@article{article, title  = {{Content validity, face validity and comprehensiveness of generic quality-of-life measures in adults and children with rare genetic conditions and their carers: a think aloud qualitative study}},

 publisher = {{Springer Science and Business Media LLC}},

 url = {{https://doi.org/10.1007/s11136-026-04324-7 }},

 year = {{2026}},

 month = {{6}},

 author = {{Bourke M and Zhu X and Boughtwood T and Gaff C and Hunter A and Mulhern B and Peasgood T and Stuart C and Buchanan J and Goranitis I}},

 doi = {{10.1007/s11136-026-04324-7}},

 volume = {{35}},

 journal = {{Quality of Life Research}},

 issue = {{8}},

 note = {{Accessed on 2026/07/01}}}