TY - JOUR T1 - Measuring health-related quality of life in facioscapulohumeral muscular dystrophy: a COSMIN systematic review and conceptual framework. JO - Health Qual Life Outcomes PY - 2026/03/26 AU - Carlton J AU - Powell P AU - Street J AU - Frances S AU - Williams C AU - Sutton A AU - Hewamadduma C ED - DO - DOI: 10.1186/s12955-026-02519-7 Y2 - 2026/04/08 ER -