Dr Jonathan Boote Publications

Publications

Peer-reviewed journal articles

Dimairo M, Julious S, Todd S, Nicholl J, Boote J. (2015) Cross-sector surveys assessing perceptions of key stakeholders towards barriers, concerns and facilitators to the appropriate use of adaptive designs in confirmatory trials. Trials, 16:585 DOI 10.1186/s 13063-015-1119-x.

Boote J, Jones Z, McKevitt C, Wallace-Watson C, Rogers H.  Public involvement in, and engagement with, studies adopted onto the NIHR Stroke Research Network: questionnaire survey (2015).  Inernational Journal of Stroke 10(1), E6-E7.

Boote J, Newsome R, Reddington M, Cole A, Dimairo (2015) Physiotherapy for Patients with Sciatica Awaiting Lumbar Micro-Discectomy Surgery: a Nested, Qualitative Study of Patients' Views and Experiences.  Physiotherapy Research International, in press.

Boote J, Horspool M, Julious S, Elphick H, Smithson WS, Norman P. (2015) PPI in the PLEASANT trial: Involving children with asthma and their parents in designing an intervention for a randomised, controlled trial based based within primary care.  Primary Health Care Research & Development, in press.

Dimairo M, Boote J, Julious SA, Nicholl JP, Todd S. (2015):  Missing steps in a staircase: a qualitative study of the perspectives of key stakeholders on the use of adaptive designs in confirmatory trials.  Trials, 16:430 DOI 10.1186/s 13063-015-0958-9.

Collins K, Boote J, Ardron D, Gath J, Green T, Amhedzai S. (2014) Making patient and public involvement in cancer and palliative research a reality: academic support is vital for success.  BMJ Supportive and Palliative Care 1-4, doi: 10.1136/bmjspcare-2014-000750.

Heller S, Lawton J, Amiel S, Cooke D, Mansell P, Brennan A, Elliot J, Boote J et al (2014) Improving management of type 1 diabetes in the UK: the Dose Adjustment for Normal Eating (DAFNE) programme as a research test-bed.  A mixed-method analysis of the barriers to and facilitators of successful diabetes self-management, a health economic analysis, a cluster randomised controlled trial of different models of delivery of an educational intervention and the potential of insulin pumps and additional educator input to improve outcomes.  Programme Grants Appl Res 2(5), 1-224.

Taylor-Buck E, Dent-Brown K, Parry G, Boote J.
(2014) Dyadic arts therapy: key principles, practices and competences.  The Arts in Psychotherapy.  In press.

Horspool M, Julious SA, Boote J, Bradburn MJ, Cooper CL, Davis S, Elphick H, Norman P, Smithson WH, van Staa T. Preventing and lessening exacerbations of asthma in school-age children associated with a new term (PLEASANT): study protocol for a cluster randomised control trial. Trials, 2013, 14:297. doi: 10.1186/1745-6215-14-297

Boote J, Twiddy M, Baird W, Birks Y, Clarke C, Beever D. Supporting public involvement in research design and grant development: a case study of a public involvement award scheme managed by a National Institute for Health Research (NIHR) Research Design Service (RDS). Health Expectations. Early View (online version). DOI: 10.1111/hex.12130

Boote J, Baird W, Sutton A (2012). Involving the public in systematic reviews: a narrative review of organisational approaches and eight case examples. Journal of Comparative Effectiveness Research, 1(5), 409-420.

Boote J, Wong R, Booth A (2012). "Talking the talk or walking the walk?" A bibliometric review of the literature on public involvement in health research published between 1995 and 2009. Health Expectations, DOI: 10.1111/hex.12007

Boote J, Dalgleish M, Freeman J, Jones Z, Miles M, Rodgers H.
"But is it a question worth asking?"  A reflective case study describing how public involvement can lead to researchers' ideas being abandoned.
(2012) Health Expectations. In Press.

Barber R, Beresford P, BOOTE J, Cooper C, Faulkner A.
Evaluating the impact of public involvement on research: a prospective case study.
International Journal of Consumer Studies.
(2011) 35(6), 509-615.

Barber R, BOOTE J, Parry G, Cooper C, Yeeles P, Cook S.
Can the impact of public involvement on research be evaluated?  A mixed methods study.
Health Expectations.
(2011) doi: 10.1111/j.1369-7625.2010.0060.x

BOOTE J, Baird W, Sutton A.
Public involvement in the design and conduct of clinical trials: a review.

