Our Research

In partnership with patients and the public, we conduct a portfolio of robust, patient-centred, policy-relevant research focused on understanding the whole palliative care journey and improving care for the people of Sheffield and beyond.

Library work
Off

Our research group conducts multi-disciplinary research with a reputation for excellence that informs practice and policy in palliative and end of life care nationally and internationally.

We are involved in a wide range of research projects, collaborating with clinical, academic and policy partners. We work closely with local clinical providers including St Luke's Hospice (whose Research Lead is Dr Paul Taylor), Sheffield Teaching Hospitals NHS Foundation Trust and the CCG. For a summary of our current research projects and publications see below:

Current Research

Details of our current research projects can be found here.

Recent Publications

2022

Bird J & Wilson F (2022) Do not resuscitate orders in the time of COVID-19: Exploring media representations and implications for public and professional understandings, Progress in Palliative Care, DOI: 10.1080/09699260.2022.2052505

Gardiner, C., Harrison, M., Hargreaves, S. & Taylor, B. (2022). Clinical nurse specialist role in providing generalist and specialist palliative care: A qualitative study of mesothelioma clinical nurse specialists. Journal of Advanced Nursing, 00, 1– 10. https://doi.org/10.1111/jan.15277

Taylor P, Stone T, Simpson R, Kyeremateng S, Mason S. Emergency department presentations in palliative care patients: a retrospective cohort study.  BMJ Supportive and Palliative Care 2022; 0. 1-4 

Mitchell, S., Barclay, S., Evans, C., & Sleeman, K. (2022). Palliative and end-of-life care in primary care during the COVID-19 pandemic and beyond. Br J Gen Pract, 72(714), 6-7. doi:10.3399/bjgp22X718025

Ejegi-Memeh S, Taylor B, Gardiner C. Tod A. Patients' and informal carers' experience of living with mesothelioma: A systematic rapid review and synthesis of the literature. European Journal of Oncology Nursing. 2022 https://doi.org/10.1016/j.ejon.2022.102122

Gardiner C, Taylor B, Goodwin H, Robinson J, Gott M. Employment and family caregiving in palliative care: an international qualitative study. Palliative Medicine 2022.

Harrison M, Darlison L, Gardiner C. Understanding the Experiences of end of Life Care for Patients with Mesothelioma from the Perspective of Bereaved Family Caregivers in the UK: A Qualitative Analysis. Journal of Palliative Care. February 2022. doi:10.1177/08258597221079235

2021

Ariss SMB, Taylor P, Fitzsimmons D, Kyeremateng S, Mawson S. Mobile technology and delegated work in specialist community services: the EnComPaSS Integration project.  BMJ Supportive and Palliative Care 2021; 0:1-8

Mitchell, S., Harrison, M., Oliver, P., Gardiner, C., Chapman, H., Khan, D…. Mayland, C. (2021). Service change and innovation in community end-of-life care during the COVID-19 pandemic: qualitative analysis of a nationwide primary care survey. Palliative Medicine. doi:10.1177/02692163211049311

Mitchell, S., Chapman, H., Fowler, I., & McTague, L. Dying at home during covid-19: a view from primary care. BMJ, n1776. doi:10.1136/bmj.n1776

Mitchell S, Oliver P, Gardiner C, Chapman H, Khan D, Boyd K, Dale J, Barclay S & Mayland C. Community end-of-life care during COVID-19: Findings of a UK primary care survey. BJGP Open 2021

Webb EJD, Meads D & Gardiner C Changing the eligibility criteria for welfare payments at the end of life – a budget impact analysis for England and WalesBMC Health Services Research 2021, 21: 421

Mitchell S, Harding S, Samani M, Slowther A-M, Coad J & Dale J. Experiences of general practice of children with complex and palliative care needs and their families: a qualitative studyBMJ Open 2021, 11(1).

Harrison M, Gardiner C, Taylor B, Ejegi-Memeh S & Darlison L. Understanding the palliative care needs and experiences of people with mesothelioma and their family carers : an integrative systematic reviewPalliative Medicine 2021;35(6):1039-1051. 

Hanna JR, Rapa E, Dalton L, Hughes R, McGlinchey T, Bennett KM, Donnellan WJ, Mason SR & Mayland CR A qualitative study of bereaved relatives’ end of life experiences during the COVID-19 pandemicPalliative Medicine. 2021;35(5):843-851.   

