Dr Sarah Barnes Publications

Publication List

Book Chapters

Barnes S and Whittingham K. 'The body over the life course: Heart Failure' In: 'The Routledge International Handbook on Positive Ageing' (2017). Eds: Docking R & Stock J. Routledge, UK.  

Gardiner C, Barnes S. Improving environments for care at the end of life in hospitals. Living and Ageing and Dying:  End of Life Care for Older People.  (2011)  Eds:  Gott M & Ingleton C.  Oxford University Press, Oxford, UK.

Refereed Journal Articles - in Print - Original Articles

Whittingham K, Barnes S, Dawson J.  Methodological challenges of a mixed methods study with a complex carer population. Nurse Researcher 2016; 23(5):31-35.

Gardiner C and Barnes S.  The impact of volunteer befriending services for older people at the end of life: mechanisms supporting wellbeing.  Progress in Palliative Care 2016; 24(3): 159-164.

Watkinson-Powell A C, Barnes S, Lovatt M, Wasielewska A, Drummond B.  (in press).  Food provision for older people receiving home care from the perspectives of home care workers.  Health and Social Care in the Community. 

Whittingham K, Barnes S, Gardiner C. A review of the range of tools to measure the effects of being an informal carer of a heart failure patient. Palliative Medicine (2013); 27(7): 596-607.

Barnes S, Raiswell C, Wasielewska A, Drummond B.  An investigation of the mealtime experience in residential care settings for older people. Health and Social Care in the Community (2013); 21(4): 442-450.

Orrell A, McKee K, Torrington J, Barnes S, Lewis A, Netten A, Darton R.  The relationship between building design and residents' quality of life in extra care housing schemes.  Health and Place (2013); 21: 62-24.

Barnes S, Gardiner C, Gott M, Chady B, Small N, Payne S, Seamark D, Halpin D. Patient-professional communication interventions in life-limiting illness: A review.  Journal of Pain and Symptom Management (2012); 44(6): pp 866-879

Small N, Gardiner C, Barnes S, Gott M, Halpin D, Payne S, Seamark D.  "You get old, you get breathless, and you die":  Chronic Pulmonary Disease in Barnsley, Uk. Health and Place 2012; 18(6): 1396-403.

Barnes S, Torrington J, Orrell A, Lewis A, Netten A, Darton R.  Does the design of extra-care housing meet the needs of the residents?:  A qualitative study. (2012)  Ageing and Society; 23(7): 1193-1214.         

Barnes S, Gardiner C, Gott M, Chady B, Small N, Payne S, Seamark D, Halpin D.  Patient-professional communication interventions in life-limiting illness: A review (2012) Journal of Pain and Symptom Management; 44(6): pp 866-879.  

Barnes S, Torrington J, Orrell A, Lewis A, Netten A, Darton R.  Does the design of extra-care housing meet the needs of the residents?  A qualitative study.  (2012)  October.  Ageing and Society.                                                                                                                

Brereton L, Gardiner C, Gott M, Barnes S, Ingleton C, Carroll C. The hospital environment for end-of-life care of older adults and their families: a systematic review.  Journal of Advanced Nursing (2012) 68(5): 981-993.

Gardiner C, Brereton L, Ingleton C, Gott M, Barnes S.  Exploring health professionals' views regarding the optimum physical environment for palliative and end of life care in the acute hospital setting: a qualitative study.  BMJ: Supportive and Palliative Care  (2011) 1:162-166

Waterworth S, Gott M, Raphael D, Barnes S.  Older people with Heart Failure and General Practitioners - Temporal Reference Frameworks and implications for practice.  Health and Social Care in the community. (2011) 19(4): 412-419

Lewis A, Torrington J, Barnes S, Darton R, Holder J, McKee K, Netten A, Orrell A.  EVOLVE: A tool for evaluating the design of older people's housing.  Housing Care and Support.  (2010) 13(3): 36-41

Gott M, Gardiner C, Small N, Payne S, Barnes S, Halpin D, Ruse C, Seamark D.  The effect of 'Shipman murders' on prescribing of opiates in COPD. Progress in Palliative Care  (2010) 18(2): 79-84

