CFHealthHub Data Observatory project

A quality improvement project and trials within cohort platform for cystic fibrosis

The Data Observatory project aims to build on the work of the CFHealthHub platform, using objective adherence data from 17 UK CF centres to help improve the care that people with CF (pwCF) receive at a local and national level.

The project aims to do this in two ways:

• First, adherence data collected using dose-counting nebulisers, will be shared with CF healthcare professionals via the CFHealthHub platform – this information can then be used within routine care encounters and within Quality Improvement projects to help shape the care delivered in CF centres in supporting pwCF to self-manage their treatments successfully;
• Second, the ‘Trials within Cohorts’ (TwiCs) research database is intended to hold data for a large number of pwCF for future research studies, centred around behaviour change. This approach will help CF researchers to overcome the difficulties associated with conducting research in rare conditions such as high costs and poor recruitment. We have currently recruited 899 patients, across 17 different UK CF centres to the CFHealthHub Data Observatory. The intention is to recruit up to 6,000 adults with CF to contribute objective adherence data to the CFHealthHub platform over the next 4 years.

More detailed information on the study can be found in the protocol which is available to download via the ‘Downloads’ box on the right. We are also working with the Sheffield Microsystem Coaching Academy on the quality improvement aspects of the project – more information about their work can be found here.

Sites currently open for recruitment

• Sheffield Teaching Hospitals
• Nottingham University Hospital
• University Hospital Southampton
• Frimley Park Hospital
• The All Wales Cystic Fibrosis Centre
• Newcastle Royal Victoria Infirmary
• Royal Stoke University Hospital
• Oxford Adult Cystic Fibrosis Centre
• St Bartholomew's Hospital
• Bristol Royal Infirmary
• York Hospital
• Royal Devon and Exeter Hospital
• Glenfield Leicester Hospital
• Norfolk and Norwich University Hospitals
• University Plymouth Hospitals
• Royal Cornwall Hospital
• Birmingham Heartlands Hospital

Study staff

Name	Role	Organisation	Contact
Dr Martin Wildman	Chief Investigator	Sheffield Teaching Hospitals NHS Foundation Trust	martin.wildman3@nhs.net
Prof Cindy Cooper	CTRU Oversight	Clinical Trials Unit, University of Sheffield	c.l.cooper@sheffield.ac.uk
Alex Scott	Trial Manager	Clinical Trials Unit, University of Sheffield	alex.scott@sheffield.ac.uk
Emma Young	Research Assistant	Clinical Trials Unit, University of Sheffield	e.l.young@sheffield.ac.uk
India Davids	Research Assistant	Clinical Trials Unit, University of Sheffield	i.davids@sheffield.ac.uk
Louise Turner	Trial Support Officer	Clinical Trials Unit, University of Sheffield	louise.turner@sheffield.ac.uk
Dr Pauline Whelan	m-Health Applications Manager	HeRC, University of Manchester	pauline.whelan@manchester.ac.uk
Steven Antrobus	Senior Technical Project Manager	HeRC, University of Manchester	steven.antrobus@manchester.ac.uk
Steve Harrison	Deputy Director of Organisational Development	Sheffield Teaching Hospitals NHS Foundation Trust	steve.harrison6@nhs.net
Caroline Eadson	Head of Quality Improvement & Leadership Development Organisational Development	Sheffield Teaching Hospitals NHS Foundation Trust	c.eadson@nhs.net
Misbah Tahir	EMBRACE Pharmacist	Sheffield Teaching Hospitals NHS Foundation Trust	misbah.tahir@nhs.net
Amanda Bevan	National Pharmacy Lead – CF Self-care CQUIN	Southampton University Hospitals NHS Foundations Trust	amanda.bevan@uhs.nhs.uk
Marlene Hutchings	Research Physiotherapist	Sheffield Teaching Hospitals NHS Foundation Trust	marlene.hutchings1@nhs.net
Prof Madelynne Arden	Professor of Health Psychology	Sheffield Hallam University	m.arden@shu.ac.uk
Sophie Dawson	CFHealthHub Interventionist and National Quality Improvement Lead	Nottingham University Hospitals NHS Trust	Sophie.Dawson@nuh.nhs.uk
Charlotte Carolan	CFHealthhub National Quality Programme Manager	Sheffield Teaching Hospitals NHS Foundation Trust	charlotte.carolan@nhs.net
Lisa Watson	Research Coordinator and CFHealthHub Trial Sponsor	Sheffield Teaching Hospitals NHS Foundation Trust	lisa.watson24@nhs.net