Manson J, Gardiner C, Taylor P, Ghasemi L, Westerdale-Shaw E, Sutton L & Cawley H ‘Palliative care education in nursing homes: a qualitative evaluation of telementoringBMJ Supportive & Palliative Care 2021

Taylor B, Tod A, Gardiner C, Creech L, Forde F & Darlison L Effects of the COVID-19 pandemic on people with mesothelioma and their carersCancer Nursing Practice 2021, 20(2). doi: 10.7748/cnp.2021.e1773

Limbu T & Taylor PM Experiences of surgical nurses in providing end-of-life care in an acute care setting: a qualitative study. Br J of Nurs 2021 30(18), 1084-1089.  

Walzl N, Sammy IA, Taylor PM, Smith JE & Lowe DJ Systematic review of factors influencing decisions to limit treatment in the emergency departmentEmergency Medicine Journal 2021 

Mayland CR, Hughes R, Lane S, McGlinchey T, Donnellan W, Bennett K, Hanna J, Rapa E, Dalton L, Mason SR. Are public health measures and individualised care compatible in the face of a pandemic? A national observational study of bereaved relatives' experiences during the COVID-19 pandemic. Palliat Med. 2021 Sep;35(8):1480-1491. .

Hanna J, Rapa E, Dalton L, Hughes R, Quarmby LM, McGlinchey T, Donnellan W, Bennett K, Mayland CR, Mason SR*. Health and social care professionals’ experiences of providing end of life care during the COVID-19 pandemic: A qualitative study. Palliat Med. 2021;35(7):1249-1257..

Haugen DF, Hufthammer KO, Gerlach C, Sigurdardottir K, Hansen MIT, Ting G, Tripododo VA, Goldraij G, Yanneo EG, Leppert W, Wolczczak K, Zambon L, Passarini JN, Saad IAB, Weber M, Ellershaw J, Mayland CR. ERANet-LAC CODE Project Group. Good Quality Care for Cancer Patients Dying in Hospitals, but Information Needs Unmet: Bereaved Relatives' Survey within Seven Countries. Oncologist. 2021 Jul;26(7):e1273-e1284. doi: 10.1002/onco.13837. 

2020

Mitchell S, Maynard V, Lyons V, Jones N & Gardiner C. The role and response of primary healthcare services in the delivery of palliative care in epidemics and pandemics : a rapid review to inform practice and service delivery during the COVID-19 pandemicPalliative Medicine 2020, 34(9):1182-1192 

Gardiner C, Robinson J, Connolly M, Hulme C, Kang K, Rowland C, Larkin P, Meads D, Morgan T & Gott M Equity and the financial costs of informal caregiving in palliative care: a critical debateBMC Palliative Care 2020, 19 (1).

Mitchell S, Slowther A-M, Coad J & Dale J Experiences of healthcare, including palliative care, of children with life-limiting and life-threatening conditions and their families : a longitudinal qualitative investigationArchives of Disease in Childhood 2020, 106:570-576.

Mayland CR, Ho QM, Doughty HC, Rogers SN, Peddinti P, Praytush C, Mason SR, Cooper M & Dey P The palliative care needs and experiences of people with advanced head and neck cancer: a scoping reviewPalliative Medicine. 2021;35(1):27-44.

Mayland C, Doughty HC, Rogers SN, Gola A, Mason S, Hubbert C, Macareavy D & Jack BA A qualitative study exploring patient, family carer and healthcare professionals’ direct experiences and barriers to providing and integrating palliative care for advanced head and neck cancerJournal of Palliative Care. 2021;36(2):121-129. 

Mayland C, Harding A, Preston N & Payne S (2020) Supporting adults bereaved through COVID-19: a rapid review of the impact of previous pandemics on grief and bereavementJournal of Pain and Symptom Management 60 (2) 33-39

Manson J, Ghasemi L, Westerdale E, Taylor P, Kyeremateng S & McTague L Evaluating a palliative care education programme for domiciliary care workersNursing Older People 2020, 35(2).  

Research Expertise

We have specialist expertise in a range of methodologies, our main areas of research focus include: 

  • Evaluating quality of care for the dying
  • Inequity and inequality in palliative care; improving palliative care access and provision for under-served groups. 
  • Financial and economic costs of palliative care, and financial support for patients and their families.
  • International palliative care; addressing global challenges to establish palliative care in low and middle income countries
  • Palliative care in primary care; identification and management of supportive and palliative care needs in the community.
  • Oral history in palliative care   
  • Service user involvement and PPI, championing meaningful engagement with service users in palliative care research
  • Policy-relevant research to improve service design and patient experiences of care.

Flagship institutes

The University’s four flagship institutes bring together our key strengths to tackle global issues, turning interdisciplinary and translational research into real-world solutions.