Clara Mukuria
MA (Aberdeen), MSc, PhD (Sheffield)
Population Health, School of Medicine and Population Health
Senior Research Fellow
c.mukuria@sheffield.ac.uk
+44 114 222 6395
+44 114 222 6395
109, West Court
Full contact details
Clara Mukuria
Population Health, School of Medicine and Population Health
109
West Court
2 Mappin Street
Sheffield
S1 4DT
Population Health, School of Medicine and Population Health
109
West Court
2 Mappin Street
Sheffield
S1 4DT
- Profile
-
I joined ScHARR as a researcher in 2009. Prior to joining ScHARR, I undertook an undergraduate MA in Economics at the University of Aberdeen. This was followed by a 4 year MRC HSRC Studentship to undertake a Masters in Economics and Health Economics followed by a PhD at the University of Sheffield.
- Research interests
-
My research interests are:
- Measuring and valuing health and quality of life
- Mapping between measures to generate utility values
- Developing preference-based measures of health from existing measures
- Measuring and valuing child health
Current projects
I am currently working on an MRC and Euroqol group funded study developing and testing a new preference-based measure - the EQ Health and Wellbeing (EQ-HWB) - for use across different populations including patients, social care users and informal carers.
I am part of the team leading the new valuation study of the EQ-5D-5L. I am also involved in EEPRU studies assessing the use of preference-based measures in children/adolescents.
- Publications
-
Show: Featured publications All publications
Featured publications
Journal articles
- Eliciting Societal Preferences for Weighting QALYs for Burden of Illness and End of Life. Medical Decision Making, 36(2), 210-222.
- Mapping Functions in Health-Related Quality of Life: Mapping from Two Cancer-Specific Health-Related Quality-of-Life Instruments to EQ-5D-3L. Medical Decision Making, 35(7), 912-926. View this article in WRRO
- Mapping the EQ-5D index from the cystic fibrosis questionnaire-revised using multiple modelling approaches. Health and Quality of Life Outcomes, 13(1), 33-33. View this article in WRRO
- Using generic preference-based measures in mental health: psychometric validity of the EQ-5D and SF-6D.. Br J Psychiatry, 205(3), 236-243.
- A systematic review, psychometric analysis and qualitative assessment of Generic Preference-Based Measures of Health in Mental Health Populations and the estimation of mapping functions from widely used specific measures. Health Technology Assessment, 18(34).
- Use of generic and condition-specific measures of health-related quality of life in NICE decision-making: a systematic review, statistical modelling and survey.. Health Technol Assess, 18(9), 1-224. View this article in WRRO
- Cost-effectiveness of an improving access to psychological therapies service.. Br J Psychiatry, 202(3), 220-227.
- Valuing the EQ-5D and the SF-6D health states using subjective well-being: A secondary analysis of patient data. Social Science and Medicine.
- A systematic review, psychometric analysis and qualitative assessment of Generic Preference-Based Measures of Health in Mental Health Populations and the estimation of mapping functions from widely used specific measures.
Reports
- An evaluation of a new service model: Improving Access to Psychological Therapies demonstration sites 2006-2009, Final Report. View this article in WRRO
All publications
Journal articles
- Systematic review of the effect of a one-day versus seven-day recall duration on Patient Reported Outcome Measures (PROMs). The Patient - Patient-Centered Outcomes Research.
- Developing an Australian utility value set for MacNew-7D health states. Quality of Life Research.
- Should we consider including a value for "Hope" as an additional benefit within health technology assessment?. Value in Health.
- A qualitative investigation of the relevance of skin irritation and self-confidence bolt-ons and their conceptual overlap with the EQ-5D in patients with psoriasis. Quality of Life Research.
- The role of patient and public involvement and engagement (PPIE) within the development of the EQ Health and Wellbeing (EQ-HWB). Journal of Patient-Reported Outcomes, 6(1).
- Exploring the issues of valuing child and adolescent health states using a mixed sample of adolescents and adults. PharmacoEconomics. View this article in WRRO
- The EQ-HWB: overview of the development of a measure of health and wellbeing and key results. Value in Health, 25(4), 482-491.
- Validation of ‘Care Of the Dying Evaluation’ (CODETM) within an international study exploring bereaved relatives’ perceptions about quality of care in the last days of life. Journal of Pain and Symptom Management. View this article in WRRO
- The development of a new international generic measure (EQ-HWB): face validity and psychometric stages in Argentina. Value in Health, 25(4), 544-557.