Participating sites

Site	Name	Role	Contact
Sheffield Teaching Hospitals NHS Foundation Trust	Dr Martin Wildman	Principal Investigator	martin.wildman3@nhs.net
Sheffield Teaching Hospitals NHS Foundation Trust	Michelle Lowther	Clinical Coordinator	michelle.lowther1@nhs.net
Nottingham University Hospitals NHS Trust	Dr Jane Dewar	Principal Investigator	Jane.Dewar@nuh.nhs.uk
Nottingham University Hospitals NHS Trust	Sophie Dawson	CFHealthHub Interventionist	Sophie.Dawson@nuh.nhs.uk
University Hospital Southampton NHS Foundation Trust	Dr Julia Nightingale	Principal Investigator	julia.nightingale@uhs.nhs.uk
University Hospital Southampton NHS Foundation Trust	Elizabeth Shepherd	CFHealthHub Interventionist	elizabeth.shepherd@uhs.nhs.uk
Frimley Health NHS Foundation Trust	Josie Cunningham	CFHealthHub Interventionist	josie.cunningham@nhs.net
The All Wales Cystic Fibrosis Centre	Dr Ian Ketchell	Principal Investigator	Ian.Ketchell@wales.nhs.uk
The Newcastle upon Tyne Hospitals NHS Foundation Trust	Dr Stephen Bourke	Principal Investigator	Stephen.Bourke@nuth.nhs.uk
The Newcastle upon Tyne Hospitals NHS Foundation Trust	Alan Anderson	CFHealthHub Interventionist	alan.anderson@nuth.nhs.uk
University Hospital of the North Midlands NHS Trust (Stoke)	Dr Giles Fitch	Principal Investigator	giles.fitch@uhnm.nhs.uk
University Hospital of the North Midlands NHS Trust (Stoke)	Dr Angela McGowan	Principal Investigator	angela.McGowan@uhnm.nhs.uk
University Hospital of the North Midlands NHS Trust (Stoke)	Heather Seabridge	CFHealthHub Interventionist	heather.seabridge@uhnm.nhs.uk
University Hospital of the North Midlands NHS Trust (Stoke)	Michael Martin	CFHealthHub Interventionist	michael.martin@uhnm.nhs.uk
Oxford University Hospitals NHS Foundation Trust	Dr William Flight	Principal Investigator	william.flight@ouh.nhs.uk
Oxford University Hospitals NHS Foundation Trust	Jayne Faulkner	CFHealthHub Interventionist	jayne.faulkner@ouh.nhs.uk
Oxford University Hospitals NHS Foundation Trust	Louise Warnock	CFHealthHub Interventionist	louise.warnock@ouh.nhs.uk
Barts Health NHS Trust	Dr Danie Watson	Principal Investigator	danie.watson@bartshealth.nhs.uk
University Hospitals Bristol NHS Foundation Trust	Dr Kathryn Bateman	Principal Investigator	Kathryn.Bateman@uhbristol.nhs.uk
University Hospitals Bristol NHS Foundation Trust	Peter Moran	CFHealthHub Interventionist	peter.moran@uhbristol.nhs.uk
York Teaching Hospital NHS Foundation Trust	Dr Rebecca Thomas	Principal Investigator (York)	Rebecca.Thomas@york.nhs.uk
Hull University Teaching Hospitals NHS Trust	Dr Dejene Shiferaw	Principal Investigator (Hull)	Dejene.Shiferaw@hey.nhs.uk
York Teaching Hospital NHS Foundation Trust	Katy Lee	CFHealthHub Interventionist	Katy.Lee@york.nhs.uk
Hull University Teaching Hospitals NHS Trust	Katy Lee	CFHealthHub Interventionist	Katy.Lee@york.nhs.uk
York Teaching Hospital NHS Foundation Trust	Nicola Robson	CFHealthHub Interventionist	Nicola.Robson@york.nhs.uk
Hull University Teaching Hospitals NHS Trust	Nicola Robson	CFHealthHub Interventionist	Nicola.Robson@york.nhs.uk
Royal Devon and Exeter NHS Foundation Trust	Dr Nick Withers	Principal Investigator	nick.withers@nhs.net
University Hospital of Leicester NHS Trust	Dr Chandra Ohri	Principal Investigator	chandra.ohri@uhl-tr.nhs.uk
University Hospital of Leicester NHS Trust	Darren Tature	CFHealthHub Interventionist	darren.tature@uhl-tr.nhs.uk
Norfolk and Norwich University Hospitals NHS Foundation Trust	Dr Mark Pasteur	Principal Investigator	mark.pasteur@nnuh.nhs.uk
Norfolk and Norwich University Hospitals NHS Foundation Trust	Penny Galey	CFHealthHub Interventionist	penny.galey@nnuh.nhs.uk
University Hospitals Plymouth NHS Trust	Dr David Derry	Principal Investigator	david.derry@nhs.net
University Hospitals Plymouth NHS Trust	Dr David Waine	Principal Investigator	david.waine@nhs.net
University Hospitals Plymouth NHS Trust	Michelle Thomas	CFHealthHub Interventionist	michelle.thomas1@nhs.net
University Hospitals Plymouth NHS Trust	Harriet Gledhill	CFHealthHub Interventionist	harriet.gledhill@nhs.net
Royal Cornwall Hospitals NHS Trust	Dr Jonathan Myers	Principal Investigator	jonathanmyers@nhs.net
University Hospital Birmingham NHS Foundation Trust	Dr Edward Nash	Principal Investigator	edward.nash@heartofengland.nhs.uk
University Hospital Birmingham NHS Foundation Trust	Jocelyn Choyce	CFHealthHub Interventionist	jocelyn.choyce@heartofengland.nhs.uk

