PhOEBE Patient and Public Involvement (PPI)

PhOEBE PPI Reference Group

PPI

Andrea Broadway-Parkinson

My interest in influencing policy and practice and ‘PCPIE’ (Patient, Carer, Public Involvement and Engagement) activities stems from 28 plus years as an incomplete spinal cord injured person following a Road Traffic Accident in 1986. My family and I have had much experience of using all manner of services over time, especially health services. Following studies in Social Policy (York, 1992) and Health Education (York St John, 1994), post 16/Adults Teaching/Training and a 5 year semi professional career as a British Paralympic level Wheelchair Tennis athlete (Atlanta 1996), I have run my own part time freelance disability consultancy, 'Dispel', based in York since 1998. I have experience of working in the voluntary, public and private sectors nationally and regionally and focused latterly in "expert patient" and patient experience/quality focused work. Key roles currently include ‘Expert Patient/Advisor’ with Yorkshire Ambulance Service; Lay Review work for NIHR (Research for Patient Benefit Prog)., member of PURSUN (Pressure Ulcer Research Service User Network) c/o University of Leeds, Lay Member to Yorkshire and Humber PPI Forum Research Design Service c/o University of Sheffield and other freelance work as a PPI/Lay Rep. to various research projects. I have an active interest in self management/self care, user led and peer support approaches and I'm passionate about ‘patient partnership’ and ‘service user/consumer’ involvement as a means of securing safe, efficient improvements in services and practices, including research, which are truly patient/service user/consumer centred.


PPI

Maggie Marsh

I am a retired primary teacher. My father was a GP. I became interested in medical research when my late husband developed heart problems and I was invited to take part in various research projects. I have become more interested in patient care and experience as have taken part in further research projects to do with emergency care.I am a member of Sheffield Emergency Care Forum PPI group (See SECF)


PPI

Dan Fall

I currently work in the IT and exhibition industries running two small businesses. I previously worked as a researcher on studies about the Ambulance service as well as a wide range of odd jobs including coach driving. I am participating within the PPI group for this project to provide a view from the middle aged working man and generally to be involved in the research process from a public perspective. I am a member of Sheffield Emergency Care Forum PPI group (See SECF)


What we do

The role of the reference group is to give a lay perspective on, and influence the research that is being carried out as part of the PhOEBE programme and provide support to the delivery of specific PPI components.