@article{article, title  = {{Measuring health-related quality of life in facioscapulohumeral muscular dystrophy: a COSMIN systematic review and conceptual framework.}},

 url = {{}},

 year = {{2026}},

 month = {{3}},

 author = {{Carlton J and Powell P and Street J and Frances S and Williams C and Sutton A and Hewamadduma C}},

 doi = {{10.1186/s12955-026-02519-7}},

 journal = {{Health Qual Life Outcomes}},

 note = {{Accessed on 2026/04/08}}}