Small N, Gardiner C, Barnes S, Gott M, Payne S, Seamark D, Halpin D, Ruse C.  Using a prediction of death in the next 12 months as a prompt for referral to palliative care acts to the detriment of patients with Heart Failure and Chronic Obstructive Pulmonary Disease (COPD).  Palliative Medicine  (2010) 24(7): 740-741

Gardiner C, Barnes S, Small N, Gott M, Payne S, Seamark D, Halpin D, Ruse C. Reconciling informed consent and "do no harm": ethical challenges in palliative care research and practice with COPD.  Palliative Medicine  (2010) 24(5): 469-472

Gott M, Gardiner C, Small N, Payne S, Barnes S, Halpin D, Ruse C, Seamark D. Exploring the care needs of patients with advanced COPD: An overview of the literature.  Respiratory Medicine (2010) 104: 159-165.

Gardiner C, Gott M, Small N, Payne S, Seamark D, Barnes S, Halpin D, Ruse S.Living with advanced chronic obstructive pulmonary disease (COPD): Patients concerns regarding death and dying.  Palliative Medicine  (2009) 23(8): 691-697

Gott M, Gardiner C, Small N, Payne S, Barnes S, Halpin D, Ruse C, Seamark D.   Barriers to Advance Care Planning in Chronic Obstructive Pulmonary Disease.  Palliative Medicine (2009) 23(7): 642-648

Small N, Barnes S, Gott M, Payne S, Parker C, Seamark D and Gariballa S.  Dying, death and bereavement: a qualitative study of the views of carers of people with heart failure in the UK.  BioMed Central Palliative Care  (2009) 8:6

Gott M, Small N, Barnes S, Payne S, Parker C, Seamark D and Gariballa S.  Older people's views of a good death in heart failure: implications for palliative care provision.  Social Science and Medicine  (2008) 67(7): 1113- 1121

Barnes S, Gott M, Payne S, Parker C, Seamark D, Gariballa S and Small N.  Predicting mortality among a community-based sample of older people with heart failure.  Chronic Illness  (2008)4:5-12

Gott M, Barnes S, Payne S, Parker C, Seamark D, Gariballa S and Small N.  Patient views of Social Services provision for older people with advanced heart failure.  Health and Social Care in the Community  (2007) 15(4): 333-342

Gott M, Barnes S, Payne S, Parker C, Seamark D, Gariballa S and Small N.  Dying trajectories in heart failure.  Palliative Medicine  (2007) 21: 95-99

Barnes S, Gott M, Payne S, Parker C, Seamark D, Gariballa S and Small N.  Communication in heart failure: perspectives from patients and primary care professionals.  Health and Social Care in the Community  (2006) 14(6): 482-490

Barnes S, Gott M, Payne S, Parker C, Seamark D, Gariballa S and Small N.  Characteristics and views of family carers of older people with heart failure.  International Journal of Palliative Nursing  (2006) 12(8): 380-389

Barnes S, Gott M, Payne S, Parker C, Seamark D, Gariballa S and Small N.  Prevalence of symptoms in a community-based sample of heart failure patients.  Journal of Pain and Symptom Management  (2006) 32(3): 208-216

Barnes S.  Space, choice and control and quality of life in care settings for older people.  Environment and Behaviour
(2006) 38: 589-604

Gott M, Barnes S, Payne S, Parker C, Seamark D, Gariballa S and Small N.  Predictors of quality of life in older people with heart failure recruited from primary care.  Age and Ageing  (2006) 35(2): 172-177

Barnes S, Gott M, Payne S, Parker C, Seamark D, Gariballa S and Small N. Recruiting older people into a large, community-based study of heart failure.  Chronic Illness (2005) 1: 321-329

Parker C J, Barnes S, McKee K J, Morgan K, Torrington J M and Tregenza P R. Quality of life and building design in residential and nursing homes for older people.  Ageing and Society (2004) 24: 941-962

Torrington J, Barnes S, McKee K J, Morgan K, Tregenza P R.  The influence of building design on the quality of life.  Architectural Science Review  (2004) 47(2): 193-197

Barnes S.  The design of caring environments and the quality of life of older people.  Ageing and Society  (2002) 22: 775-789

McKee K J, Houston D M and Barnes S.  Methods for assessing quality of life and well-being in frail older people.  Psychology and Health  (2002) 17(6): 737-751

Refereed Conference Papers - in Print

Abouammoh N, Barnes S, Goyder E.  Challenges in practicing cross-cultural medical care in Saudi Arabia.  International Journal of Qualitative Methods 2014; 13:589-589.

