The Sheffield Cancer Research is interested in what research you think should be performed - here are some ways to influence what is going on:
Local people have formed the North Trent Consumer Research Panel (CRP) to provide input into research in the local area and nationally.
The purpose of the CRP is to to engage consumers, both cancer patients and carers, in the process of research into the causes, treatment and palliation of cancer illnesses.
Members of the CRP have helped with many aspects of cancer research. They sit on local and national committees which oversee the work of cancer researchers, are members of the steering groups for research protocols and clinical trials, offer advice on the day to day running of cancer units and the work of the professionals involved, and help produce better information and care for patients based on their own experiences. Most remarkably, some of our members are actively involved in the process of research from the planning of research, through the application for ethical approval, the data gathering and data analysis, to the authorship of articles in the research literature, and the translation of the research into clinical practice.
INVOLVE is an organisation that supports public involvement in NHS, public health and social care research.
INVOLVE was established in 1996 and is part of, and funded by, the National Institute for Health Research, to support active public involvement in NHS, public health and social care research. It is one of the few Government funded programmes of its kind in the world.
As a national advisory group our role is to bring together expertise, insight and experience in the field of public involvement in research, with the aim of advancing it as an essential part of the process by which research is identified, prioritised, designed, conducted and disseminated.
The National Institute of Health Research (NIHR) encourages patients and the public to get involved in research.
Involving patients and members of the public in research can lead to better research, clearer outcomes, and faster uptake of new evidence.
The NIHR encourages patients and the public to be actively involved in all NIHR-funded health and social care research, to:
- Set research priorities
- Identify the important questions that health and social care research needs to answer
- Give their views on research proposals alongside clinicians, methodologists, scientists, and public health and other professionals
- Help assess proposals for funding
- Take part in clinical trials and other health and social care research studies, not just as subjects but as active partners in the research process
- Publicise the results.