Dr Jill Carlton

BMedSci (Sheffield), MMedSci (Sheffield), PhD (Sheffield)

School of Health and Related Research

Research Fellow

j.carlton@sheffield.ac.uk
+44 114 222 0799

Full contact details

Dr Jill Carlton
School of Health and Related Research
Regent Court (ScHARR)
30 Regent Street
Sheffield
S1 4DA
Profile

I trained as an orthoptist at University of Sheffield, and have worked in both Leicester and Sheffield. My experiences as a health care professional led to an interest in evidence-based medicine and a secondment to a research study based at ScHARR investigating the impact of age-related macular degeneration upon quality of life. I joined ScHARR as a research associate in 2005.

Research interests

My research interests are health-related quality of life and patient outcome measures. In 2006 I was awarded a fellowship (Researcher Development Award) through the National Co-ordinating Centre for Research Capacity Development, NCCRCD).

My PhD involved designing a paediatric disease-specific health related quality of life measure for amblyopia. The Child Amblyopia Treatment Questionnaire (CAT-QoL) is a short questionnaire that was designed for children aged 4-7 years to measure the impact of amblyopia treatment from the child’s perspective.

Current projects

I am currently working on a number of projects that use patient-reported outcome measures and health-related quality of life.

These include:

  • the development of a recovery instrument for use in mental health (ReQoL: Recovery of Quality of Life); and
  • evaluating the importance of self-management in diabetes (ESMiD).
  • EUS€REEN Project: Partner working on a proposal to develop equitable cost-effective vision screening throughout Europe
Publications

Show: Featured publications All publications

Journal articles

All publications

Journal articles

Chapters

Conference proceedings papers

  • Crossley E, Chandler F, Godfrey J, Fischer R, Furlong P, Abrams K, Carlton J, Mumby-Croft J, O'Hara J & Powell PA (2020) PB4 PROJECT HERCULES: A PATIENT LED PARADIGM IN EVIDENCE GENERATION FOR HTA IN DUCHENNE MUSCULAR DYSTROPHY. Value in Health, Vol. 23 (pp S13-S13) RIS download Bibtex download
  • Crossley E, Chandler F, Godfrey J, Fischer R, Furlong P, Abrams K, Carlton J, Mumby-Croft J, O'Hara J & Powell PA (2020) PROJECT HERCULES: A PATIENT LED PARADIGM IN EVIDENCE GENERATION FOR HTA IN DUCHENNE MUSCULAR DYSTROPHY. VALUE IN HEALTH, Vol. 23 (pp S13-S13) RIS download Bibtex download
  • Crossley E, Chandler F, Godfrey J, Abrams K, Hill M, Mumby-Croft J, Carlton J, Powell PA, O'Hara J, Woodcock F & Rose A (2019) PND21 PROJECT HERCULES: A NEW PARADIGM FOR PATIENT-CENTRED COLLABORATION IN HTA. Value in Health, Vol. 22 (pp S740-S740) RIS download Bibtex download
  • Powell PA, Carlton J, Rowen D, Brazier JE, Chandler F & Godfrey J (2019) PRO130 PROJECT HERCULES: CONSTRUCTION OF A NEW PREFERENCE-BASED MEASURE OF QUALITY OF LIFE FOR DUCHENNE MUSCULAR DYSTROPHY (DMD). Value in Health, Vol. 22 (pp S865-S865) RIS download Bibtex download
  • Powell P & Carlton J (2019) "Social interaction (...) without that then I would probably be miserable'': Understanding quality of life in Duchenne muscular dystrophy. QUALITY OF LIFE RESEARCH, Vol. 28 (pp S109-S109) RIS download Bibtex download
  • Carlton J, Peasgood T, Khan S, Barber R, Bostock J & Keetharuth AD (2019) Optimising patient and public involvement in Patient Reported Outcome Measure (PROM) development. QUALITY OF LIFE RESEARCH, Vol. 28 (pp S38-S39) RIS download Bibtex download
  • Abrams K, Carlton J, Chandler F, Crossley E, Crowther M, Ghosh S, Godfrey J, Guglieri M, Hill M, Johnson A , Mumby-Croft J et al (2019) EP.41Project HERCULES: could international collaboration on value assessment change clinical practice?. Neuromuscular Disorders, Vol. 29 (pp S112-S113) RIS download Bibtex download
  • Blome C, Carlton J, Heesen C, Janssen MF, Lloyd A, Otten M, Sommer R & Brazier J (2019) How to capture fluctuating health impairments in people with multiple sclerosis: development of an intensive longitudinal assessment of the EQ-5D-5L. QUALITY OF LIFE RESEARCH, Vol. 28 (pp S164-S164) RIS download Bibtex download
  • Simonsz HJ, Carlton J, Griffith H, Uhlen I, Vladutiu C, Ghititu M, Qirjazi B, Roshi E, Horwood A, Fronius M , Hoeve H et al (2019) EUSCREEN study, stage 1 : data collection on vision and hearing screening programs in 40 European countries and Turkey, Israel, Russia, Malawi, Ruanda, Suth-Africa and India. Investigative Ophthalmology & Visual Science, Vol. 60(9). Vancouver, Canada, 28 April 2019 - 2 May 2019. View this article in WRRO RIS download Bibtex download
  • Powell PA, Carlton J, Rowen D & Brazier JE (2018) PSY215 - MEASURING QUALITY OF LIFE FOR ECONOMIC EVALUATION IN DUCHENNE MUSCULAR DYSTROPHY (DMD) FROM CHILDHOOD TO ADULTHOOD: PROTOCOL FOR A NEW PREFERENCE-BASED MEASURE. Value in Health, Vol. 21 (pp S473-S473) RIS download Bibtex download
  • Carlton J, Rowen D & Elliott J (2018) The new health and self-management in diabetes (HASMID-10) measure: assessing psychometric performance in a large longitudinal survey. QUALITY OF LIFE RESEARCH, Vol. 27 (pp S39-S39) RIS download Bibtex download
  • Powell P, Carlton J, Rowen D, Uttley L, Buckley-Woods H & Brazier J (2018) Quality of life in Duchenne muscular dystrophy (DMD): initial findings and protocol for a new preference-based measure. QUALITY OF LIFE RESEARCH, Vol. 27 (pp S170-S170) RIS download Bibtex download
  • Connell J, Carlton J, Peasgood T, Mukuria C, Brazier J, Augustovski F, Belizan M, Engel L, Greiner W, Hanna L , Ludwig K et al (2018) Extending the QALY: developing and testing the proposed items for a new generic measure - results from qualitative review and face validity with patients, social care users and carers. QUALITY OF LIFE RESEARCH, Vol. 27 (pp S189-S189) RIS download Bibtex download
  • Mukuria C, Connell J, Carlton J, Peasgood T, Brazier J, Scope A, Clowes M & Jones K (2018) Developing Content for a New Generic Qaly Measure: Results from a Qualitative Literature Review (E-Qaly Project). Value in Health, Vol. 21 (pp S110-S110) RIS download Bibtex download
  • Connell J, Carlton J, Grundy A, Taylor Buck E, Keetharuth AD, Ricketts T, Barkham M, Robotham D, Rose D & Brazier J (2018) The importance of content and face validity in instrument development: lessons learnt from service users when developing the Recovering Quality of Life measure (ReQoL). Quality of Life Research (pp 1-10) View this article in WRRO RIS download Bibtex download
  • Simonsz H, Carlton J, Griffith H, Horwood A, Uhlen I, Fronius M, Qirjazi B, Rajka D, Vladutiu C, Hoeve H , Heijnsdijk E et al (2018) Cost-effectiveness comparison of childhood vision and hearing screening programmes throughout Europe (EUSCREEN Study). ACTA OPHTHALMOLOGICA, Vol. 96 (pp 12-12) RIS download Bibtex download
  • Grundy A, Keetharuth A & Carlton J (2017) A critical assessment of service user involvement in designing the ReQoL PROM. QUALITY OF LIFE RESEARCH, Vol. 26(1) (pp 120-121) RIS download Bibtex download
  • Carlton J, Rowen D & Elliott J (2017) The importance of validation and refinement in PROM development: using the HASMID questionnaire, a measure of self-management in diabetes. QUALITY OF LIFE RESEARCH, Vol. 26(1) (pp 124-124) RIS download Bibtex download
  • Velikova G, Valderas JM, Potter C, Batchelder L, A’Court C, Baker M, Bostock J, Coulter A, Fitzpatrick R, Forder J , Fox D et al (2017) Proceedings of Patient Reported Outcome Measure’s (PROMs) Conference Oxford 2017: Advances in Patient Reported Outcomes Research. Health and Quality of Life Outcomes, Vol. 15(S1) View this article in WRRO RIS download Bibtex download
  • Elliott J, Carlton J, Rowen D & Brazier J (2017) Changing HbA(1c) units: a hindarance, not a help to patients. DIABETOLOGIA, Vol. 60 (pp S342-S342) RIS download Bibtex download
  • Simonsz HJ, Sloot F, Sami A, Vladutiu C, Qirjazi B, Carlton J, Uhlen I, Horwood AM, Fronius M, de Koning H , Hoeve H et al (2017) Start of EUSCREEN Study that compares cost-effectiveness of childhood vision and hearing screening programmes in all European countries and implements these in Romania and Albania. INVESTIGATIVE OPHTHALMOLOGY & VISUAL SCIENCE, Vol. 58(8) (pp 2361-2361), 7 May 2017 - 11 May 2017. View this article in WRRO RIS download Bibtex download
  • Croudace T, Brazier J, Gutacker N, Street A, Robotham D, Waterman S, Rose D, Satkunanathan S, Wykes T, Nasr N , Enderby P et al (2016) Proceedings of Patient Reported Outcome Measure’s (PROMs) Conference Sheffield 2016: advances in patient reported outcomes research. Health and Quality of Life Outcomes, Vol. 14(Suppl 1), 9 June 2016 - 9 June 2016. View this article in WRRO RIS download Bibtex download
  • Carlton J, Rowen D, Elliott J, Brazier J, Stevens K, Basarir H & Labeit A (2016) Developing a PROM to evaluate self-management in diabetes (HASMID): giving patients a voice. HEALTH AND QUALITY OF LIFE OUTCOMES, Vol. 14 View this article in WRRO RIS download Bibtex download
  • Brazier JE, Keetharuth A, Connell J, Carlton J, Buck ET, Ricketts T & Barkham M (2016) First validation of the short recovering quality of life (ReQoL) measure. QUALITY OF LIFE RESEARCH, Vol. 25 (pp 96-96) RIS download Bibtex download
  • Keetharuth A, Brazier JE, Connell J, Carlton J, Ricketts T, Buck ET, Barkham M, Bjorner JB, Croudace T & Browne J (2016) Constructing the short recovering quality of life (ReQoL) measure for use in a mental health population: combining psychometric and qualitative evidence. QUALITY OF LIFE RESEARCH, Vol. 25 (pp 70-70) RIS download Bibtex download
  • Rowen D, Labeit A, Brazier JE, Stevens K, Elliott J, Mulhern B, Carlton J, Basarir H & Meadows K (2016) Valuing the impact of self-management on quality of life in diabetes using discrete choice experiments. QUALITY OF LIFE RESEARCH, Vol. 25 (pp 134-134) RIS download Bibtex download
  • Connell J, Brazier JE, Carlton J, Buck ET, Grundy A, Keetharuth A, Ricketts T & Barkham M (2016) Developing the recovery of quality of life measure (ReQoL): the views of mental health service users on potential items. QUALITY OF LIFE RESEARCH, Vol. 25 (pp 46-47) RIS download Bibtex download
  • Brazier J, Keetharuth A, Connell J, Barkham M, Carlton J, Ricketts T & Taylor-Buck L (2016) Constructing Classification System For A New Qaly Measure In Mental Health: Recovering Quality Of Life (Reqol). Value in Health, Vol. 19(3) (pp A190-A190) View this article in WRRO RIS download Bibtex download
  • Carlton J () Cost-effectiveness of screening programmes for amblyopia. World Ophthalmological Congress 2010. Berlin, Germany, 5 June 2010 - 9 June 2010. RIS download Bibtex download
  • Carlton J () Impact of amblyopia on quality of life. World Ophthalmological Congress 2010. Berlin, Germany, 5 June 2010 - 9 June 2010. RIS download Bibtex download
  • Brazier J, Poku E & Carlton J () Does vision matter: a systematic review of the relationship between visual acuity and utilities.. Royal Collage of Ophthalmologists Annual Congress. Liverpool, UK, 25 May 2010 - 27 May 2010. RIS download Bibtex download
  • Carlton J () Challenges encountered in developing PROMs: The experience so far in the creation of a PROM for amblyopia in the paediatric population. Part of Symposium: Going to the PROM? Are patient reported outcome measures (PROMs) a useful tool to measure the impact of nursing interventions?. International Nursing Research Conference. Newcastle, UK, 11 May 2010 - 13 May 2010. RIS download Bibtex download
  • Carlton J () Development of a paediatric disease-specific measure of health related quality of life in amblyopia. British Isles Paediatric Ophthalmology and Strabismus Association (BIPOSA). Glasgow, UK, 23 September 2009 - 25 September 2009. RIS download Bibtex download
  • Carlton J () Quality of life issues in amblyopia.. Rotterdam Amblyopia Meeting. University Medical Centre, Rotterdam, Netherlands, 12 February 2009. RIS download Bibtex download
  • Czoski-Murray C, Carlton C, Young T, Brazier J, Papo N & Kwon Kang H () Health state valuation for ARMD visual impairment states using simulation lenses. 6th iHEA World Congress on Health Economics. Copenhagen, Denmark, July 2007. RIS download Bibtex download
  • Brazier J, Bansback N, Espallargues M, Czoski-Murray C & Phippen G () Are generic preference-based measures truly generic? The case of visual impairment.. 5th iHEA World Congress on Health Economics. Barcelona, Spain, July 2005. RIS download Bibtex download
  • Brazier J, Bansback N, Espallargues M, Czoski-Murray C, Phippen G & Carlton J () The relationship between impairment and generic preference based measures, patient valuations and patient life satisfaction in Age Related Macular Degeneration.. European Conference on Health Economics. London School of Economics, London, 2005. RIS download Bibtex download
  • Carlton J, Phippen G, Hughes L, Czoski-Murray C, Bansback N, Espallargues M, Brand C & Brazier J () A survey of quality of life in patients with age related macular degeneration. Transactions of Xth International Orthoptic Congress. Melbourne, Australia, 14 November 2004 - 17 November 2004. RIS download Bibtex download
  • Carlton J () Lateral gaze incomitance in distance exotropia: should the neutralising prism be placed over the abducting or adducting eye?. British Isles Strabismological Association (BISA). York, UK, 7 October 2004. RIS download Bibtex download
  • Espallargues M, Brazier J, Czoski-Murray C, Bansback N, Phippen G & Carlton J () Health status measurement in Age-Related Macular Disease: new evidence for clinic and economic evaluation. Health Technology Assessment International (HTAi). Krakow, Poland, 30 May 2004 - 2 June 2004. RIS download Bibtex download

