TY  - JOUR

T1  - Content validity, face validity and comprehensiveness of generic quality-of-life measures in adults and children with rare genetic conditions and their carers: a think aloud qualitative study

JO  - Quality of Life Research

UR  - https://doi.org/10.1007/s11136-026-04324-7

PY  - 2026/06/28

AU  - Bourke M

AU  - Zhu X

AU  - Boughtwood T

AU  - Gaff C

AU  - Hunter A

AU  - Mulhern B

AU  - Peasgood T

AU  - Stuart C

AU  - Buchanan J

AU  - Goranitis I

ED  - 

DO  - DOI: 10.1007/s11136-026-04324-7

PB  - Springer Science and Business Media LLC

VL  - 35

IS  - 8

Y2  - 2026/07/01

ER  -