Professor Clare Gardiner
Nursing and Midwifery, School of Allied Health Professions, Nursing and Midwifery
Professor of Palliative Care
+44 114 222 2038
Full contact details
Nursing and Midwifery, School of Allied Health Professions, Nursing and Midwifery
Barber House Annexe
3 Clarkehouse Road
Sheffield
S10 2HQ
- Profile
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I joined the University of Sheffield in 2015 as a Vice-Chancellor's Fellow, undertaking a Fellowship project on the costs of palliative care in the last six months of life. I previously worked as a Senior Lecturer at The University of Auckland, New Zealand, before which I was a Lecturer and Research Fellow at the University of Sheffield. I have been involved in palliative and end of life care research for over 10 years, and have published over 80 papers in peer review journals. I have been involved in a number of international research projects, totalling over £5 million of funding to date.
- Research interests
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My research interests are in palliative and end of life care, ageing and older people, and mesothelioma. I am particularly interested in research concerning economic aspects of palliative care, particularly the costs of family caregiving. I have further research interests in social isolation in the elderly, and interventions to reduce loneliness including befriending. I am Co-Director of the Mesothelioma UK Research Centre which conducts research into patient experiences, service organisation and delivery in mesothelioma.
Current Projects:
Gardiner C & Tod A. Mesothelioma UK Research Centre, funder: Mesothelioma UK 2020-2023.
Gardiner C et al., Financial support for family caregivers This research project explored what financial support is available for family caregivers of people who have a terminal illness or are approaching the end of life.
Gardiner C. The cost of dying: a mixed methods study to explore the costs of palliative care. University of Sheffield Vice-Chancellor's Fellowship. 2015-2019
- Publications
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Journal articles
- Living with mesothelioma: a systematic review of mental health and well-being impacts and interventions for patients and their informal carers. BMJ Open, 14(6). View this article in WRRO
- Rethinking continuity in primary care for people with mesothelioma. British Journal of General Practice, 74(suppl 1), bjgp24X737373-bjgp24X737373.
- 70 Information needs of families/friends supporting people living with mesothelioma: findings from a UK survey. Lung Cancer, 190, 107631-107631.
- 69 New research-based resources to facilitate engagement with palliative care for patients and families living with mesothelioma. Lung Cancer, 190, 107630-107630.
- 68 How do family members experience coroner or procurator fiscal involvement following a mesothelioma death?. Lung Cancer, 190, 107629-107629.
- 67 The mental health and well-being implications of a mesothelioma diagnosis: a mixed methods study. Lung Cancer, 190, 107628-107628.
- 64 Variability in patient pathways and experiences of care in peritoneal mesothelioma. Lung Cancer, 190, 107625-107625.
- The mental health and well-being implications of a mesothelioma diagnosis: a mixed methods study. European Journal of Oncology Nursing, 70. View this article in WRRO
- A framework for more equitable, diverse, and inclusive Patient and Public Involvement for palliative care research. Research Involvement and Engagement, 10(1). View this article in WRRO
- The informal carer experience during the COVID-19 pandemic: mental health, loneliness, and financial (in)-security. Oxford Open Economics, 2, odad085.
- Mesothelioma palliative care needs: supporting patients and families with new research-based resources. British Journal of Community Nursing, 28(5), 248-252.
- Moral distress in mesothelioma and lung cancer nurses during the COVID-19 pandemic: insights from a UK survey. Lung Cancer, 178, S25-S25.
- Understanding the mental health and well-being impacts and interventions related to living with mesothelioma: a systematic review. Lung Cancer, 178, S24-S24.
- Mesothelioma patient and carer experience research: A research prioritisation exercise. European Journal of Oncology Nursing, 63, 102281-102281.
- Role and response of primary healthcare services in community end-of-life care during COVID-19: qualitative study and recommendations for primary palliative care delivery. Palliative Medicine. View this article in WRRO
- Impact of Covid-19 on lung cancer and Mesothelioma specialist nurses: A survey of experiences and perceptions. European Journal of Oncology Nursing, 102207-102207.