CFHealthHub development

CFHealthHub is an agile software development collaborative. Over the project, programmers at the Farr Institute based in the University of Manchester are making constant updates to improve the website and apps. Patient and staff feedback are a key influence in the changes to CFHealthHub, and a fortnightly teleconference is available for centre staff to discuss the software with the designers and programme developers at the Farr Institute.

Download the periodic programming update summary below.

• CFHH Programming Update: April 2018 (PDF, 403kb)

Phase 2 data salience

The Data Observatory opened in 2017 in three UK Cystic Fibrosis (CF) Centres. Over 2017 these three CF centres have focused on the recruitment of over 300 patients. Each patient has been given a chipped nebulisers that uploads real time information about medication use to the website and app ‘CFHealthHub’. Participants undergo a two month baseline measurement period, followed by a set up appointment where they are given access to CFHealthHub. Participants are then offered adherence support as required or requested, this support is based upon the behavioural intervention that is current being tested in the CFHealthHub RCT. Clinicians in the CF centres have also been given access to CFHealthHub and will receive training on how best to use this tool in their role.

Phase 2 milestones

• Set up and open Sheffield, Nottingham and Southampton CF centres as Data Observatory sites.
• Interventionists employed full time in Nottingham and Southampton.
• Study devices ordered and distributed to patients.
• 100 patients at each centre completing a baseline period by July 2018.
• Lung function and BMI entered into CFHealthHub for each participant.
• Pseudomonas status data collected.
• Collaboration between centres and central research team to restructure the adherence support intervention to fit into each CF team (new manual to be released in 2018).
• Begin a process evaluation to understand the implementation of CFHealthHub.

Phase 3 quality improvement cycles

One of main aims of the Data Observatory is to understand and support the integration of CFHealthHub into Cystic Fibrosis (CF) teams. CFHealthHub will provide clinical teams with the real time adherence of their patients, allowing patients to be visible outside of routine clinic appointments.

This visibility will help increase the focus of care on prevention, and over time reduce the burden and cost of ‘rescue’.

However, the implementation of technological and behavioural interventions in healthcare is difficult [1].

To overcome this challenge the Data Observatory is partnered with the Micro System Coaching Academy (MCA), who use Clinical Microsystems methodology [2]. Supported by the MCA, each CF team can make iterative changes to their ‘system’ and test how this impacts upon the integration of adherence data from CFHealthHub.

The Data Observatory will support teams to collect baseline data and to measure change scientifically. Improving the ‘system’ at each centre will help reduce the pressure of introducing CFHealthHub.

We hope that using this quality improvement method will help teams overcome the difficulties of implementation.

Training and support for quality improvement is provided by the MCA and the Data Observatory study team. Quality improvement courses have been hosted during 2017 in Nottingham and Southampton.

Since then, each centre, led by the CFHealthHub Interventionist, has begun to identify “5 P’s” (Purpose, Patients, Professionals, Processes, Patterns).

In doing so, they will collect data on service use and clinic flow, and build a detailed understanding of their services and the areas for improvement.

In June 2018 all three CF teams will have access to aggregated patient adherence data from baseline data collected as part of the Data Observatory. This will allow them to see their patient’s normal adherence alongside the data collected about their service.

