“Join Dementia Research” A new UK wide service to get people involved in dementia research
Anyone, with or without dementia, can register their interest in taking part in dementia research as a volunteer with the new initiative www.joindementiaresearch.nihr.ac.uk that is being rolled out nationwide.
The service to boost dementia research is a collaboration between the National Institute for Health Research (NIHR), Alzheimer’s Research UK, Alzheimer’s Society and Alzheimer Scotland and is funded by the Department of Health. So far, almost 5000 volunteers, more than 80 NHS and research organisations as well as 31 research studies nationwide are involved, the website reveals.
Dr Daniel Blackburn, Consultant Neurologist at Sheffield Teaching Hospitals NHS Foundation Trust and Honorary Senior Lecturer at the University of Sheffield’s Institute for Translational Neuroscience, SITraN, said:
“We are pleased that Join Dementia Research will improve access for people with dementia to take part in research which is crucial to find new treatments and improved diagnostic tests. In Sheffield we are already recruiting to a study called IDEAL (http://www.idealproject.org.uk) which is using “Join Dementia Research” to help recruit. The IDEAL study is looking at how people cope with dementia and what can be done to improve the lives of people with dementia. This nationwide study is using “Join Dementia Research” to recruit and we hope it will help recruitment for this study.
There are several other studies on dementia in Sheffield, in particular VPHDARE@IT (http://www.vph-dare.eu) which is a European study looking at risk factors for dementia and improved imaging to detect dementia. We are also registering this study to utilise Join Dementia Research.”
For more information on the new “Join Dementia Research” initiative visit: www.joindementiaresearch.nihr.ac.uk or follow @beatdementia on twitter. The website also offers a step-by-step guide on how the service works.
For anyone in South Yorkshire who would like to get involved in dementia research, SITraN also hosts the South Yorkshire Dementia Research Advisory Group “SYDEM RAG”, a group made up of members of the public, dementia patients, their families, carers and healthcare professionals who meet quarterly to engage with researchers and inform the dementia research undertaken in Sheffield. For further information, please contact Annette Taylor on 0114 2222289 or email firstname.lastname@example.org.