- Employment and family caregiving in palliative care : an international qualitative study. Palliative Medicine, 36(6), 986-993.
- Clinical nurse specialist role in providing generalist and specialist palliative care : a qualitative study of mesothelioma clinical nurse specialists. Journal of Advanced Nursing.
- Patient and public involvement (PPI) in mesothelioma research: experiences of the Mesothelioma UK Research Centre. Lung Cancer, 165, S26-S26.
- Mesothelioma patient and carer experience: a study to identify research priorities. Lung Cancer, 165, S25-S25.
- Existential suffering in the day to day lives of those living with palliative care needs arising from chronic obstructive pulmonary disease (COPD): a systematic integrative literature review. Palliative Medicine, 36(4), 567-580. View this article in WRRO
- Understanding the experiences of end of life care for patients with mesothelioma from the perspective of bereaved family caregivers in the UK: a qualitative analysis. Journal of Palliative Care, 37(2), 197-203.
- Role and support needs of nurses in delivering palliative and end of life care.. Nurs Stand.
- Community end-of-life care during COVID-19: Findings of a UK primary care survey.. BJGP Open.
- 77 Patient and informal carers experience of living with mesothelioma: a systematic rapid review and synthesis of the literature. Lung Cancer, 156, s31.
- 37 Impact of COVID-19 on mesothelioma clinical nurse specialists. Lung Cancer, 156, s15-s16.
- Changing the eligibility criteria for welfare payments at the end of life – a budget impact analysis for England and Wales. BMC Health Services Research, 21. View this article in WRRO
- Understanding the palliative care needs and experiences of people with mesothelioma and their family carers : an integrative systematic review. Palliative Medicine. View this article in WRRO
- Effects of the COVID-19 pandemic on people with mesothelioma and their carers. Cancer Nursing Practice, 20(2). View this article in WRRO
- The role and response of primary healthcare services in the delivery of palliative care in epidemics and pandemics : a rapid review to inform practice and service delivery during the COVID-19 pandemic. Palliative Medicine. View this article in WRRO
- Equity and the financial costs of informal caregiving in palliative care: a critical debate. BMC Palliative Care, 19(1). View this article in WRRO
- What is the prevalence of loneliness amongst older people living in residential and nursing care homes? A systematic review and meta-analysis. Age And Ageing. View this article in WRRO
- Barriers and facilitators to palliative care education in nursing and residential homes: a rapid review. International Journal of Palliative Nursing, 26(1), 32-44. View this article in WRRO
- Patient and carer involvement in palliative care research : an integrative qualitative evidence synthesis review. Palliative Medicine, 33(8), 969-984. View this article in WRRO
- Comparison of financial support for family caregivers of people at the end of life across six countries : a descriptive study. Palliative Medicine. View this article in WRRO
- A Life or “Good Death” Situation? A Worldwide Ecological Study of the National Contexts of Countries That Have and Have Not Implemented Palliative Care. Journal of Pain and Symptom Management, 57(4), 793-801. View this article in WRRO
- Reframing Global palliative care advocacy for the Sustainable Development Goal era: a qualitative study of the views of international palliative care experts. Journal of Pain and Symptom Management, 56(3), 363-370. View this article in WRRO
- What is the cost of palliative care in the UK? A systematic review. BMJ Supportive & Palliative Care, 8, 250-257. View this article in WRRO
- Interventions to reduce social isolation and loneliness among older people: an integrative review. Health & Social Care in the Community, 26(2), 147-157. View this article in WRRO
- The impact of the environment on patient experiences of hospital admissions in palliative care. BMJ Supportive & Palliative Care, 8(4), 485-492. View this article in WRRO
- What do we know about different models of providing palliative care? Findings from a systematic review of reviews. Palliative Medicine, 31(9), 781-797. View this article in WRRO
- Predictors of patient-related benefit, burden and feeling safe in relation to hospital admissions in palliative care: A cross-sectional survey.. Palliative Medicine. View this article in WRRO