Supported by the MCA and Data Observatory study team, the three centres will work together at a series of collaborative events to plan improvement cycles and share ideas and successes.

1. Wiltsey Stirman S, Kimberly J, Cook N, Calloway A, Castro F, Charns M. The sustainability of new programs and innovations: a review of the empirical literature and recommendations for future research. Implement Sci [Internet]. 2012;7(1):17.
2. EC Nelson, PB Batalden, MM Godfrey - A clinical microsystems approach, 2007

Further information can be found by going to the MCA website.

Phase 4 legacy platform

During 2019 and 2020 we have worked with eighteen UK CF centres to integrate CFHealthHub adherence data into routine clinical care. Using the learning from phase three, the centres apply quality improvement cycles and behaviour change techniques, to integrate CFHealthHub as a resource accessible to all of the MDT. English sites were able to access NHS England CQUIN funding (PSS CF self care CQUIN). The funding allowed each centre to have a dedicated behaviour change specialist to support patients and the clinical team. The CQUIN also provided a day a week pharmacist for each of the fourteen English NHS Trusts. This supported the EMBRACE workstream, exploring how CFHealthHub adherence data can be used for medicines optimisation.

During COVID19 we have changed some of our processes to allow CFHealthHub to be used as a tool for virtual care. To find out more, please see the protocol or contact the study manager.

Publications 

2020

Journal Articles

Martin R, Arden M, Porritt J, Wildman M, Naughton F. Investigating the Temporal Relationships between Symptoms and Nebuliser Adherence in People with Cystic Fibrosis: A Series of N-of-1 Observations. Healthcare (Basel). 2020;8(1):22. Published 2020 Jan 21. doi:10.3390/healthcare8010022. Available here.

2019

Journal Articles

Arden MA, Drabble S, O'Cathain A, Hutchings M, Wildman M. Adherence to medication in adults with Cystic Fibrosis: An investigation using objective adherence data and the Theoretical Domains Framework. Br J Health Psychol. 2019;24(2):357‐380. doi:10.1111/bjhp.12357. Available here.

Drabble SJ, O’Cathain A, Arden MA, Hutchings M, Beever D, Wildman M. When Is Forgetting Not Forgetting? A Discursive Analysis of Differences in Forgetting Talk Between Adults With Cystic Fibrosis With Different Levels of Adherence to Nebulizer Treatments. Qual Health Res. 2019;29(14):2119-2131. doi:10.1177/1049732319856580. Available here. 

Gao J, Arden M, Hoo ZH, Wildman M. Understanding patient activation and adherence to nebuliser treatment in adults with cystic fibrosis: responses to the UK version of PAM-13 and a think aloud study. BMC Health Serv Res. 2019;19(1):420. Published 2019 Jun 24. doi:10.1186/s12913-019-4260-5. Available here. 

Hind D, Drabble SJ, Arden MA, et al. Supporting medication adherence for adults with cystic fibrosis: a randomised feasibility study. BMC Pulm Med. 2019;19(1):77. doi:10.1186/s12890-019-0834-6. Available here. 

Hoo ZH, Gardner B, Arden MA, et al. Role of habit in treatment adherence among adults with cystic fibrosis. Thorax. 2019;74(2):197‐199. doi:10.1136/thoraxjnl-2017-211453. Available here.

Hoo ZH, Wildman MJ, Campbell MJ, Walters SJ, Gardner B. A pragmatic behavior-based habit index for adherence to nebulized treatments among adults with cystic fibrosis. Patient Prefer Adherence. 2019;13:283‐294. Published 2019 Feb 13. doi:10.2147/PPA.S186417 Available here. 

Protocols

Wildman M, Hutchings M, Arden M, O’Cathain A, Drabble S, Walters SJ, et al. Development and evaluation of an intervention to support Adherence to treatment in adults with Cystic Fibrosis: A randomised controlled trial and parallel process evaluation protocol [Internet]. Online Research Data (ORDA). 2018 [cited 2019 Feb 21]. Available here. 

Conference Abstracts

C. Carolan, M. Lowther, C. Clarke, S. Waterhouse, C. Girling, K. Strowbridge, S. Harrison, F. Edenborough, C. Rachel, M. Wildman. (2019). ePS5.06 Quality improvement within a learning health system: using PDSA cycles to embed a digital behaviour change platform, CFHealthHub, in routine care. Journal of Cystic Fibrosis, 18(1), S52. ECFS 2019. Available here. 

