Dr Philip Powell
BA (Hons), PhD
School of Medicine and Population Health
Senior Research Fellow
p.a.powell@sheffield.ac.uk
+44 114 222 0794
+44 114 222 0794
Regent Court (ScHARR)
Full contact details
Dr Philip Powell
School of Medicine and Population Health
Regent Court (ScHARR)
30 Regent Street
Sheffield
S1 4DA
School of Medicine and Population Health
Regent Court (ScHARR)
30 Regent Street
Sheffield
S1 4DA
- Profile
-
I joined ScHARR (HEDS) in November 2017 and work as part of the ScHARR Outcomes group on measuring and valuing health and quality of life. Currently, my research focuses on the development and evaluation of patient-reported outcomes (PROMs) and methodological research into how health and quality of life are best valued. This includes a focus on specific populations, including children and people with life-limiting or life-threatening conditions.
Prior to this, I worked as a Research Fellow in the Department of Economics at the University of Sheffield. I have also held applied roles in special education and the civil service.
- Qualifications
-
BA Psychology, University of Sussex
PhD Psychology, University of Sheffield
- Research interests
-
- Measuring and valuing health and quality of life
- Measuring and valuing health-related quality of life in children and in rare conditions
- Development and evaluation of patient-reported outcomes (PROMs)
- The roles of emotion and emotion regulation in health
- Publications
-
Show: Featured publications All publications
Featured publications
Journal articles
- Development of a new health-related quality of life measure for people with diabetes who experience hypoglycaemia: the Hypo-RESOLVE QoL.. Diabetologia, 67(8), 1536-1551.
- Understanding UK public views on normative decisions made to value health-related quality of life in children: a qualitative study. Social Science & Medicine, 340. View this article in WRRO
- A comprehensive qualitative framework for health-related quality of life in Duchenne muscular dystrophy.. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 32(1), 225-236.
- Valuing quality in mental healthcare: A discrete choice experiment eliciting preferences from mental healthcare service users, mental healthcare professionals and the general population.. Social science & medicine (1982), 301, 114885.
- Valuing child and adolescent health: a qualitative study on different perspectives and priorities taken by the adult general public. Health and Quality of Life Outcomes, 19(1).
- Development of a New Quality of Life Measure for Duchenne Muscular Dystrophy Using Mixed Methods: The DMD-QoL. Neurology, 96(19), E2438-E2450.
- Deriving a Preference-Based Measure for People With Duchenne Muscular Dystrophy From the DMD-QoL. Value in Health, 24(10), 1499-1510.
- Measuring quality of life in Duchenne muscular dystrophy : a systematic review of the content and structural validity of commonly used instruments. Health and Quality of Life Outcomes, 18. View this article in WRRO
- The internet and children's psychological wellbeing. Journal of Health Economics, 69.
- Individual differences in emotion regulation moderate the associations between empathy and affective distress. Motivation and Emotion, 42(4), 602-613.
All publications
Edited books
- The Handbook of Disgust Research: Modern Perspectives and Applications. Springer.
- The Revolting Self Perspectives on the Psychological, Social, and Clinical Implications of Self-Directed Disgust. Karnac Books.
Journal articles
- Determining the content validity of the EQ-5D-5L, EQ-5D-Y-3L, and CHU9D instruments for assessing generic child and adolescent health-related quality of life: a qualitative study. Patient, 18(5), 523-537. View this article in WRRO
- Young children (6-7 years) can meaningfully participate in cognitive interviews assessing comprehensibility in health-related quality of life domains: a qualitative study.. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 34(6), 1633-1646.
- Understanding the health-related quality of life impacts of caring for children and adolescents with rare progressive life-limiting conditions: key challenges and future research priorities. Quality of Life Research, 34(6), 1579-1585. View this article in WRRO
- Capturing what matters: Patient-reported LGI1-ANTibody encephalitis outcome RatiNg scale (LANTERN).. Annals of clinical and translational neurology, 12(4), 821-831.