- Challenges in building interpersonal care in organized hospital stroke units: The perspectives of stroke survivors, family caregivers and the multidisciplinary team. Journal of Advanced Nursing, 73(10), 2351-2360. View this article in WRRO
- Stakeholder involvement throughout health technology assessment: an example from palliative care. International Journal of Technology Assessment in Health Care, 33(5), 552-561. View this article in WRRO
- Specialist palliative care nursing and the philosophy of palliative care: a critical discussion. International Journal of Palliative Nursing, 23(7), 352-358. View this article in WRRO
- What cost components are relevant for economic evaluations of palliative care, and what approaches are used to measure these costs? A systematic review.. Palliative Medicine, 31(4), 323-337. View this article in WRRO
- Costs of Family Caregiving in Palliative Care (COFAC) questionnaire: development and piloting of a new survey tool.. BMJ Supportive and Palliative Care. View this article in WRRO
- Lay and professional stakeholder involvement in scoping palliative care issues: Methods used in seven European countries. Palliative Medicine, 31(2), 181-192. View this article in WRRO
- Psychological and emotional needs, assessment, and support post-stroke: a multi-perspective qualitative study. Topics in Stroke Rehabilitation, 24(2), 119-125. View this article in WRRO
- International palliative care research in the context of global development: a systematic mapping review.. BMJ Supportive and Palliative Care, 8, 7-18. View this article in WRRO
- The 'problematisation' of palliative care in hospital: an exploratory review of international palliative care policy in five countries.. BMC Palliat Care, 15(1), 64-64. View this article in WRRO
- The impact of volunteer befriending services for older people at the end of life: Mechanisms supporting wellbeing. Progress in Palliative Care, 24(3), 159-164. View this article in WRRO
- Methodological considerations for researching the financial costs of family caregiving within a palliative care context.. BMJ Support Palliat Care, 6, 445-451. View this article in WRRO
- Approaches to capturing the financial cost of family care-giving within a palliative care context: a systematic review. Health & Social Care in the Community, 24(5), 519-531. View this article in WRRO
- Exploring the transition from curative care to palliative care: a systematic review of the literature. BMJ Supportive & Palliative Care, 5(4), 335-342. View this article in WRRO
- A qualitative study exploring the benefits of hospital admissions from the perspectives of patients with palliative care needs. Palliative Medicine, 29(8), 703-710. View this article in WRRO
- ‘No matter what the cost’: A qualitative study of the financial costs faced by family and whānau caregivers within a palliative care context. Palliative Medicine, 29(6), 518-528. View this article in WRRO
- Preference for a single or shared room in a UK inpatient hospice: patient, family and staff perspectives: Table 1. BMJ Supportive & Palliative Care, 5(2), 169-174. View this article in WRRO
- Exploring the financial impact of caring for family members receiving palliative and end-of-life care: A systematic review of the literature. Palliative Medicine, 28(5), 375-390. View this article in WRRO
- Autonomy and choice in palliative care: time for a new model?. Journal of Advanced Nursing, 70(5), 1020-1029. View this article in WRRO
- Economic impact of hospitalisations among patients in the last year of life: An observational study. Palliative Medicine, 28(5), 422-429. View this article in WRRO
- Patients' and carers' experiences of gaining access to acute stroke care: a qualitative study.. Emerg Med J, 30(12), 1033-1037. View this article in WRRO
- Palliative care for frail older people: A cross-sectional survey of patients at two hospitals in England. Progress in Palliative Care, 21(5), 272-277. View this article in WRRO
- Using the best available evidence to inform decision making on complex interventions: Building the future through increasing public and patient involvement in Health Technology Assessment. European Journal of Public Health, 23(suppl_1).
- Prevalence and predictors of Transition to A Palliative Care Approach among Hospital Inpatients in England. Journal of Palliative Care, 29(3), 147-153.
- Tools to measure quality of life and carer burden in informal carers of heart failure patients: A narrative review. PALLIATIVE MEDICINE, 27(7), 596-607.
