JTD: Journeying Through Dementiajtd logo

Journeying through Dementia is a large-scale research study that aims to find out whether attending a 12-week community programme has a positive impact on the quality of life for people who are living with the early stages of dementia.

The Journeying through Dementia community programme is based on research evidence and consultation with approximately 30 people living with dementia and their family members/friends. It is a 12-week community programme focused on assisting people to self-manage their condition and continue to enjoy life following a diagnosis.

The study is funded by the National Institute for Health Research - Health Technology Assessment(14/140/80). It commenced in December 2015 and will run for three and a half years until June 2019. The award is held in partnership with Sheffield Health and Social Care Trust and takes place across ten UK sites, working in collaboration with a number of NHS trusts and Universities.

The research will find out if attending the Journeying through Dementia community programme can support people with a diagnosis to continue living healthy, fulfilling lives.

A series of small studies (such as this one) indicated that the Journeying through Dementia programme met the needs of, and was beneficial for, people living with early dementia. We are now looking to explore this further, in more detail, with a larger number of people.

486 people living with dementia, across ten areas in the UK, will be invited to take part in the study. The study will include people who are in the early stages of dementia and who are able to decide for themselves about involvement in the research.
This is a randomised controlled trial (RCT) whereby half of the people in the study will receive the Journeying through Dementia programme and half will not. This is to find out if those who receive the programme show any differences compared to those who do not receive the programme. Everyone in the study will continue to receive the care and treatment they would usually receive.
The Journeying through Dementia programme involves twelve weekly group sessions with two trained health practitioners and four individual one-to-one sessions with one of those practitioners. People attending the programme can involve a supporter (usually a family member or friend) if they would like, but they do not have to.
Throughout the programme there is an emphasis on participation and putting ideas into action through activities in the local community. The content of sessions is decided by each group, with support from a trained health practitioner, so the precise content of each group varies depending on the members’ interests and goals.

Professor Gail Mountain provides a 5 minute overview about the Journeying through Dementia intervention and clinical trial:

If you would like more information about the trial, please contact:

Jessica Wright
Trial Manager
University of Sheffield
Tel: 011422224304
Email: jessica.wright@sheffield.ac.uk

Name Role Organisation Contact
Prof Gail Mountain Chief Investigator The University of Bradford

0114 2222982

g.mountain@bradford.ac.uk

Dr Jessica Wright Trial Manager The University of Sheffield

0114 2224304

Jessica.wright@sheffield.ac.uk

Prof Cindy Cooper

Clinic Trials Research Unit 

Director

The University of Sheffield

0114 2220743

c.l.cooper@sheffield.ac.uk

Stephen Walters  Senior Statistician The University of Sheffield

0114 2220730

s.j.walters@sheffield.ac.uk

Michelle Drury-Payne Research Assistant The University of Bradford 

01274 236570

m.drury@bradford.ac.uk

Amanda Loban Data Manager The University of Sheffield

0114 2222995

a.loban@sheffield.ac.uk

Benjamin Thomas Research Assistant The University of Sheffield

0114 2224024

b.d.thomas@sheffield.ac.uk

Ben J Thompson Research Assistant The University of Sheffield

0114 2222966

b.j.thompson@sheffield.ac.uk

Emma Young Research Assistant The University of Sheffield

0114 2220868

e.l.young@sheffield.ac.uk

Zoe Furniss Trial Support Officer The University of Sheffield

0114 2159122

z.furniss@sheffield.ac.uk

Jan Speechley Trial Support Officer The University of Bradford

01274 233641

j.speechley@bradford.ac.uk

Funder

The study if funded by the National Institute for Health Research - Health Technology Assessment (14/140/80)(NIHR-HTA).

Any views or opinions expressed are those of the authors and do not necessarily reflect those of the NIHR, NHS or Department of Health.

Sponsor

The study is sponsored by Sheffield Health and Social Care NHS Foundation Trust.

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