- The comprehensibility continuum: a novel method for analysing comprehensibility of patient reported outcome measures. Quality of Life Research, 34(4), 937-947.
- Deriving a Preference-Weighted Measure for People With Hypoglycemia From the Hypo-RESOLVE QoL.. Value Health, 28(1), 125-137.
- Is self-disgust an implicit or explicit emotional schema?. Journal of Affective Disorders, 369, 1256-1266. View this article in WRRO
- The Relationship Between Subjective Cognitive Decline and Cognitive Leisure Activity Engagement: A Systematic Review.. The Gerontologist, 65(2), gnae176.
- Development of a novel patient reported outcome measure for health-related quality of life in amyotrophic lateral sclerosis (PROQuALS): study protocol. Health and Quality of Life Outcomes, 22(1). View this article in WRRO
- Who should value children’s health and how? An international Delphi study. Social Science & Medicine, 355. View this article in WRRO
- The Association Between Physical Distancing Behaviors to Avoid COVID-19 and Health-Related Quality of Life in Immunocompromised and Nonimmunocompromised Individuals: Patient-Informed Protocol for the Observational, Cross-Sectional EAGLE Study.. JMIR research protocols, 13, e52643.
- Measuring health related quality of life (HRQoL) in Lysosomal Storage Disorders (LSDs): a rapid scoping review of available tools and domains. Orphanet Journal of Rare Diseases, 19. View this article in WRRO
- Measuring health-related quality of life in amyotrophic lateral sclerosis. Neurology, 103(2). View this article in WRRO
- Development of a new health-related quality of life measure for people with diabetes who experience hypoglycaemia: the Hypo-RESOLVE QoL.. Diabetologia, 67(8), 1536-1551.
- Incorporating public and wider stakeholder views in the design of health state valuation studies in adults and young people: an undervalued resource?. Expert review of pharmacoeconomics & outcomes research, 24(5), 581-584.
- Understanding UK public views on normative decisions made to value health-related quality of life in children: a qualitative study. Social Science & Medicine, 340. View this article in WRRO
- Producing a preference-based quality of LIFE measure to quantify the impact of HYPOGLYCAEMIA on people living with diabetes: A mixed-methods research protocol.. Diabetic medicine : a journal of the British Diabetic Association, 40(3), e15007.
- Hypothetical versus experienced health state valuation: a qualitative study of adult general public views and preferences. Quality of Life Research, 32(4), 1187-1197.
- A comprehensive qualitative framework for health-related quality of life in Duchenne muscular dystrophy.. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 32(1), 225-236.
- Measuring quality of dying, death and end-of-life care for children and young people: A scoping review of available tools. Palliative Medicine, 36(8), 1186-1206.
- What Matters for Evaluating the Quality of Mental Healthcare? Identifying Important Aspects in Qualitative Focus Groups with Service Users and Frontline Mental Health Professionals.. Patient, 15(6), 669-678.
- Measuring carer quality of life in Duchenne muscular dystrophy: a systematic review of the reliability and validity of self-report instruments using COSMIN. Health and Quality of Life Outcomes, 20(1).
- Exploring the Issues of Valuing Child and Adolescent Health States Using a Mixed Sample of Adolescents and Adults.. Pharmacoeconomics, 40(5), 479-488.
- Valuing quality in mental healthcare: A discrete choice experiment eliciting preferences from mental healthcare service users, mental healthcare professionals and the general population.. Social science & medicine (1982), 301, 114885.
- Measuring What Matters: Little Evidence Supporting the Content Validity of EQ-5D in People with Duchenne Muscular Dystrophy and Their Caregivers. Medical Decision Making, 42(2), 139-140.
- Transforming challenges into opportunities: conducting health preference research during the COVID-19 pandemic and beyond. Quality of Life Research, 31(4), 1191-1198.
- Valuing child and adolescent health: a qualitative study on different perspectives and priorities taken by the adult general public. Health and Quality of Life Outcomes, 19(1).
