Patient involvement in our research

We have established a NEST research user group (RUG). This consists of people with non-epileptic seizures and family members and/or carers of people with NES. Our members are from different centres in the UK. The group meets regularly (at least every 6 months) in Sheffield. Our group act as advisors to the NEST research group on issues like presenting information to participants in the research, the design of aspects of the study and inform others about the research projects. They have also advised the research group on recent grant applications for further studies.

If you would like to find out more about becoming involved in the RUG, please contact us.

Current members of the NEST Research User Group can access the dedicated forum at: