Dr Bethany Taylor
FHEA
School of Allied Health Professions, Pharmacy, Nursing and Midwifery
Research Fellow
+44 114 222 2625
Full contact details
School of Allied Health Professions, Pharmacy, Nursing and Midwifery
Room 206A
362 Mushroom Lane
Sheffield
S10 2TS
- Profile
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Dr Bethany Taylor is a Research Fellow at the School of Allied Health Professionals, Pharmacy, Nursing & Midwifery. Bethany has nine years’ experience in patient and carer experience research, has published over 45 articles in peer reviewed journals and is an emerging research leader in mesothelioma and patient experience research.
She was awarded a PhD scholarship from the School of Nursing and Midwifery, University of Sheffield. She completed her PhD in 2018, under the supervision of Prof. Tony Ryan and Dr Jill Thompson.
In 2016, she started work as a Research Associate, contributing to a wide range of health services and patient experience research programmes, including work within the Royal College of Nursing strategic research alliance.
As Deputy Director of the Mesothelioma UK Research Centre at the University of Sheffield, Bethany supports the strategic development of research focused on improving outcomes and experiences for people affected by mesothelioma.
Her broader research portfolio spans public health, health inequalities, informal caregiving and palliative care. She has a particular interest in communication in healthcare settings and equitable access to services and treatments. Methodologically, her expertise lies in qualitative and mixed-methods research, including creative and participatory approaches that engage patients, carers and healthcare professionals. She has extensive experience working closely with health care professionals and community organisations.
- Research interests
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Bethany’s research focuses on understanding the experiences of patients, informal carers and healthcare professionals in order to improve lived experience, service provision and care delivery.
Key areas of interest include:
- Patient and family/carer experiences of living with serious and life-limiting illness, particularly mesothelioma and other rare cancers
- Communication in healthcare settings
- Health inequalities and equitable access to care and treatment
- Nested qualitative sub-studies within clinical trials.
Current projects
Mesothelioma UK Research Centre and ADDRI collaboration: A research prioritisation exercise for mesothelioma patient/ carer experiences in Australia. (Co-lead)
- Publications
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Books
- Understanding Mesothelioma. Routledge.
Journal articles
- Preventive cardiovascular surgery: ethics, shared decision-making and informed consent. JME Practical Bioethics, 2(1), e000051-e000051.
- Factors influencing the decision to accept or decline aortic valve replacement for asymptomatic aortic stenosis: a nested longitudinal qualitative substudy of the EASY-AS randomised trial.. BMJ Open, 16(1), e106485.
- 75 Improving Research Access for Mesothelioma Patients (IRAMP). Lung Cancer, 200, 108185-108185.
- Mesothelioma caused by asbestos in UK public buildings: an ongoing risk to public health. People, Place and Policy Online, 18(3), 164-173. View this article in WRRO
- Living with mesothelioma: a systematic review of mental health and well-being impacts and interventions for patients and their informal carers. BMJ Open, 14(6). View this article in WRRO
- Advanced nurse practitioner well-being: A 4- year cohort mixed methods study. Nursing Open, 11(7). View this article in WRRO
- Mental health and wellbeing in mesothelioma: a qualitative study exploring what helps the wellbeing of those living with this illness and their informal carers. European Journal of Oncology Nursing, 70. View this article in WRRO
- The mental health and well-being implications of a mesothelioma diagnosis: a mixed methods study. European Journal of Oncology Nursing, 70. View this article in WRRO
- ‘Moving on’ for adults with a learning disability and their families: a constructivist grounded theory study. Qualitative Health Research, 34(11), 1053-1068. View this article in WRRO
- Trainee nursing associates in England: A multisite qualitative study of higher education institution perspectives. International Nursing Review, 71(1), 130-139. View this article in WRRO
- Mesothelioma: exploring psychological effects on veterans and their family caregivers. Cancer Nursing Practice, 23(1). View this article in WRRO
- The psychological effects of mesothelioma in the UK military context from the carer’s perspective: a qualitative study. Illness, Crisis & Loss, 32(2), 171-191. View this article in WRRO
- Training and development experiences of nursing associate trainees based in primary care across England: a qualitative study.. Primary Health Care Research and Development, 24, 1-7. View this article in WRRO
- Moral distress in mesothelioma and lung cancer nurses during the COVID-19 pandemic: insights from a UK survey. Lung Cancer, 178, S25-S25.