- Developing a new generic health and wellbeing measure: psychometric survey results for the EQ-HWB. Value in Health, 25(4), 525-533. View this article in WRRO
- Qualitative review on domains of quality of life important for patients, social care users, and informal carers to inform the development of the EQ-HWB. Value in Health, 25(4), 492-511. View this article in WRRO
- Reliability and validity of using EQ-5D-5L among healthy and adolescents with major mental health disorders in Ethiopia. European Journal of Health Economics.
- Comparing EQ-5D-3L and EQ-5D-5L in measuring the HRQoL burden of 4 health conditions in China. European Journal of Health Economics.
- Generation, Selection, and Face Validation of Items for a New Generic Measure of Quality of Life: The EQ Health and Wellbeing. Value in Health.
- A comparison of the SF-6Dv2 and SF-6D UK utility values in a mixed patient and healthy population. PharmacoEconomics. View this article in WRRO
- Deriving a preference-based measure for people with Duchenne Muscular Dystrophy from the DMD-QoL. Value in Health. View this article in WRRO
- What is the best approach to adopt for identifying the domains for a new measure of health, social care and carer-related quality of life to measure quality adjusted life years? Application to the development of the EQ-HWB?. European Journal of Health Economics. View this article in WRRO
- Criteria for item selection for a preference-based measure for use in economic evaluation. Quality of Life Research.
- Valuing health state: An EQ-5D-5L value set for Ethiopians. Value in Health Regional Issues, 22, 7-14. View this article in WRRO
- Valuing the SF-6Dv2 classification system in the United Kingdom using a discrete-choice experiment with duration. Medical Care. View this article in WRRO
- An Updated Systematic Review of Studies Mapping (or Cross-Walking) Measures of Health-Related Quality of Life to Generic Preference-Based Measures to Generate Utility Values. Applied Health Economics and Health Policy, 17(3), 295-313. View this article in WRRO
- Measuring the Burden of Schizophrenia Using Clinician and Patient-Reported Measures: An Exploratory Analysis of Construct Validity. The Patient - Patient-Centered Outcomes Research, 1-13. View this article in WRRO
- Selecting Bolt-On Dimensions for the EQ-5D: Examining Their Contribution to Health-Related Quality of Life. Value in Health. View this article in WRRO
- Sourcing and using appropriate health state utility values in economic models in health care. PharmacoEconomics, 35(Suppl 1), 7-9. View this article in WRRO
- The Use Of Mapping To Estimate Health State Utility Values. PharmacoEconomics, 35(Suppl 1), 57-66. View this article in WRRO
- An Exploratory Study on Using Principal-Component Analysis and Confirmatory Factor Analysis to Identify Bolt-On Dimensions: The EQ-5D Case Study. Value in Health. View this article in WRRO
- What is the evidence for the performance of generic preference-based measures? A systematic overview of reviews. European Journal of Health Economics, 19(4), 557-570. View this article in WRRO
- Predicting Productivity Losses from Health-Related Quality of Life Using Patient Data.. Applied Health Economics and Health Policy. View this article in WRRO
- Sensitivity and responsiveness of the EQ-5D-3L in patients with uncontrolled focal seizures: an analysis of Phase III trials of adjunctive brivaracetam. Quality of Life Research, 26(3), 749-759. View this article in WRRO
- A pragmatic randomised controlled trial assessing the non-inferiority of counselling for depression versus cognitive-behaviour therapy for patients in primary care meeting a diagnosis of moderate or severe depression (PRaCTICED): Study protocol for a randomised controlled trial.. Trials, 18(1), 93-93. View this article in WRRO
- Olaparib for Maintenance Treatment of BRCA 1 or 2 Mutated, Relapsed, Platinum-Sensitive Ovarian, Fallopian Tube and Peritoneal Cancer in People Whose Relapsed Disease has Responded to Platinum-Based Chemotherapy: An Evidence Review Group Perspective of a NICE Single Technology Appraisal. PharmacoEconomics, 35(1), 97-109. View this article in WRRO
- Estimating informal care inputs associated with EQ-5D for use in economic evaluation. The European Journal of Health Economics, 17(6), 733-744. View this article in WRRO
- Eliciting Societal Preferences for Weighting QALYs for Burden of Illness and End of Life. Medical Decision Making, 36(2), 210-222.
