Dr Nikita Hayden
School of Education
Research Associate
n.hayden@sheffield.ac.uk
The Wave
Full contact details
Dr Nikita Hayden
School of Education
The Wave
2 Whitham Road
Sheffield
S10 2AH
School of Education
The Wave
2 Whitham Road
Sheffield
S10 2AH
- Profile
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I am a Research Associate with iHuman and the School of Education at the University of Sheffield. I am currently working as a Research Associate for the Development phase of the Wellcome Anti-Ableism Research Culture project. I previously worked on the ESRC funded project 'Humanising Healthcare', where we employed ethnographic methods, narrative interviews, and co-production to explore examples of humanising healthcare with people with learning disabilities.
- Research interests
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My research work to date has been situated in applied psychology, with a particular focus on families and siblings. My sibling research focuses on siblings of children and adults with learning and developmental disabilities. I am a volunteer Research Associate for the UK charity Sibs and am collaborating with colleagues from various disciplines to establish the Sibling Studies Network. I have experience of quantitative, qualitative, and mixed methods research approaches.
- Publications
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Journal articles
- ‘You understand me’: experiences of peer mentors delivering support for a mindfulness intervention to family carers of people with intellectual and developmental disabilities. Journal of Applied Research in Intellectual Disabilities, 38(4). View this article in WRRO
- From pathology to Affirmation: Disability Philosophy in Everyday Life. Humana Mente, 18(47), 183-205.
- Conducting research in real world settings—lessons learned from an implementation and process evaluation of Headsprout Early Reading® in special schools. Frontiers in Education, 10. View this article in WRRO
- Engaging children with developmental disabilities in online data collection procedures: reflections and implications for future research. Tizard Learning Disability Review. View this article in WRRO
- Wellbeing of family carers of adults with intellectual disabilities during the COVID‐19 pandemic in the UK: longitudinal study. Journal of Intellectual Disability Research, 69(4), 265-273. View this article in WRRO
- “I would not change [my] sibling for the world, Maybe the world can change for my sibling”: the experiences of adult siblings of people with developmental disabilities. Journal of Community & Applied Social Psychology, 34(6). View this article in WRRO
- Failing ethnographies as post-qualitative possibilities: reflections from critical posthumanities and critical disability studies. Qualitative Research in Psychology, 22(3), 632-655. View this article in WRRO
- Co‐producing ethics guidelines together with people with learning disabilities. British Journal of Learning Disabilities, 52(4), 611-632. View this article in WRRO
- Sibling Relationship and Behavioral Adjustment in Families of Disabled Children: Cross-Lagged Associations. American Journal on Intellectual and Developmental Disabilities, 129(1), 73-85. View this article in WRRO
- Construct validity of the Lifespan Sibling Relationship Scale measuring adult sibling relationship quality where one sibling has intellectual or developmental disabilities. International Journal of Developmental Disabilities. View this article in WRRO
- Behavioural adjustment of children with intellectual disability and their sibling is associated with their sibling relationship quality. Journal of Intellectual Disability Research, 67(4), 310-322.
- Subjective poverty moderates the association between carer status and psychological outcomes of adult siblings of people with intellectual and developmental disabilities. Journal of Autism and Developmental Disorders, 53(3), 987-999. View this article in WRRO
- A realist review of programs for siblings of children who have an intellectual/developmental disability. Family Relations.
- A systematic review and narrative synthesis of mental imagery tasks in people with an intellectual disability: implications for psychological therapies. Clinical Psychology Review, 96. View this article in WRRO
- Access to and use of health and social care services for people with learning disabilities during COVID-19: a longitudinal study. Tizard Learning Disability Review, 27(1), 57-66. View this article in WRRO
- 1000 Families Study, a UK multiwave cohort investigating the well-being of families of children with intellectual disabilities: cohort profile. BMJ Open, 10(2). View this article in WRRO
- Supporting siblings of children with a special educational need or disability: An evaluation of Sibs Talk, a one‐to‐one intervention delivered by staff in mainstream schools. Support for Learning, 34(4), 404-420. View this article in WRRO
- Characters with autism spectrum disorder in fiction: where are the women and girls?. Advances in Autism, 5(1), 50-63.
- A population-based study of the behavioral and emotional adjustment of older siblings of children with and without intellectual disability. Journal of Abnormal Child Psychology, 47(8), 1409-1419. View this article in WRRO
- Transforming the community, transforming the self: young people, social action and community leadership. The Sheffield Student Journal for Sociology, 2. View this article in WRRO
- Implementation of Online Mindfulness With Peer Mentoring for Parent and Sibling Carers of People With Intellectual and Developmental Disabilities. Journal of Intellectual Disability Research.
- Development and initial psychometric properties of the Warwick–Edinburgh Mental Wellbeing Scale‐Intellectual Disability version. Journal of Intellectual Disability Research.
Book chapters
- Working with siblings of autistic CYP, Improving Mental Health Therapies for Autistic Children and Young People (pp. 115-132). Routledge
- Family theories and siblings of people with intellectual and developmental disabilities In Hodapp RM, Fidler DJ & Lanfranchi S (Ed.), International Review of Research in Developmental Disabilities (pp. 1-49). Elsevier View this article in WRRO
Conference proceedings
- PERSPECTIVES OF YOUNG PEOPLE WITH INTELLECTUAL DISABILITIES AND THEIR SIBLINGS ON THEIR SIBLING RELATIONSHIPS. JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, Vol. 68(7) (pp 737-737)
- HUMANISING HEALTHCARE AND PEOPLE WITH INTELLECTUAL DISABILITIES: A CO-PRODUCED NARRATIVE STUDY. JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, Vol. 68(7) (pp 815-815)
- PERSPECTIVES OF YOUNG PEOPLE WITH INTELLECTUAL DISABILITIES AND THEIR SIBLINGS ON THEIR SIBLING RELATIONSHIPS. JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, Vol. 67(10) (pp 929-929)
Reports
- Adult siblings of people with intellectual disabilities and/or a diagnosis of autism: an evidence review View this article in WRRO
- Coronavirus and people with learning disabilities study: wave 3 results: September 2023 (Full Report) View this article in WRRO
- Special educational needs in mainstream schools: evidence review View this article in WRRO
- Research to understand successful approaches to supporting the most academically able disadvantaged pupils; research report View this article in WRRO
Presentations
- Understanding the experiences of siblings of people with disabilities webcast script. Online. View this article in WRRO
- ‘You understand me’: experiences of peer mentors delivering support for a mindfulness intervention to family carers of people with intellectual and developmental disabilities. Journal of Applied Research in Intellectual Disabilities, 38(4). View this article in WRRO
- Professional activities and memberships
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- Research Associate, School of Education and iHuman, University of Sheffield, Mar 2023 – present
- Honorary Research Fellow, CEDAR, University of Warwick, Apr 2023 – present
- Research Associate, Sibs Charity, Jan 2020 - present