- Exploring education and training needs among the palliative care workforce. BMJ Supportive & Palliative Care, 3(2), 207-212.
- A Public Health Perspective on End of Life Care. PUBLIC HEALTH, 127(6), 603-603.
- Awareness contexts revisited: indeterminacy in initiating discussions at the end-of-life.. J Adv Nurs, 69(12), 2654-2664.
- Provision of palliative and end-of-life care in stroke units: a qualitative study.. Palliat Med, 27(9), 855-860.
- Symptom burden, palliative care need and predictors of physical and psychological discomfort in two UK hospitals.. BMC Palliat Care, 12, 11. View this article in WRRO
- What is the extent of potentially avoidable admissions amongst hospital inpatients with palliative care needs?. BMC Palliat Care, 12, 9. View this article in WRRO
- Abstract WP364: Key Stakeholders Recognize the Need for a Structured Approach to Psychological Support with Input from a Clinical Psychologist. Stroke, 44(suppl_1).
- Extent of palliative care need in the acute hospital setting: a survey of two acute hospitals in the UK.. Palliat Med, 27(1), 76-83. View this article in WRRO
- "You get old, you get breathless, and you die": chronic obstructive pulmonary disease in Barnsley, UK.. Health & place, 18(6), 1396-1403.
- "You get old, you get breathless, and you die": Chronic obstructive pulmonary disease in Barnsley, UK.. Health and Place.
- Enhancing patient-professional communication about end-of-life issues in life-limiting conditions: a critical review of the literature.. J Pain Symptom Manage, 44(6), 866-879.
- Economic analysis of potentially avoidable hospital admissions in patients with palliative care needs. Progress in Palliative Care, 20(3), 147-153.
- Attitudes of health care professionals to opioid prescribing in end-of-life care: a qualitative focus group study.. J Pain Symptom Manage, 44(2), 206-214.
- Factors supporting good partnership working between generalist and specialist palliative care services: a systematic review.. Br J Gen Pract, 62(598), e353-e362.
- A systematic review exploring factors supporting partnership working between generalist and specialist palliative care services: implications for older people. BMJ Supportive & Palliative Care, 2(Suppl 1), A40.4-A41.
- Extent of palliative care need in the acute hospital setting: a prospective survey of two acute hospitals in the UK. BMJ Supportive & Palliative Care, 2(Suppl 1), A13.2-A13.
- Attitudes of health care professionals to opioid prescribing in end-of-life care: A qualitative focus group study. Journal of Pain and Symptom Management, 44(2), 206-214.
- The hospital environment for end of life care of older adults and their families: an integrative review.. J Adv Nurs, 68(5), 981-993.
- Barriers and facilitators to the receipt of palliative care for people with dementia: the views of medical and nursing staff.. Palliat Med, 26(7), 879-886.
- 'That's part of everybody's job': the perspectives of health care staff in England and New Zealand on the meaning and remit of palliative care.. Palliat Med, 26(3), 232-241.
- Exploring health professionals' views regarding the optimum physical environment for palliative and end of life care in the acute hospital setting: a qualitative study. BMJ Supportive & Palliative Care, 1(2), 162-166.
- Transition to palliative care in acute hospitals in England: a qualitative study.. British Medical Journal, 342.
- Barriers to providing palliative care for older people in acute hospitals.. Age Ageing, 40(2), 233-238. View this article in WRRO
- Exploring the transition from curative to palliative care: A systematic review of the literature.. BMJ Supportive & Palliative Care, 1, 56-63.
- A narrative literature review of the evidence regarding the economic impact of avoidable hospitalizations amongst palliative care patients in the UK. Progress in Palliative Care, 19(6), 291-298.
- Exploring the extent of communication surrounding transitions to palliative care in heart failure: The perspectives of health care professionals. Journal of Palliative Care, 27(2), 107-116.
- Transitions to palliative care in acute hospitals in England: qualitative study. BMJ Supportive & Palliative Care, 1(1), 42-48.