- Development of a New Quality of Life Measure for Duchenne Muscular Dystrophy Using Mixed Methods: The DMD-QoL. Neurology, 96(19), E2438-E2450.
- Deriving a Preference-Based Measure for People With Duchenne Muscular Dystrophy From the DMD-QoL. Value in Health, 24(10), 1499-1510.
- Care Starts at Home: Emotional State and Appeals to Altruism may Reduce Demand for Overused Health Services in the UK. Annals of Behavioral Medicine, 55(4), 356-368.
- The role of response domain and scale label in the quantitative interpretation of patient-reported outcome measure response options. Quality of Life Research, 30(7), 2097-2108.
- Self-Disgust Is Associated With Loneliness, Mental Health Difficulties, and Eye-Gaze Avoidance in War Veterans With PTSD.. Front Psychol, 11, 559883.
- Measuring quality of life in Duchenne muscular dystrophy : a systematic review of the content and structural validity of commonly used instruments. Health and Quality of Life Outcomes, 18. View this article in WRRO
- Disgust propensity has a causal link to the stigmatization of people with cancer.. J Behav Med, 43(3), 377-390.
- Self-disgust mediates the relationship between childhood adversities and psychosis. British Journal of Clinical Psychology, 59(2), 260-275.
- Self-disgust, loneliness and mental health outcomes in older adults: An eye-tracking study. Journal of Affective Disorders, 266, 646-654.
- The internet and children's psychological wellbeing. Journal of Health Economics, 69.
- It’s not queasy being green: The role of disgust in willingness-to-pay for more sustainable product alternatives. Food Quality and Preference, 78, 103737.
- Fighting the flinch: Experimentally induced compassion makes a difference in health care providers. British Journal of Health Psychology, 24(4), 982-998.
- Impulsive and Self-Regulatory Processes in Risky Driving Among Young People: A Dual Process Model.. Front Psychol, 10, 1170.
- Producing a preference-based quality of life measure for people with Duchenne muscular dystrophy: a mixed-methods study protocol. BMJ Open, 9(3), e023685-e023685.
- The roles of impulsivity, self-regulation, and emotion regulation in the experience of self-disgust. Motivation and Emotion, 43(1), 145-158.
- Equal access for equal need: Eliciting public preferences for access to health treatment by employment status. Social Science & Medicine, 222, 246-255. View this article in WRRO
- Self-disgust as a potential mechanism explaining the association between loneliness and depression. Journal of Affective Disorders, 243, 108-115. View this article in WRRO
- Prosthesis use is associated with reduced physical self-disgust in limb amputees. Body Image, 27, 109-117. View this article in WRRO
- Heart versus head: differential bodily feedback causally alters economic decision-making. Quarterly Journal of Experimental Psychology, 71(9), 1949-1959. View this article in WRRO
- Individual differences in emotion regulation moderate the associations between empathy and affective distress. Motivation and Emotion, 42(4), 602-613.
- The effects of exposure to images of others' suffering and vulnerability on altruistic, trust-based, and reciprocated economic decision-making. PLoS ONE, 13(3). View this article in WRRO
- Effect of Partners' Disgust Responses on Psychological Wellbeing in Cancer Patients. Journal of Clinical Psychology in Medical Settings, 24(3-4), 355-364.
- Situational determinants of cognitive, affective, and compassionate empathy in naturalistic digital interactions. Computers in Human Behavior, 68, 137-148. View this article in WRRO
- Differential disgust responding in people with cancer and implications for psychological wellbeing. Psychology and Health, 32(1), 19-37.
- The effect of disgust-related side-effects on symptoms of depression and anxiety in people treated for cancer: a moderated mediation model. Journal of Behavioral Medicine, 39(4), 560-573. View this article in WRRO
- Self-affirming trait kindness regulates disgust toward one's physical appearance. Body Image, 12, 98-107.
- The Revolting Self: An Interpretative Phenomenological Analysis of the Experience of Self‐Disgust in Females With Depressive Symptoms. Journal of Clinical Psychology, 70(6), 562-578.
