20) View this article in WRRO
- 144 Qualitative component of a longitudinal, mixed methods programme evaluation using in-depth interviews. Poster presentations
- 4224 Exploring the breast cancer experiences, needs and preferences of women aged 70 years and over. European Journal of Cancer Supplements, Vol. 7(2) (pp 245-246)
- OP13 Evaluating experiences of advance care planning facilitators: results from the international ACTION study. Oral Presentations.
- Teaching interests
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Specialist areas of teaching include palliative and end-of-life care; qualitative and mixed research methods, particularly as applied to palliative and end-of-life care.
I supervise Masters and PhD students and have examined at doctoral level nationally and internationally.
I contribute by invitation to workshops and seminars, nationally and internationally, aimed at the education of health and social care professionals and researchers in the field of palliative and end-of-life care.
- Professional activities
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I am the Chair of the National End-of- Life Care Research Funders Interest Group (convened by Marie Curie) and a member of the Marie Curie Strategic Advisory Committee and Quinquennial Research Review committee. I was a member and deputy chair of the Health Care Sciences Research Review Panel, Swedish Research Council (2013 and 2012) and member of The Commission into the Future of Hospice Care, 2011 to 2013.