The International Journal of Interdisciplinary Social Sciences.
(2011) 5(11), 91-111.

BOOTE J, Baird W, Sutton A.
Public involvement in the systematic review process in health and social care: a narrative review of case examples. 
Health Policy.
(2011) 102, 105-116

BOOTE J, Baird W, Beecroft C
Public involvement at the design stage of primary health research: a narrative review of case examples.
Health Policy
(2010) 95, 10-23.

Ward P R, Thompson J, Barber R, Armitage CJ, BOOTE J, Cooper C L, Jones G L.
Critical perspectives on 'consumer involvement' in health research: epistemological dissonance and the know-do gap.
Journal of Sociology
(2010) 46(11), 63-82.

Allmark P, BOOTE J, Chambers E, McDonell A, Thompson A, Tod A.
Ethical issues in the use of in-depth interviews: literature review and discussion.
Research Ethics Review
(2009) 5(2),48-55.

Thompson J. Ward P, Barber R, BOOTE J, Armitage C, Cooper C, Jones G.
Health researchers' attitudes towards public involvement in health research.
Health Expectations
(2009) 12(2), 209-220.

Barber R, BOOTE J, Cooper C
Involving consumers successfully in NHS research: A national survey.
Health Expectations
(2007)10(4), 380-391.

BOOTE J, Barber R, Cooper C.
Principles and indicators of successful consumer involvement in NHS research: results of a Delphi study and subgroup analysis.
Health Policy
(2006) 75 (3), 280-297

BOOTE J, Lewin V, Beverley C, Bates J.
Psychosocial interventions for people with moderate to severe dementia: a systematic review.
Clinical Effectiveness in Nursing
(2006) 9S1, e1-e15.

Ledsham R, BOOTE J, Kirkland A, Davies S.
What is it like to use hip protectors? A qualitative study of the views and experiences of nurses and patients.
Clinical Effectiveness in Nursing
(2006) 9S1, e97-e105.

Bates J, BOOTE J, Beverley C.
Psychosocial interventions for people with a milder dementing illness: a systematic review.
Journal of Advanced Nursing
(2004) 45 (6), 1-15.

Telford R, BOOTE J, Cooper C.
What does it mean to involve consumers successfully in NHS research? A consensus study.
Health Expectations
(2004) 7 (3), 209-220.

Santos J, BOOTE J.
A theoretical exploration and model of consumer expectations, post-purchase affective states and affective behaviours.
Journal of Consumer Behaviour: An International Research Review
(2003) 3 (2), 142-156

BOOTE J, Telford R, Cooper C
Consumer involvement in health research: a review and research agenda.
Health Policy
(2002) 61 (2), 213-236.

Telford R, Beverley C, Cooper C, BOOTE J.
Consumer involvement in health research: fact or fiction?
Clinical Governance: An International Journal
(2002) 7 (2), 92-103

BOOTE J, Mathews A
"Saying is one thing: doing is another": the role of observation in marketing research.
Qualitative Market Research: An International Journal.
(1999) 2 (1), 15-21.

BOOTE J.
Towards a comprehensive taxonomy and model of consumer complaining behaviour.
Journal of Consumer Satisfaction, Dissatisfaction and Complaining Behaviour.
(1998) 11, 140-151

Published Abstracts

Boote J, Baird W, Sutton A.
Public involvement in the design and conduct of clinical trials:  a narrative review of case examples.
Trials
(2011)  12 (Suppl 1): A82. doi:10.1186/1745-6215-12-S1-A82.

Boote J, Dalgleish M, Freeman J, Jones Z, Miles M, Rodgers H.
"But is it a question worth asking?"  A case study describing how public involvement can lead to researchers' ideas being abandoned.
International Journal of Stroke
(2011), 6(Supplement 2), p58.