- Comparison of Modes of Administration and Alternative Formats for Eliciting Societal Preferences for Burden of Illness. Applied Health Economics and Health Policy, 14(1), 89-104. View this article in WRRO
- Mapping Functions in Health-Related Quality of Life: Mapping from Two Cancer-Specific Health-Related Quality-of-Life Instruments to EQ-5D-3L. Medical Decision Making, 35(7), 912-926. View this article in WRRO
- Mapping the EQ-5D index from the cystic fibrosis questionnaire-revised using multiple modelling approaches. Health and Quality of Life Outcomes, 13(1), 33-33. View this article in WRRO
- Using generic preference-based measures in mental health: psychometric validity of the EQ-5D and SF-6D.. Br J Psychiatry, 205(3), 236-243.
- A systematic review, psychometric analysis and qualitative assessment of Generic Preference-Based Measures of Health in Mental Health Populations and the estimation of mapping functions from widely used specific measures. Health Technology Assessment, 18(34).
- Use of generic and condition-specific measures of health-related quality of life in NICE decision-making: a systematic review, statistical modelling and survey.. Health Technol Assess, 18(9), 1-224. View this article in WRRO
- 314 Mapping the Cystic Fibrosis Questionnaire-Revised (CFQ-R) to a preference based utility index. Journal of Cystic Fibrosis, 12, S129-S129.
- Cost-effectiveness of an improving access to psychological therapies service.. Br J Psychiatry, 202(3), 220-227.
- Valuing the EQ-5D and the SF-6D health states using subjective well-being: A secondary analysis of patient data. Social Science and Medicine.
- Valuing the EQ Health and Wellbeing Short (EQ-HWB-S) using time trade-off and a discrete choice experiment: A feasibility study. Value in Health.
- Development of the CFQ-R-8D: Estimating Utilities From the Cystic Fibrosis Questionnaire-Revised. Value in Health.
- Assessing the comparative feasibility, acceptability and equivalence of videoconference interviews and face-to-face interviews using the time trade-off technique. Social Science and Medicine.
- A systematic review of the methodologies and modelling approaches used to generate international EQ-5D-5L value sets. PharmacoEconomics.
- Should we consider including a value for ‘hope’ as an additional benefit within HTA?. Value in Health. View this article in WRRO
- Selecting Bolt-on Dimensions for the EQ-5D: Testing the Impact of Hearing, Sleep, Cognition, Energy, and Relationships on Preferences Using Pairwise Choices. Medical Decision Making, 0272989X2096968-0272989X2096968.
- A systematic review, psychometric analysis and qualitative assessment of Generic Preference-Based Measures of Health in Mental Health Populations and the estimation of mapping functions from widely used specific measures.
- The Role of Response Domain and Scale Label in the Quantitative Interpretation of Patient-Reported Outcome Measure Response Options. Quality of Life Research.
- Impact of social prescribing to address loneliness: A mixed methods evaluation of a national social prescribing programme. Health & Social Care in the Community.
- Development of a Preference-based Heart Disease-specific Health State Classification System using MacNew Heart Disease Related Quality of Life Instrument. Quality of Life Research.
- Correction to: A Comparison of the SF-6Dv2 and SF-6D UK Utility Values in a Mixed Patient and Healthy Population. PharmacoEconomics.
