Nystagmus Information, including the Nystagmus Information Packs (NIP)
Information about nystagmus has been developed into a ‘Nystagmus Information Pack’ by a team at the University of Sheffield.
This Nystagmus Information Pack is aimed at patients with nystagmus, families, teachers, other professionals and people who would like to find out more about nystagmus. The need for better information about the condition came from discussions with people living with nystagmus and their families at a Nystagmus Network event, particularly when they described struggling to explain nystagmus and their vision to others.
The Nystagmus Information Pack has been developed with funding from Nystagmus Network and the University of Sheffield. Numerous people affected by nystagmus and professionals with expertise in nystagmus have inputted into the development of the pack, which is now being made freely available for download. The pack will also be shared with Orthoptic Departments, the British and Irish Orthoptic Society and other professional groups.
Download the Nystagmus Information Pack:
- Part 1: Introduction - what is nystagmus?
- Part 2: Infantile nystagmus
- Part 3: Acquired nystagmus
- Part 4: What to expect at eye clinic appointments
- Part 5: Treatment options and long-term outcomes
- Part 6: Useful contacts and information
- Part 7: Information about nystagmus for families
We would like to thank all those who have inputted to the development of the Nystagmus Information Pack, including:
- Funding from Nystagmus Network and the University of Sheffield OnCampUS scheme
- The facilitators, families and children at the Nystagmus Network open days 2015 and 2016 for their valuable advice, guidance and recommendations
- Individuals with nystagmus and their families, who reviewed the pack and made useful suggestions
- Members of the British and Irish Orthoptic Society and Orthoptic departments across the UK and Ireland who contributed to the content
- Orthoptic students at the University of Sheffield who attended Nystagmus Network open days. They listened to and analysed valuable information and suggestions from children and adults with nystagmus and their families
- Anwen Coughlan (orthoptist and research assistant) and Arthur Nye (research assistant)
- Gemma Arblaster, Anne Bjerre and Dr Helen Griffiths, University of Sheffield
Our other nystagmus projects include:
You may also be interested in viewing a Visual impairment awareness video that has been developed by Orthoptic students at the University of Sheffield.
Nystagmus evaluation questionnaire
The deadline to complete the evaluation questionnaire is Friday 17th July 2020.