Jones Z, Boote J, Coleman P, Goose M, McKevitt C, Rodgers H, Weerasinghe M, Wilde K, Williamson J.
Evaluating the impact of patient, carer and public involvement oin the NIHR Stroke Research Network.
International Journal of Stroke
(2011) 6(Supplement 2), p58

Book Chapter

Barber R, BOOTE J, Parry G, Cooper C, Yeeles P.
Evaluating the impact of public involvement on research. Chapter for: Barnes M, Cottrell P (eds). 'Critical Perspectives on User Involvement'.
Policy Press.
(2011)

Shorter Peer-reviewed Publications

BOOTE J, and Collins K.
Patient and public involvement in health research.  In:  WYLD, Linda, (ed.) BASO - The Association for Cancer Surgery yearbook 2011.  London, BASO, 61-63. (2011)

Bates J, BOOTE J.
A review of psychosocial interventions for those with dementia has revealed a scarcity of research.
Nursing Standard
(2002) 17 (13) 21

BOOTE J.
Review of: The Resourceful Patient, JA Muir Gray.
Journal of Clinical Excellence
(2002) 4, 57.

BOOTE J, Telford R, Cooper C
Consumer involvement in health research.
Research Bulletin of the Institute of General Practice and Primary Care, University of Sheffield.
(2002) 3 (11), 1-2.

Ledsham R, BOOTE J.
Can we improve the recording of falls-related incidents? Insights from an injury analysis.
Clinical Governance Bulletin
(2003) 4 (3), 4-5.

Ledsham R, BOOTE J, Beardsall A.
An analysis of falls in older people shows the need for a strategic approach to prevention.
Nursing Standard
(2002) 16 (47), 21.

Ledsham R, BOOTE J, Beardsall A.
Implementing a fall risk assessment strategy for older people: issues and outcomes.
Clinical Governance Bulletin
(2002) 3 (3), 2-4.

Reports

Elphick H, Dawson V, BOOTE J.
A Report of a Patient and Public Involvement Consultation Event for a Study Proposal to Evaluate a Sleep Practitioner Intervention for Sleep Disorders in Children.
Published by the School of Health and Related Research (ScHARR), University of Sheffield. ScHARR Report Series No: 26. ISBN 1 900752 48 4. (2011) 

Julious S, Lai J, BOOTE J, Elphick H, Smithson H.
A report of a Patient and Public Involvement Consultation Event with Children with Asthma and their Parents to Review a Proposal for a Primary Care Intervention around the September School Return.  School of Health and Related Research (ScHARR).  University of Sheffield. 
ScHARR, University of Sheffield.  ScHARR Report Series No: 25.
(2011) ISBSN 1 900752.                                                    

Barber R, Parry G, Cooper C, BOOTE J.
Report of the Expert Workshop on the Impact of Public Involvement on Health and Social Care Research. ScHARR (School of Health and Related Research) Report Series.
University of Sheffield.
(2007) ISBN 1 900752 66 2.

Cooper C, Moore J, Telford R, BOOTE J, Repper J.
Evaluation of the North Trent Cancer Resarch Network Consumer Research Panel. ScHARR (School of Health and Related Research)
Report Series No 14. University of Sheffield.
(2005) ISBN 1 900752 31 X.

Refereed Conference Papers                                        

Walsh P, Campbell S, O'Hara J, Giles S, BOOTE J.
Exploring the past, present and future of patient involvement in patient safety.
International Society for Quality in Healthcare (ISQua) annual conference.
Rio De Janeiro, Brazil, 5-8th October 2014.

BOOTE J, Baird W, Heller S.
Public involvement in an NIHR-funded programme grant: a longitudinal, qualitative evaluation of impact and experiences.
New Developments in Public Involvement in Research, Rougemont Hotel, Exeter, 13-15 November 2013.

BOOTE J, Twiddy M, Baird W, Birks Y, Clarke C, Beever D.
Supporting public involvement in research design and grant development: a case study of a public involvement award scheme managed by a National Institute for Health Research (NIHR) Research Design Service (RDS).
New Developments in Public Involvement in Research, Rougemont Hotel, Exeter, 13-15 November 2013.

Cook T, Buckley N, BOOTE J, Marples G, Turnock C.
Accessing and assessing the impact and legacy of participatory health research.
New Developments in Public Involvement in Research, Rougemont Hotel, Exeter, 13-15 November 2013.

BOOTE J, Baird W, Sutton A.
Involving the Public in the Systematic Review Process in Health and Social Care:  A Narrative Review of Eight Case Examples.
Eighth International Conference on Interdisciplinary Social Sciences, Charles University, Prague, 30th July - 1st August 2013.

