Life and Bladder Cancer (LABC)
Life and Bladder Cancer: The Yorkshire Cancer Research Bladder Cancer Patient Reported Outcomes (PROMs) Survey.
The Life and Bladder Cancer (LABC) study is now closed.
Funded by Yorkshire Cancer Research, the Life and Bladder Cancer (LABC) survey is a project hoping to improve the quality of life of people with bladder cancer.
The study is run by a research team based at the Universities of Sheffield and Leeds. It involves people who have been diagnosed with bladder cancer in the Yorkshire, North Derbyshire, Humber and South Tees region. Nearly 2,000 people are diagnosed in this region each year.
We want to know what it is like to live with and after bladder cancer so we can help future people with this disease. We know quite a bit about what treatments people have and how they respond to them but, we know less about the impact of these treatments on life at home and work, relationships and emotions.
To find out more, we asked people to complete some questionnaires. This information will help us understand what areas of care patients need and how we can improve their care. The findings of the study will be used to evaluate hospital services and to help guide future changes.
To get a picture of quality of life for people living with or after bladder cancer, the LABC study had two different surveys for different groups of people:
We will find out what life is like for patients just after their diagnosis and over the next year. We asked them to complete 4 questionnaires over 12 months and will look at how thing changed over this year.
The survey was sent out between March 2019 and March 2020.
This was a single questionnaire for people diagnosed with bladder cancer in the last 10 years. We want to find out more about the long-term quality of life of people who have been diagnosed with and treated for bladder cancer. To find out more about this survey and how it was possible to opt out, click here:
The survey was sent out between November 2018 and June 2019.
These questionnaires will help us understand what matters most to patients and how we can improve their care. All opinions are important. We wanted to hear from you whatever your age, if you are male or female, whatever type of bladder cancer and treatment you had, whether you have symptoms or not, and regardless of other medical conditions. We wanted to hear from you whether you found your care to be excellent, average or poor.
The LABC study has ethical approval and we identified 15 NHS hospital sites within the Yorkshire, North Derbyshire, Humber and South Tees region.
There is a summary of the study on the Cancer Research UK trials database.
Research Team Members
- Sarah Bottomley, University of Sheffield
- Dr Amy Downing, University of Leeds
- Dr Kate Absolom, University of Leeds
- Dr Ibrahim Jubber, University of Sheffield
- Ms Zoe Rogers, University of Leeds
- Dr Luke Hounsome, National Cancer Registration & Analysis Service, Public Health England
- Dr Victoria Coupland, National Cancer Registration & Analysis Service, Public Health England
- Professor Julia Verne, Knowledge & Intelligence, Public Health England
Former Research Team Members
- Samantha Mason, University of Leeds
- Dr Penny Wright, University of Leeds
- Fight Bladder Cancer
- Action Bladder Cancer UK
- British Association of Urological Nurses (BAUN)
- British Uro-oncology Group (BUG)
- The British Association of Urological Surgeons (BAUS)
- NCRI Bladder and Renal Clinical Studies Group
- Samantha J.Mason, Amy Downing, Penny Wright , Luke Hounsome, Sarah E Bottomley, Jessica Corner, Mike Richards, James W.Catto and Adam W Glaser, Health-related quality of life after treatment for bladder cancer in England. British Journal of Cancer, 2018 https://www.nature.com/articles/s41416-018-0084-z
- Samantha J.Mason, James W.F.Catto, Amy Downing, Sarah E Bottomley, Adam W Glaser, Penny Wright, Evaluating patient‐reported outcome measures (PROMs) for bladder cancer: a systematic review using the COnsensus‐based Standards for the selection of health Measurement Instruments (COSMIN) BJUI International, 2018 https://bjui-journals.onlinelibrary.wiley.com/doi/10.1111/bju.14368
- Life and Bladder Cancer: Protocol for a longitudinal and cross-sectional Patient Reported Outcomes study of Yorkshire (UK) patients, BMJ Open, 2019 https://bmjopen.bmj.com/content/9/6/e030850
- Catto JWF et al. Quality of Life After Bladder Cancer: A Cross-sectional Survey of Patient-reported Outcomes. Eur Urol. 2021 In Press (IF 18.7)
- Fight Bladder Cancer Article- The Life After Bladder Cancer Project, Fight Magazine, 2nd edition, p12-13
For general enquiries or more information, please contact the LABC Study team.
Tel: 0114 215 9039
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