- Mesothelioma patient and carer experience research: A research prioritisation exercise. European Journal of Oncology Nursing, 63. View this article in WRRO
- Primary care trainee nursing associates in England: a qualitative study of higher education institution perspectives. Primary Health Care Research & Development, 24. View this article in WRRO
- Palliative care roles and responsibilities of mesothelioma clinical nurse specialists in the UK. Progress in Palliative Care, 31(2), 73-79. View this article in WRRO
- Being warm being happy: understanding factors influencing adults with learning disabilities being warm and well at home with inclusive research. People, Place and Policy Online, 16(2), 193-215. View this article in WRRO
- Impact of Covid-19 on lung cancer and mesothelioma specialist nurses: a survey of experiences and perceptions. European Journal of Oncology Nursing, 61. View this article in WRRO
- Employment and family caregiving in palliative care : an international qualitative study. Palliative Medicine, 36(6), 986-993. View this article in WRRO
- A tale of two bridges: factors influencing career choices of trainee nursing associates in England: a longitudinal qualitative study. Nursing Open, 9(5), 2486-2494. View this article in WRRO
- Clinical nurse specialist role in providing generalist and specialist palliative care : a qualitative study of mesothelioma clinical nurse specialists. Journal of Advanced Nursing, 78(9), 2973-2982. View this article in WRRO
- Development of the nursing associate role in community and primary care settings across England. Primary Health Care, 32(6). View this article in WRRO
- Patients’ and informal carers’ experience of living with mesothelioma: A systematic rapid review and synthesis of the literature. European Journal of Oncology Nursing, 58. View this article in WRRO
- A local stakeholder perspective on nursing associate training. British Journal of Healthcare Assistants, 16(3), 126-133. View this article in WRRO
- Consequences of understaffing on type of missed community care - a cross-sectional study. International Journal of Nursing Studies Advances, 4. View this article in WRRO
- The psychological effects of mesothelioma in the UK military context from the carer’s perspective: recommendations for practice. Lung Cancer, 165, S26-S27.
- 55 - Mesothelioma patient and carer experience: a study to identify research priorities. Lung Cancer, 165(Suppl 1), S25-S25. View this article in WRRO
- Intelligent effort: involving citizens in planning for quality in nursing. Nursing Open, 9(2), 860-861. View this article in WRRO
- Addressing current challenges in adult nursing: Describing a virtual consensus development project methodology. Nursing Open, 9(2), 900-907. View this article in WRRO
- The impact of COVID-19 on work, training and well-being experiences of nursing associates in England: A cross-sectional survey. Nursing Open, 9(3), 1822-1831. View this article in WRRO
- Missed care in community and primary care. Primary Health Care, 32(2). View this article in WRRO
- Gender and the experiences of living with mesothelioma: a thematic analysis. European Journal of Oncology Nursing, 52. View this article in WRRO
- Understanding the palliative care needs and experiences of people with mesothelioma and their family carers : an integrative systematic review. Palliative Medicine, 35(6), 1039-1051. View this article in WRRO
- Effects of the COVID-19 pandemic on people with mesothelioma and their carers. Cancer Nursing Practice, 20(2). View this article in WRRO
- UK advanced practice nurses’ experiences of the COVID-19 pandemic: a mixed-methods cross-sectional study. BMJ Open, 11. View this article in WRRO
- Factors that optimise the impact of continuing professional development in nursing: A rapid evidence review. Nurse Education Today, 98. View this article in WRRO
- Living with mesothelioma : a qualitative study of the experiences of male military veterans in the UK. European Journal of Oncology Nursing, 50. View this article in WRRO
- Promoting the health of children and young people who migrate : reflections from four regional reviews. Global Health Promotion, 27(4), 141-144. View this article in WRRO
- Determinants of nurse job dissatisfaction - findings from a cross-sectional survey analysis in the UK. BMC Nursing, 19.
- What are the psychological effects of mesothelioma on patients and their carers? A scoping review. Psycho-Oncology, 29(10), 1464-1473. View this article in WRRO
- Patient experiences of participation in a radical thoracic surgical trial : findings from the mesothelioma and radical surgery trial 2 (MARS 2). Trials, 20.
- Comparison of financial support for family caregivers of people at the end of life across six countries : a descriptive study. Palliative Medicine, 33(9), 1189-1211. View this article in WRRO
- Communication of a mesothelioma diagnosis : developing recommendations to improve the patient experience. BMJ Open Respiratory Research, 6(1). View this article in WRRO
- Development of the nursing associate professional identity: a longitudinal qualitative study. Nursing Open. View this article in WRRO
- The Experiences of Presentation, Diagnosis, Treatment and Care for School-Based Education Workers with Mesothelioma: A Scoping Review. International Journal of Nursing and Health Care Research, 5(8).