Reports

Website content

Posters

  • Carlton J & Kaltenthaler E (2010) Health Related Quality of Life Measures (HRQoL) in Orthoptics. British and Irish Orthoptic Society Scientific Conference, Oxford UK. RIS download Bibtex download
  • Czoski-Murray C, Carlton J, Brazier J, Young T, Kwon Kang H & Papo N (2007) Visual impairment states: valuation using simulation lenses. International Society for Quality of Life Research, Toronto, Canada. RIS download Bibtex download
  • Brazier J, Keetharuth A, Connell J, Carlton J, Ricketts T, Buck ET & Barkham M First validation of the Recovering Quality of Life measures: a new PROM for use in mental health. RIS download Bibtex download
  • Brazier J, Keetharuth A, Connell J, Carlton J, Buck ET, Ricketts T & Barkham M Constructing a classification system for a new QALY measure in mental health: recovering quality of life (ReQoL). RIS download Bibtex download

Working papers

  • Powell P, Carlton J, Woods H & Mazzone P (2019) Patient reported outcome measures of quality of life in Duchenne muscular dystrophy (DMD): a systematic review of content and structural validity using COSMIN. HEDS Discussion Paper Series. View this article in WRRO RIS download Bibtex download

Other

Research group

Collaborators

  • Dr Helen Griffiths, Senior Lecturer in Orthoptics, University of Sheffield - EUS€REEN Project
  • Professor Huibert Simonsz, Paediatric Ophthalmologist, Rotterdam, Netherlands - EUS€REEN Project
Teaching interests

My teaching interests lie in health services research, in particular ethical issues involved in health services research. I teach on three masters programmes:

  • MSc Health Economics and Decision Modelling (HAR669 module: Health Research Methods)
  • MSc Economics and Health Economics (HAR6240 module: Research Methods in Health). I am joint Module Coordinator for HAR6240.
  • MSc International Health Technology Assessment, Pricing and Reimbursement (HAR6118: Utility and Patient-reported Outcomes Data in Health Technology Assessment)
Professional activities
  • ScHARR Fellowships and Studentships Officer
  • Member of ScHARR Postgraduate Research Committee
  • Member of ScHARR Research Committee
  • Member of HEDS Research Functional Working Group
  • Member of HEDS Communications and Impact Functional Working Group
  • Member of HEDS Newsletter Development Group
  • Fellowships advisor for NIHR Yorkshire and Humber RDS
  • Member of the Editorial Board of the British & Irish Orthoptic Journal
  • Member of the British and Irish Orthoptic Society
  • Member of the British and Irish Orthoptic Society Vision Screening Special Interest Group
  • Member of the British Isles Paediatric Ophthalmology & Strabismus Association