Conference proceedings papers
- Extending the QALY project in the United States: face and content validity of items for a new preference-based measure. QUALITY OF LIFE RESEARCH, Vol. 28 (pp S165-S165)
- The role of context and label in participants' quantitative interpretation of common quality of life PROM response options. QUALITY OF LIFE RESEARCH, Vol. 28 (pp S136-S137)
- DEVELOPMENT OF THE CYSTIC FIBROSIS QUESTIONNAIRE-REVISED PREFERENCE BASED SCORING ALGORITHM. PEDIATRIC PULMONOLOGY, Vol. 54 (pp S443-S443)
- PMU86 - VALUING HEALTH-STATE: AN EQ-5D-5L VALUE SET FOR ETHIOPIANS. Value in Health, Vol. 21 (pp S322-S322)
- Extending the QALY: developing and testing the proposed items for a new generic measure - results from qualitative review and face validity with patients, social care users and carers. QUALITY OF LIFE RESEARCH, Vol. 27 (pp S189-S189)
- Developing Content for a New Generic Qaly Measure: Results from a Qualitative Literature Review (E-Qaly Project). Value in Health, Vol. 21 (pp S110-S110)
- Proceedings of Patient Reported Outcome Measure’s (PROMs) Conference Oxford 2017: Advances in Patient Reported Outcomes Research. Health and Quality of Life Outcomes, Vol. 15(S1) View this article in WRRO
- WELL-BEING: WHAT IS IT, HOW DOES IT COMPARE TO HEALTH AND WHAT ARE THE IMPLICATIONS OF USING IT TO INFORM HEALTH POLICY?. VALUE IN HEALTH, Vol. 19(7) (pp A389-A389)
- DEVELOPMENT OF A MAPPING ALGORITHM BETWEEN THE SGRQ AND EQ-5D-5L UTILITY VALUES IN A SEVERE ASTHMA POPULATION. VALUE IN HEALTH, Vol. 19(7) (pp A385-A385)
- Validity and Responsiveness of Preference Based Measures: A Critical Overview of Reviews. Value in Health, Vol. 18(7) (pp A744-A744)
- Does EQ-5D-5L account for the impact of limitations in activities of daily livings (ADLS) on social care outcomes, capabilities and well-being?. QUALITY OF LIFE RESEARCH, Vol. 24 (pp 179-179)
- Does the generic cancer outcome measure eortc qlq-c30 work in myelofibrosis?. Value in Health, Vol. 18(3) (pp A210-A211)
- Exploratory Psychometric Analysis of The Eq-5d In A Myelofibrosis Population. Value in Health, Vol. 18(3) (pp A211-A211)
- Health-related quality of life and well-being. QUALITY OF LIFE RESEARCH, Vol. 23 (pp 62-62)
- Comparison of an online survey and face-to-face interviews for eliciting societal preferences. QUALITY OF LIFE RESEARCH, Vol. 23 (pp 49-49)
- Appropriate mapping functions in HRQL: a series of models mapping from FACT-G to EQ-5D. QUALITY OF LIFE RESEARCH, Vol. 21 (pp 11-11)
Reports
- Valuing child health: Exploring the use of a mixed sample of adolescents and adults to value child and adolescent health states
- An empirical comparison of well-being measures used in the UK View this article in WRRO
- A conceptual comparison of well-being measures used in the UK. View this article in WRRO
- Examining productivity losses associated with health related quality of life using patient and general population data. View this article in WRRO
- An evaluation of a new service model: Improving Access to Psychological Therapies demonstration sites 2006-2009. Final report. NIHR Service Delivery and Organisation programme View this article in WRRO
- An evaluation of a new service model: Improving Access to Psychological Therapies demonstration sites 2006-2009, Final Report. View this article in WRRO
- An evaluation of a new service model: Improving Access to Psychological Therapies demonstration sites 2006-2009 (IAPT)
Posters
- E-QALY: valuing the items for a new generic preference-based measure using time trade-off and discrete choice experiments.
- Selection of bolt-ons after factor analysis identification: are linear regression models a useful technique?.
- Exploratory psychometric analysis of the EQ-5D in a Myelofibrosis population (ISPOR 20th Annual International Meeting 16-20 May 2015).
- Does the generic cancer outcome measure EORTC QLQ-C30 work in Myelofibrosis? (ISPOR 20th Annual International Meeting 16-20 May 2015).
- Examining productivity losses associated with health related quality of life using patient data (2014).
Other
- Author Reply. Value in Health.
Preprints
- Measures of social connectedness in adult populations: A systematic review, Research Square Platform LLC.
- Development of the CFQ-R-8D: Estimating Utilities From the Cystic Fibrosis Questionnaire-Revised, Research Square Platform LLC.
- Applying EuroQol Portable Valuation Technology to the EQ Health and Wellbeing Short (EQHWB-S): a pilot study. View this article in WRRO
- Eliciting Societal Preferences for Weighting QALYs for Burden of Illness and End of Life. Medical Decision Making, 36(2), 210-222.
- Teaching interests
-
My teaching interests are:
- Measuring and valuing health
I am interested in supervising research students in topics related to development and testing of preference-based measures and wellbeing.