- Commentary on Green AJ & De-Vries K (2010) Cannabis use in palliative care--an examination of the evidence and the implications for nurses. Journal of Clinical Nursing 19, 2454-2462.. J Clin Nurs, 19(21-22), 3253-3255.
- Using a prediction of death in the next 12 months as a prompt for referral to palliative care acts to the detriment of patients with heart failure and chronic obstructive pulmonary disease.. Palliat Med, 24(7), 740-741.
- Falling research in the NHS Research passports haven't streamlined processes. BRIT MED J, 340.
- Reconciling informed consent and 'do no harm': ethical challenges in palliative-care research and practice in chronic obstructive pulmonary disease.. Palliat Med, 24(5), 469-472.
- Commentary on Cronfalk BS, Ternstedt BM & Strang P (2009) 'Soft tissue massage: early intervention for relatives whose family members died in palliative cancer care'. Journal of Clinical Nursing 19, 1040-1048.. J Clin Nurs, 19(7-8), 1189-1192.
- Exploring the care needs of patients with advanced COPD: an overview of the literature.. Respir Med, 104(2), 159-165.
- Communication surrounding transitions to palliative care in heart failure: A review and discussion of the literature. Progress in Palliative Care, 18(5), 281-290.
- The effect of the Shipman murders on clinician attitudes to prescribing opiates for dyspnoea in end-stage chronic obstructive pulmonary disease in England. Progress in Palliative Care, 18(2), 79-84.
- Commentary on Tang W-R (2009) Hospice family caregivers' quality of life. Journal of Clinical Nursing 18, 2563-2572.. J Clin Nurs, 18(24), 3516-3519.
- Living with advanced chronic obstructive pulmonary disease: patients concerns regarding death and dying.. Palliat Med, 23(8), 691-697.
- Barriers to advance care planning in chronic obstructive pulmonary disease.. Palliat Med, 23(7), 642-648.
- How to improve end of life care in acute hospitals.. Nurs Older People, 21(7), 26-29.
- Supporting people who have dementia to die with dignity.. Nurs Older People, 21(5), 18-23.
- Integration of primary care and palliative care services to improve equality and equity at the end-of-life: Findings from realist stakeholder workshops. Palliative Medicine.
- Barriers and mechanisms to the development of palliative care in Aceh, Indonesia. Progress in Palliative Care, 1-7.
- Palliative care roles and responsibilities of mesothelioma clinical nurse specialists in the UK. Progress in Palliative Care, 1-7.
- Strategies and checklist for designing and conducting palliative care research with family carers: EAPC international expert elicitation study. Palliative Medicine, 026921632211361-026921632211361.
- We know very little about the costs of specialist palliative care provision in the UK. BMJ, o1769-o1769.
- Facilitators of and barriers to continuity with GPs in primary palliative cancer care: A mixed-methods systematic review. Progress in Palliative Care, 1-19.
- Patients’ and informal carers’ experience of living with mesothelioma: A systematic rapid review and synthesis of the literature. European Journal of Oncology Nursing.
- ‘Palliative care education in nursing homes: a qualitative evaluation of telementoring. BMJ Supportive & Palliative Care.
- Candidates and candidacy: Patient, carer and staff perceptions of referral to a specialist palliative day unit. Progress in Palliative Care, 1-7.
- Re-framing Global palliative care advocacy for the Sustainable Development Goal era: a qualitative study of the views of international palliative care experts. Journal of Pain and Symptom Management.
- Transitions to palliative care for older people in acute hospitals: a mixed-methods study. Health Services and Delivery Research, 1(11), 1-138. View this article in WRRO
- Service change and innovation in community end-of-life care during the COVID-19 pandemic: qualitative analysis of a nationwide primary care survey. Palliative Medicine.