C. Carolan, C. Clarke, M. Lowther, C. Girling, S. Harrison, F. Edenborough, R. Curley, M Wildman. (2019). P433 Supporting patients to move from rescue to prevention: meeting patients on their own terms - a preliminary evaluation of out of hours adherence telephone support offered to cystic fibrosis patients using the digital health system CFHealthhub. Journal of Cystic Fibrosis, 18(1), S179-S180. ECFS 2019. Available here. 

C. Clarke, C. Carolan, M. Lowther, S. Waterhouse, K. Strowbridge, S. Harrison, C. Girling, F. Edenborough, R. Curley, M. Wildman. (2019). P432 How physiotherapists improved prescription accuracy for nebuliser treatment: using click analytics from CFHealthHub, a digital adherence system, to monitor quality improvement. Journal of Cystic Fibrosis, 18(1), S179. ECFS 2019. Available here. 

Dawson, S., Haynes, F., Millward, S., Horton-Smith, C., Parr, L., Barr, H., Saini, G., & Dewar, J. (2019). Identifying the challenges involved in maintaining an accurate record of patient nebuliser prescriptions at a UK adult CF Centre: a quality improvement project. Journal of Cystic Fibrosis, 18(1), S177. ECFS 2019. Available here.

Girling, C., Hind, D., Arden, M.A., & Wildman, M.J. (2019). Developing an implementation strategy for the use of objective adherence data in routine clinical practice: a case study in cystic fibrosis clinics. Implementation Science, 14(Supp 2), 4-5.

Girling, C., Totton, N., Hind, D., Wildman, MJ. (2019). CFHealthHub Data Observatory: A trials within cohort platform for habit formation in Cystic Fibrosis. Presented at Trials Using Cohorts and routine data: Efficacy and Analysis Symposium, 2019. London, United Kingdom.

Hoo, Z. H., et al., (2019). Understanding objective adherence to preventative inhaled therapies at a centre level for quality improvement - a CFHealthHub (CFHH) improvement collaborative study. Journal of Cystic Fibrosis, 18(1), S51-S52. ECFS 2019. Available here.

Whelan P, Stockton-Powdrell C, van Velsen L, Tabak M, Wolf K, Interdisciplinary Perspectives on Connected Health Research: Facilitators and Barriers for Sustainable Platform Development, MedInfo, Lyon, August 2019.

Communications

Arden M. (2019) Health and habits The Psychologist [Internet]. 2019 [cited 2019 Mar 4]. p. 07. Available here.

2018

Journal Articles

Hoo ZH, Coates E, Maguire C, et al. Pragmatic criteria to define chronic pseudomonas aeruginosa infection among adults with cystic fibrosis. Eur J Clin Microbiol Infect Dis. 2018;37(11):2219‐2222. doi:10.1007/s10096-018-3358-8. Available here.

Conference Abstracts

Arden, M.A., Gao, J. Hoo, Z.H, Wildman, M. The Patient Activation Measure and adherence in adults with Cystic Fibrosis: A think-aloud study. BPS Division of Health Psychology Annual Conference, Newcastle, UK, 5th-7th September 2018.

2017

Journal Articles

Tappenden P, Sadler S, Wildman M. (2017). An Early Health Economic Analysis of the Potential Cost Effectiveness of an Adherence Intervention to Improve Outcomes for Patients with Cystic Fibrosis. Pharmacoeconomics. 2017;35(6):647‐659. doi:10.1007/s40273-017-0500-x. Available here.

Conference Abstracts

Arden M, Drabble S, O’Cathain A, Hind D, Hutchings M, Whelan P, et al. (2017). CFHealthHub: The development of a digital intervention to provide feedback on objective nebuliser adherence data for adults with Cystic Fibrosis (CF). Frontiers in Public Health, 3rd UCL Centre for Behaviour Change Digital Health Conference 2017: Harnessing Digital Technology for Behaviour Change. Available here. 

Arden MA, Hutchings M, Whelan P, Wildman MJ, CFHealthHub group. (2017). Understanding nebuliser adherence in adults with Cystic Fibrosis: comparing high, medium and low adherers. European Health Psychologist, 19(Supp). The European Health Psychologist 2017 Conference. Available here.

Beever DA & Wildman M (2017). A personal reflection on being a co-applicant in the ACtiF study. Research Involvement and Engagement, 3(Supp 1). NIHR Involve Conference 2017. Available here.

Hind D, Maguire C, Cantrill H, O’Cathain A, Wildman M. (2017). EPS2.8 CFHealthHub: complex intervention to support adherence to treatment in adults with cystic fibrosis: external pilot trial. Journal of Cystic Fibrosis, 16(1), S40-S41. ECFS 2017. Available here. 

