@misc{misc, title  = {{Content validity, face validity and comprehensiveness of generic quality-of-life measures in adults and children with rare genetic conditions and their carers: a think aloud qualitative study}},

 url = {{https://doi.org/10.21203/rs.3.rs-8341102/v1 }},

 year = {{2026}},

 month = {{1}},

 author = {{Bourke M and Zhu X and Boughtwood T and Gaff C and Hunter A and Mulhern B and Peasgood T and Stuart C and Buchanan J and Goranitis I}},

 doi = {{10.21203/rs.3.rs-8341102/v1}},

 note = {{Accessed on 2026/02/01}}}