Gardiner C, Gott M, Barnes S, Small N, Payne S, Halpin D, Payne S, Ruse C, Seamark D.  Living with advanced chronic ostructive pulmonary disease (COPD):  Patients concerns regarding death and dying.  Journal of Nutrition, Health & Ageing 2009; 13(1):S247

Gott M, Gardiner C, Barnes S, Small N, Payne S, Ruse C, Seamark D.  Discussing prognosis in advanced COPD: findings from a qualitative study with medical and nursing staff in the UK. 11th Congress of the European Association for Palliative Care, Vienna, May 2006.  European Journal of Palliative Care  (2009) May (In Press)

Gott M, Gardiner C, Barnes S, Small N, Payne S, Halpin D, Payne S, Ruse C, Seamark D.  Discussing prognosis in advanced COPD: findings from a qualitative study with clinicians in the UK. ATS International Conference, San Diego, May 2009.  Proceedings of the American Thoracic Society  (In Press)

Gardiner C, Gott M, Barnes S, Small N, Payne S, Ruse C, Seamark D.  Living with advanced chronic obstructive pulmonary disease (COPD): Patients concerns regarding death and dying.  Journal of Nutrition, Health and Ageing  (2009) 13(1): S247

Gardiner C, Gott M, Barnes S, Small N, Payne S, Ruse C, Seamark D.  Barriers to advance care planning for older people with COPD: Patient and professional perspectives. Australian Association of Gerontology, 42nd National Conference, Canberra, November 2009.  Australasian Journal on Ageing  (2009) 28(suppl 2): A100

Barnes S.  Coping with death and bereavement: views of carers' of older heart failure patients in the UK. European Association for Palliative Care, Budapest June 2007.  European Journal of Palliative Care  (2007) 14(5): S38

Barnes S.  Communication in heart failure: Perspectives from older people and primary care professionals. European Association for Communication in Healthcare. Basel September 2006.  Patient Education and Counselling (2006) 67(3): 241-354

Barnes S.  Preparation for dying and views about the 'good death' in heart failure: a qualitative study with older patients and bereaved carers. European Association for Palliative Care, Venice May 2006.  Palliative Medicine
(2006) 20(3): 229-379

Barnes S, Gott M, Payne S, Parker Chris, Seamark David, Gariballa S, Small N.  A study to explore the characteristics, quality of life and concerns of informal cares of older people with heart failure. European Association for Palliative Care, Venice May 2006.  Palliative Medicine  (2006) 20(3): 229-379

Barnes S.  Prevalence of symptoms in a community-based sample of heart failure patients. 6th Palliative Care Congress, Sheffield April 2006.  Journal of Hospice and Palliative Nursing  (2005) 7(6): 316-317

Barnes S, Gott M, Payne S.  Recruiting older people with heart failure into a study exploring palliative care needs. 9th Congress of the European Association for Palliative Care, Aachen Abstracts of the 9th Congress of the EAPC.  European Journal of Palliative Care  (2005) 53

Gott M, Payne S, Seamark D and Barnes S.  Conducting a multi-centre, longitudinal study within palliative care: Ethical and practical challenges. 5th Palliative Care Congress, Warwick March 2004.  Palliative Medicine  (2004) 18(2): 168

Barnes S, McKee K J, Morgan K, Parker C J, Torrington J M and Treganza P R.  The Design in Caring Environments study. British Society of Gerontology 30th Annual Conference. Stirling September 2001. In tester  Quality in Later Life: Rights, Rhetoric and Reality  (2001) 172-177