- Moral distress in advanced practice nurses during the COVID-19 pandemic. Nursing Standard. View this article in WRRO
Book chapters
- The road to diagnosis, Understanding Mesothelioma (pp. 33-44). Routledge
- Clinical trials, Understanding Mesothelioma (pp. 79-90). Routledge
- Conclusion, Understanding Mesothelioma (pp. 162-164). Routledge
Conference proceedings
- 113 Research-based co-created resource to improve understanding of Coronial/ Procurator Fiscal Investigations amongst families affected by mesothelioma. Lung Cancer, Vol. 212 (pp 109062-109062)
- 78 Preparing families of mesothelioma patients for a coronial investigation: recommendations for clinical practice. Lung Cancer, Vol. 200 (pp 108188-108188)
- 77 Understanding barriers and facilitators to receiving systemic anti-cancer treatment (SACT) for mesothelioma patients. Lung Cancer, Vol. 200 (pp 108187-108187)
- 69 New research-based resources to facilitate engagement with palliative care for patients and families living with mesothelioma. Lung Cancer, Vol. 190 (pp 107630-107630)
- 68 How do family members experience coroner or procurator fiscal involvement following a mesothelioma death?. Lung Cancer, Vol. 190 (pp 107629-107629)
- Research-based tools to encourage and facilitate engagement with palliative care for patients and families living with mesothelioma. LUNG CANCER, Vol. 178 (pp S23-S24)
- Understanding the role of Mesothelioma UK clinical nurse specialists in meeting the palliative care needs of patients and families: a mixed methods study. LUNG CANCER, Vol. 165 (pp S26-S26)
- Patient and informal carers experience of living with mesothelioma: a systematic rapid review and synthesis of the literature. Lung Cancer, Vol. 156(Supplement 1) (pp S31-S31). Virtual, 22 April 2021 - 22 April 2021. View this article in WRRO
- Impact of COVID-19 on mesothelioma clinical nurse specialists. Lung Cancer, Vol. 156 (Suppl_1) (pp S15-S16). Virtual conference, 22 April 2021 - 22 April 2021. View this article in WRRO
- P2.06-26 The military mesothelioma experience study (MiMES) : initial findings and implications for practice. Journal of Thoracic Oncology, Vol. 14(10) (pp S765-S765). Barcelona, Spain, 7 September 2019 - 7 September 2019. View this article in WRRO
- Being Warm Being Happy: fuel poverty and adults with intellectual disabilities. Journal of Intellectual Disability Research, Vol. 63(7) (pp 838-839). Glasgow, UK, 6 August 2019 - 6 August 2019. View this article in WRRO
- Receiving a diagnosis of MESOthelioma (RADIO Meso): Recommendations for practice to improve the patient experience. Journal of Thoracic Oncology, Vol. 13(10) (pp S935-S935). Toronto, Canada, 23 September 2018 - 23 September 2018. View this article in WRRO
- Patient experience of extended pleurectomy decortication (EPD) and chemotherapy in the MARS 2 feasibility trial: findings from a longitudinal qualitative sub-study. Lung Cancer, Vol. 115 (pp S82-S83). Dublin , 24 January 2018 - 24 January 2018. View this article in WRRO
- Receiving a diagnosis of mesothelioma: Improving the patient experience. Lung Cancer, Vol. 103(Supplement 1) (pp S74-S74). Dublin View this article in WRRO
- Understanding Mesothelioma. Routledge.
- Grants
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01/04/26 – 31/10/26. Mesothelioma UK Research Centre and ADDRI collaboration. Asbestos and dust diseases research institute / ADDRI (Co-lead)
01/03/25-01/10/25. Early surgery for aortic stenosis (nested qualitative study). NIHR. (Co-lead)
01/07/23-30/06/26 Mesothelioma UK Research Centre contract extension. Mesothelioma UK. (Co-I)
01/03/22-31/10/23 MINNOW study – Investigating the Mental health Implications of a mesothelioma diagNosis and developiNg resources to Optimise Wellbeing. Mesothelioma UK. (Co-I)
01/07/20- 30/06/23 Mesothelioma UK Research Centre. Mesothelioma UK. (Co-I).
1/12/17 - 31/05/20. Understanding the impact of mesothelioma for military personnel and veterans. Mesothelioma UK. (Co-I).
1/04/17 - 31/03/20. MesoTRAP feasibility study. NIHR RfPB (Co-I).
1/11/17 - 31/4/19. Being Warm: Being Happy. Understanding fuel poverty for people with learning difficulties. EAGA Charitable Trust. (Co-I and qualitative lead).
1/9/16 - 31/1/18. Receiving a Diagnosis Of Mesothelioma (RADIO MESO): improving the patient experience. Mesothelioma UK. (Co-I).
- Teaching interests
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Bethany's teaching interests include qualitative and mixed methods research, patient and public involvement and patient and/or carer experience.
She has been awarded Fellowship of the Higher Education Academy (FHEA).
Bethany currently supervises one PhD student:
- Caitlin Lusted: Experiences of scans and ‘scanxiety; amongst people with poor prognosis cancers.
Bethany welcomes enquiries from potential PhD students who would like to work on qualitative or mixed methods projects, related to her research interests and expertise.