Hoo ZH, Curley RE, Campbell SMJ, Wildman MJ. (2017). IPD2.09 Cluster analysis of objective nebuliser adherence data among adults with CF: change in adherence over time and association with clinical outcomes. Journal of Cystic Fibrosis, 16(1), S60-S61. ECFS 2017. Available here.

Hoo ZH, Waterhouse S, Nightingale JA, Dewar J, Allenby M, Haynes F, et al. (2017). 155 CFHealthHub: using Leeds criteria and clinicians’ decision to determine the pseudomonas status among the 64 adults with cystic fibrosis in the two centre CFHealthHub (CFHH) pilot study. Journal of Cystic Fibrosis, 16(1), S105-S106. ECFS 2017. Available here.

Horspool K, Whelan P, Wildman M. (2017). 367 CFHealthHub: iterative co-production of a data feedback platform providing patient level adherence data to multi-disciplinary teams to optimise individual care and centre level adherence data to centre directors allowing benchmarking to enable centre level quality improvement cycles in a 3 centre improvement collaborative. Journal of Cystic Fibrosis, 16(1), S155. ECFS 2017. Available here.

Kirkpatrick S, Arden M, Beever D, Bradley J, Cantrill H, Daniels T, et al. 368 CFHealthHub: development and evaluation of videos incorporating peer description of successful self-management with inhaled therapies in adults with CF used to build self-efficacy to support self-care within the CFHealthHub complex intervention. Journal of Cystic Fibrosis, 16(1), S155-S156. ECFS 2017. Available here.

Whelan P, Hassan L, Fox S, Tempest E. Developing Mobile Applications for Health, Informatics for Health Congress, April 2017.

Whelan, P. Data and mHealth Technologies, Digital Health Outlook, UK and Italy Experiences in a Global Context, Milan, 2017.

2016

Journal Articles

Hoo ZH, Curley R, Campbell MJ, Walters SJ, Hind D, Wildman MJ. (2016). Accurate reporting of adherence to inhaled therapies in adults with cystic fibrosis: methods to calculate "normative adherence". Patient Prefer Adherence. 2016;10:887‐900. doi:10.2147/PPA.S105530. Available here.

Conference Abstracts

Arden MA, Drabble SJ, O’Cathain A, Hutchings M, Wildman M. (2016). WS16.1 ACtiF study: understanding adherence to nebuliser treatment in adults with cystic fibrosis using the Theoretical Domains Framework. Journal of Cystic Fibrosis, 15(1), S26. ECFS 2016. Available here.

Arden MA, Drabble SJ, O’Cathain A, Hutchings M, Wildman M. (2016) Applying the theoretical domains framework to adherence to nebuliser treatment in adults with cystic fibrosis. Eur Heal Psychol [Internet]. 2016 Dec 31 [cited 2017 Jul 12];18(S):689. Available here.

Sadler S, Wildman M, Tappenden P. 267 Cost-effectiveness of a complex adherence intervention to improve prevention in cystic fibrosis by empowering effective self-management: an exploratory health economic evaluation using UK Registry data. Journal of Cystic Fibrosis [Internet], 15(1), S119–S20. ECFS 2016. Available here.

Whelan, P. Using digital platforms to improve the lives of people with chronic conditions: a connected health case study of CFHealthHub, University of Manchester, August 2016.

Whelan, P. Co-producing Digital Platforms to support an Ageing Population, Chengdu, China, July 2016.

Wildman M, Buchan I, Ainsworth J, Whelan, P. CFHealthHub: Complex intervention to support self-management in people with Cystic Fibrosis. Poster for Farr Institute case study. 

2013

Conference Abstracts

C. Hinchliffe1, C. Rose1, M. Wildman1 Metrics that matter: making the invisible visible as adherence support moves a patient from a dependence on unscheduled rescue to planned prevention. ECFS 2013.

Contact us

For all enquiries, please email: cfhh@sheffield.ac.uk

Downloads

• CFHealthHub Data Observatory Protocol v9.0 (PDF, 1.38MB)
• CFHealthHub Data Observatory Participant Information Sheet v7.0 (PDF, 606KB)
• CFHealthHub Data Observatory Consent Form v4.0 (WORD, 100KB)
• CFHealthHub Legacy Diagram (PDF, 163KB)
• CFHealthHub Newsletter April 2020 (PDF, 9.97MB)