- When disgust leads to dysphoria: A three-wave longitudinal study assessing the temporal relationship between self-disgust and depressive symptoms. Cognition & Emotion, 27(5), 900-913.
- ‘How low can you go?’ Developers’ perspectives on involving young children in the development of patient reported outcome measures. Journal of Patient-Reported Outcomes, 9(1).
Book chapters
- Researching the Revolting: An Introduction to the Handbook, The Handbook of Disgust Research (pp. 3-10). Springer International Publishing
- Disgust and Consumer Behaviour, The Handbook of Disgust Research (pp. 259-279). Springer International Publishing
- An Afterword on Future Directions in Disgust Research: A Global Pandemic, a Divided World, and an Environmental Catastrophe, The Handbook of Disgust Research (pp. 283-290). Springer International Publishing
- An introduction to the revolting self: self-disgust as an emotion schema, The Revolting Self (pp. 1-24). Routledge
- Depression as a disorder of disgust, The Revolting Self (pp. 151-165). Routledge
- Reflections on the revolting self: a commentary and further directions, The Revolting Self (pp. 243-255). Routledge
Conference proceedings
- Who Should Value Health-Related Quality of Life in Children? Results from a Dual Country Survey. QUALITY OF LIFE RESEARCH, Vol. 33 (pp S45-S45)
- Quantifying the impact of symptoms on health-related quality of life in idiopathic multicentric Castleman disease: Protocol for a novel outcome measure. QUALITY OF LIFE RESEARCH, Vol. 33 (pp S174-S175)
- Fostering collaborative engagement when valuing healthrelated quality of life. QUALITY OF LIFE RESEARCH, Vol. 33 (pp S216-S216)
- Eliciting preferences of people living with diabetes using the Hypo-RESOLVE-QoL-8D to determine the impact of hypoglycaemia to inform economic evaluation. QUALITY OF LIFE RESEARCH, Vol. 33 (pp S95-S95)
- Developing Methods of Cognitive Interviewing for Measures of Health-related Quality of Life for Young Children: A 'Solution-Focussed' Approach. QUALITY OF LIFE RESEARCH, Vol. 33 (pp S139-S140)
- Developing a novel outcome measure to assess the impact of amyotrophic lateral sclerosis (ALS) on health-related quality of life (HRQoL): A study protocol. QUALITY OF LIFE RESEARCH, Vol. 33 (pp S111-S111)
- Changes are needed to adequately assess health-related quality of life (HRQoL) in informal carers of children with rare progressive life-limiting conditions: key learnings from a collaborative workshop. QUALITY OF LIFE RESEARCH, Vol. 33 (pp S23-S23)
- Can Young Children Participate Meaningfully in Cognitive Interviews of Health-related Quality of Life Measures? An Exploration of Feasibility and a Novel Analytic Approach. QUALITY OF LIFE RESEARCH, Vol. 33 (pp S46-S46)
- IDENTIFYING BEHAVIORS PRACTICED BY INDIVIDUALS TO AVOID COVID-19: DEVELOPMENT OF THE CONTENT OF THE PHYSICAL DISTANCING SCALE - COVID-19 (PDSC19). VALUE IN HEALTH, Vol. 26(12) (pp S482-S482)
- CROSS-SECTIONAL MEASUREMENT PROPERTIES OF THE PHYSICAL DISTANCING SCALE - COVID-19 (PDS-C19) SELF- AND OBSERVER-REPORTED MEASURE OF PHYSICAL DISTANCING BEHAVIORS TO AVOID COVID-19 IN ADULTS, CHILDREN, AND CAREGIVERS. VALUE IN HEALTH, Vol. 26(12) (pp S471-S471)
- The Hypo-RESOLVE QoL: a new patient reported outcome (PRO) to quantify the impact of hypoglycaemia on health-related quality of life. DIABETOLOGIA, Vol. 66(SUPPL 1) (pp S427-S427)
- The Hypo-RESOLVE quality of life (QoL) instrument: A study protocol for the development of a new preference-based measure designed to capture the impact of hypoglycaemia on QoL. Quality of Life Research, Vol. 31(Suppl 2) (pp S91-S91). Prague, Czech Republic, 19 October 2022 - 19 October 2022. View this article in WRRO