Chapters
- Care pathways for older people in need of palliative care, Palliative care for older people (pp. 257-264). Oxford University Press
Conference proceedings papers
- 45 Rethinking continuity in primary care for people with mesothelioma. Poster Presentations
- 4 Rethinking continuity in primary care for people with mesothelioma. The Marie Curie Research Conference 2024
- Rethinking continuity in primary care for people with mesothelioma. British Journal of General Practice, Vol. 73(suppl 1) (pp bjgp23X733485-bjgp23X733485)
- Research-based tools to encourage and facilitate engagement with palliative care for patients and families living with mesothelioma. LUNG CANCER, Vol. 178 (pp S23-S24)
- Understanding the role of Mesothelioma UK clinical nurse specialists in meeting the palliative care needs of patients and families: a mixed methods study. LUNG CANCER, Vol. 165 (pp S26-S26)
- 5 Primary care delivers palliative care during COVID-19: a national UK survey of GP’s and community nurses. Oral presentations
- 165 Existential suffering in the day-to-day lives of those living with pallaitive care needs arising from chronic obstructive pulmonary disease. Poster presentations
- 4 A life or ‘good death’ situation? A worldwide ecological study of the contexts of countries which have and have not implemented palliative care. Oral presentations
- Tailoring methods of stakeholder involvement - does one size fit all?. EUROPEAN JOURNAL OF PUBLIC HEALTH, Vol. 26 (pp 78-78)
- P21 “Horses for Courses” or “One Size Fits All”? Developing appropriate Methods of stakeholder involvement to inform evaluation of complex interventions in Europe. Journal of Epidemiology and Community Health, Vol. 70(Suppl 1) (pp A62.2-A63)
- View this article in WRRO How do patients respond to end-of-life status?. Nursing Times, Vol. 110(11) (pp 21-23)
- HOW DO PERCEPTIONS OF RISK SHAPE 'CHOICE' IN END-OF-LIFE CARE?. BMJ Supportive & Palliative Care, Vol. 4(Suppl 1) (pp A28.2-A28)
- PATIENT AND PUBLIC INVOLVEMENT IN SCOPE DEVELOPMENT FOR A PALLIATIVE CARE HEALTH TECHNOLOGY ASSESSMENT IN EUROPE. BMJ Supportive & Palliative Care, Vol. 4(Suppl 1) (pp A40.3-A41) View this article in WRRO
- Evidence-based implementation: evaluating a knowledge exchange framework in UK stroke services. INTERNATIONAL JOURNAL OF STROKE, Vol. 8 (pp 32-33)
- Key Stakeholders Recognize the Need for a Structured Approach to Psychological Support with Input from a Clinical Psychologist. STROKE, Vol. 44(2)
- Barriers to advance care planning for older people with chronic obstructive pulmonary disease: Patient and professional perspectives. AUSTRALAS J AGEING, Vol. 28 (pp A100-A100)
- Transitions to palliative care for older people in acute hospitals in the UK. AUSTRALAS J AGEING, Vol. 28 (pp A58-A58)
- DISTURBED SLEEP IN EPILEPSY: EFFECTS ON COGNITIVE FUNCTION, MOOD, AND QUALITY OF LIFE. EPILEPSIA, Vol. 50 (pp 61-61)
- Discussing Prognosis in COPD: Findings from a Qualitative Study with Clinicians in the UK. AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE, Vol. 179
- Sleep dependent procedural learning in children. JOURNAL OF SLEEP RESEARCH, Vol. 17 (pp 47-47)
- Actigraphic and parental reports of sleep disturbances in children with epilepsy. EPILEPSIA, Vol. 48 (pp 143-143)
Other
- Most of the world’s population lacks access to opioid drugs for pain control. BMJ, l6448-l6448.
Preprints
- Teaching interests
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My teaching interests are in research methods and palliative and end of life care. I currently supervise PhD students in the areas of palliative and end of life care.
- Professional activities and memberships
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I am an Associate Editor for BMC Palliative Care, I sit on the Editorial Advisory Board for Palliative Medicine. I chair the EAPC taskforce for Costs of Family Caregiving, I co-chair the EAPC Reference Group for Family Caregivers. I chair the Palliative Care Studies Advisory Group PPI panel.