The Yorkshire Cancer Research Bladder Cancer Patient Reported Outcomes (PROMs) Survey
What is the study about?
Funded by Yorkshire Cancer Research. The life and bladder cancer (LABC) survey is a new project hoping to improve the quality of life of people with bladder cancer.
The study is run by a research team based at the Universities of Sheffield and Leeds. It involves people who have bladder cancer in the Yorkshire, North Derbyshire, Humber and South Tees region. Nearly 2,000 people are diagnosed in this region each year. We know quite a bit about what treatments people have and how they respond to them. But, we know less about the impact of these treatments on life at home and work, relationships and emotions.
We want to find out what life is like following a diagnosis of bladder cancer.
We will do this by asking people to complete some questionnaires. This information will help us understand what areas of care patients need and how we can improve their care. The findings of the study will be used to evaluate hospital services and to help guide future changes.
What's going on now?
We want to know what it is like to live with and after bladder cancer. We want to know this so we can help future people with this disease. To get a picture of this quality of life for those in the Yorkshire, North Derbyshire, Humber and South Tees the LABC study has two different surveys for different groups of people:
My First Year: a survey of people newly diagnosed with bladder cancer
We will find out what life is like for patients just after their diagnosis and over the next year. We will ask them to complete 4 questionnaires over 12 months. We will look at how thing change over this year.
Snapshot: a survey of people diagnosed with bladder cancer in the last 10 years
This is a single questionnaire for people who have been diagnosed with bladder cancer in the last 10 years. We want to find out more about the long-term quality of life of people who have been diagnosed with and treated for bladder cancer. To find out more about this survey and how to opt out, click here:
These questionnaires will help us understand what matters most to patients and how we can improve their care. All opinions are important. We would like to hear from you whatever your age, if you are male or female, whatever type of bladder cancer and treatment you had, whether you have symptoms or not, and regardless of other medical conditions. We want to hear from you whether you found your care to be excellent, average or poor.
The LABC study has ethical approval and we have identified 15 NHS hospital sites within the Yorkshire, North Derbyshire, Humber and South Tees region and hope to start recruitment to the survey for newly diagnosed bladder cancer patients in Summer 2017.
The snapshot survey will be sent out in between November 2018 and January 2019.
Who is involved?
To view the research team members involved in the LABC study, see the link to the right.
For general enquiries or more information, please contact the LABC Study team
Tel: 0114 215 9039
Tel: 0113 343 5783