- Valuing health-related quality of life in children and adolescents: Who should we ask and how? A study protocol for consulting the public and experts in health valuation. QUALITY OF LIFE RESEARCH, Vol. 31 (pp S146-S146)
- Measuring quality of dying, death and end-of-life care for children and young people: a scoping review of available tools. QUALITY OF LIFE RESEARCH, Vol. 31 (pp S27-S27)
- Exploring the face and content validity of a new patient-reported outcome measure of the impact of hypoglycaemia on quality of life: Results of the Hypo-RESOLVE QoL cognitive interview study. QUALITY OF LIFE RESEARCH, Vol. 31 (pp S59-S59)
- The use of collaborative patient engagement in the development of a PROM to assess the impact of hypoglycaemia on quality of life as part of the Hypo-RESOLVE project: Patient and researcher perspectives. QUALITY OF LIFE RESEARCH, Vol. 30(SUPPL 1) (pp S29-S29)
- Measuring carer quality of life in Duchenne muscular dystrophy: A systematic review of the reliability and validity of self-report instruments using COSMIN. QUALITY OF LIFE RESEARCH, Vol. 30(SUPPL 1) (pp S111-S112)
- "I just literally want, like, one day where it's like, I'm not having to worry about anything": The impact of hypoglycaemia on quality of life in people living with diabetes (a Hypo-RESOLVE study). QUALITY OF LIFE RESEARCH, Vol. 30(SUPPL 1) (pp S35-S36)
- "Social interaction (...) without that then I would probably be miserable'': Understanding quality of life in Duchenne muscular dystrophy. Quality of Life Research, Vol. 28 (pp S109-S109)
- The role of context and label in participants' quantitative interpretation of common quality of life PROM response options. Quality of Life Research, Vol. 28 (pp S136-S137)
- Showing mutual support through digital empathy badges. Proceedings of the 2015 ACM International Joint Conference on Pervasive and Ubiquitous Computing and Proceedings of the 2015 ACM International Symposium on Wearable Computers - UbiComp '15 (pp 1-4), 7 September 2015 - 11 September 2015.
- Supporting Empathy Through Embodiment in the Design of Interactive Systems. Proceedings of the Ninth International Conference on Tangible, Embedded, and Embodied Interaction (pp 523-528)
- Designing for empathy in a church community. Proceedings of the 18th International Academic MindTrek Conference: Media Business, Management, Content & Services (pp 249-251)
- Designing interactive systems to encourage empathy between users. Proceedings of the 2014 companion publication on Designing interactive systems (pp 13-16)
Reports
- Valuing child health: Exploring the use of a mixed sample of adolescents and adults to value child and adolescent health states
Working papers
- Patient reported outcome measures of quality of life in Duchenne muscular dystrophy (DMD): a systematic review of content and structural validity using COSMIN. HEDS Discussion Paper Series. View this article in WRRO
- Social Media Use and Children’s Wellbeing. Sheffield Economics Research Papers (SERPS), 201601. View this article in WRRO
Datasets
- Psychometric data for 'A new quality of life questionnaire for use in Duchenne muscular dystrophy: the DMD-QoL'.
- Supplementary files for 'A new quality of life questionnaire for use in Duchenne muscular dystrophy: the DMD-QoL'.
Preprints
- The Association Between Physical Distancing Behaviors to Avoid COVID-19 and Health-Related Quality of Life in Immunocompromised and Nonimmunocompromised Individuals: Patient-Informed Protocol for the Observational, Cross-Sectional EAGLE Study (Preprint), JMIR Publications Inc..
- Social Media Use and Children's Wellbeing.
- Development of a new health-related quality of life measure for people with diabetes who experience hypoglycaemia: the Hypo-RESOLVE QoL.. Diabetologia, 67(8), 1536-1551.