BOOTE J, Baird W, Sutton A.
Public involvement in the systematic review process in health and social care: A narrative review of case examples.
9th HTAi Annual Meeting, Bilbao, Spain, 25-27th June 2012.

BOOTE J, Baird W, Sutton A.
Public involvement in the systematic review process in health and social care: what does the evidence tell us?
INVOLVE 2012 Conference: Putting People First in Research, East Midlands Conference Centre, Nottingham, 13-14th November 2012.

Cooke T, BOOTE J, Buckley N, Lovatt B, Marplesl G, Turnock C, Vougioukalou S, Wright M.
A dynamic partnership approach to building understandings of the relationship between participatory (action) research and impact: in the midst of the messy.  Towards Creative Action: Transformations and Collaborations in Practice.
23rd - 25th November, Ashford International Hotel, Ashford, 2012.

BOOTE J, Baird W, Sutton A.
Public involvement in the design and conduct of clinical trials: a review.
Third International Conference on Science in Society, Catholic University of America, Washington D.C., 5th - 7th August.
(2011)

Barber R, BOOTE J, Parry G, Coooper C, Yeeles P.
Is it feasible to evaluate the impact of public involvement on health research? Findings from a Delphi study.
The 5th International Conference on Interdisciplinary Social Sciences, University of Cambridge, 2 - 5 August.
(2010)

BOOTE J, Baird W, Beecroft C.
Public involvement at the design stage of primary health research: a narrative review of case examples.
The 5th International Conference on Interdisciplinary Social Sciences, University of Cambridge, 2nd - 5th August.
(2010)

BOOTE J, Baird W, Beecroft C.
How do members of the public have an impact on the design of health research? A review of seven key examples.
INVOLVE 7th National Conference - Public Involvement in research: Innovation and impact. 16 - 17 November,
(2010) East Midlands Conference Centre, Nottingham.

Barber R, BOOTE J, Parry G, Cooper C.
Is it feasible to evaluate the impact of service user involvement on health and social research?
Critical perspectives on user involvement. University of Brighton, 24 April.
(2009)

Barber R, BOOTE J.
Is it to evaluate the impact of public involvement in health and social research?
The International Conference on Priorities in Healthcare, Gateshehad, 28th - 31st October.
(2008)

Barber R, BOOTE J, Parry G, Cooper C.
How feasible is it to evaluate the impact of public involvement in health and social research?
INVOLVE 6th National Conference, East Midlands Conference Centre, Nottingham, 11 - 12 November.
(2008)

Barber R, BOOTE J, Cooper C, Thompson J.
Public involvement in UK health research: How far is it happening and in what way? 'Authenticity to action: involving service users and carers in higher education conference'.
7th - 9th November, University of Central Lancashire
(2007)

Cooper C, Barber R, Parry G, BOOTE J.
Expert workshop on the impact of public involvement on health and social care research.
Health and social research in Sheffield: Sheffield Health and Social Research Consortium's annual conference. 22 November, Sheffield Wednesday Football Club.
(2007)

Barber R, BOOTE J, Cooper C
Exploring the extent of public involvement in UK health research. 'Together in innovation: developing research collaboration':
Sheffield Health and Social Research Consortium's annual conference. 9 November, Sheffield Wednesday Football Club.
(2006)

BOOTE J, Kirkland A, Ledsham R, Davies S.
What is it like to use hip protectors? A qualitative study of the views and experiences of nurses and patients.
'Together in innovation: developing research collaboration': Sheffield Health and Social Research Consortium's annual conference. 9 November, Sheffield Wednesday Football Club.
(2006)

Thompson J, Barber R, Cooper C, Ward P, BOOTE J, Armitage C, Jones G.
Researchers' attitudes to public involvement in health research.
'Together in innovation: developing research collaboration'. Sheffield Health and Social Research Consortium's annual conference. 9 November. Sheffield Wednesday Football Club.
(2006)

Cooper C, Telford R, BOOTE J.
Principles of public and patient involvement in health services research: results of a consensus study. Sharing Knowledge? Exploring the interfaces between science and society and the role of science communication.
Da Vinci Institute, Centre for Science Communication and the IITO, Institute for Innovation and Transdisciplinary Research, Vrije Universiteit, Amsterdam.
(2004)

