@article{article, title  = {{Understanding the health-related quality of life impacts of caring for children and adolescents with rare progressive life-limiting conditions: key challenges and future research priorities}},

 publisher = {{Springer}},

 url = {{https://eprints.whiterose.ac.uk/id/eprint/224035 }},

 year = {{2025}},

 month = {{3}},

 author = {{Powell P and Carlton J and Peasgood T and Chandler F and Godfrey F and Reuben E}},

 doi = {{10.1007/s11136-025-03937-8}},

 volume = {{34}},

 journal = {{Quality of Life Research}},

 issue = {{6}},

 pages = {{1579-1585}},

 note = {{Accessed on 2025/11/03}}}