Cooper C, Moore J, Telford R, BOOTE J, Repper J.
Influencing the research agenda: findings from an independent evaluation of a Cancer Network Consumer Research Panel.
INVOLVE 4th National Conference, 10 - 11 November, East Midlands Conference Centre, Nottingham.
(2004)

Telford R, BOOTE J, Cooper C.
Meaningful involvement of service users in research: a consensus activity.
Inclusion and Mental Health in the New Europe: European Network for Mental Health Service Evaluation 6th International Conference, Kings's College, London, 3-5 September.
(2004)

Cooper C, Telford R, BOOTE J.
Developing principles and indicators of successful consumer involvement in NHS research: results of a consensus study.
Research for Health in Primary Care: Reality, Impact and Future. International Conference. University of Hertfordshire, 21st - 22nd May.
(2003)

Telford R, BOOTE J, Cooper C.
What does it mean to involve consumers successfully in NHS research? Towards a consensus.
Consumers in NHS Research Third National Conference.Harrogate International Conference Centre, 7th November.
(2002)

Telford R, BOOTE J.
What factors facilitate customer involvement in research?
2nd Qualitative Evidence-based Practice Conference: Taking a Critical Stance. Coventry University, 14 - 16th May.
(2001)

BOOTE J.
Explaining voiced and non-voiced instances of primary dissatisfaction: a multi-dimensional analysis.
Proceedings of the Annual Conference of the Academy of Marketing. University of Stirling.
(2000)

BOOTE J.
Explaining voiced and non-voiced instances of primary dissatisfaction: a multi-dimensional analysis.
Proceedings of the Annual Conference of the Academy of Marketing. University of Stirling.
(2000)

BOOTE J, De Vita C F.
A truncated multi-factor, multi-item scale for the analysis of a dissatisfied consumer's psychographic profile.
Proceedings of the Annual Conference of the Academy of Marketing. University of Stirling.
(2000)

BOOTE J, Pressey A.
Integrating relationship marketing and complaining behaviour: a model of conflict and complaining behaviour within buyer-seller relationships.
Proceedings of the 28th Annual Conference of the European Marketing Academy. Humboldt University, Berlin, 12-14th July.
(1999)

Santos J, BOOTE J.
From expectations to behaviour: a model of expectations, post-purchase affective states and affective behaviours.
Proceedings of the 28th Annual Conference of the European Marketing Academy. Humboldt University, Berlin. 12th - 14th July.
(1999)

BOOTE J.
An exploratory study of primary voiced and non-voiced dissatisfaction.
Proceedings of the Annual Conference of the Academy of Marketing. University of Derby.
(1999)

BOOTE J, Mathews A.
"Saying is one thing; doing is another": the role of observation in marketing research.
Proceedings of the Annual Conference of the Academy of Marketing. Sheffield Hallam University.
(1998)

Refereed Poster Presentations

Newsome RJ, Reddington M, BOOTE J, Breakwell LM, Chiverton N, Michael ALR, Cole AA, Dimairo M.
Treating sciatica with physiotherapy: a nested qualitative investigation of the views and experiences of patients.
British Association of Spinal Surgeons annual meeting, Norwich, 13-15 March 2013

Newsome RJ, Reddington M, BOOTE J, Breakwell LM, Chiverton N, Michael ALR, Cole AA, Dimitrio M.
Treating sciatica with physiotherapy: a qualitative investigation of the views and experiences of patients.
Society for Back Pain Research annual meeting, London, 14-15 November 2013.

BOOTE J, Baird W, Sutton A.
Public involvement in the design and conduct of clinical trials: a narrative review of case examples.
MRC Clinical Trials Methodology Conference.  Marriott Hotel, Bristol, 4th - 5th October.
(2011)

BOOTE J, Dalgleish M, Freeman J, Jones Z, Miles M, Rogers H.
But is it a question worth asking? A case study describing how public involvement can lead to researchers ideas being abandoned.
UK Stroke Forum Annual Conference, Scottish Exhibition and Conference Centre, 29th November - 1st December.
(2011)

Jones Z, BOOTE J, Coleman PJ, Goose M, McKevitt C, Rodgers H, Weerasinghe M, Wilde K, Williamson J.
Evaluating the impact of patient, carer and public involvement in the NIHR SRN.
UK Stroke Forum Annual Conference, Scottish Exhibition and Conference Centre, 29th November - 1st December.
(2011)