HELSI Bites: How do we really feel about sharing our health data?

Coding big data

Event details

Monday 4 April 2022
Online Event
This event is for TUOS staff only. The events are free and are accessible via Google Meet. HELSI Bites are 30 minute lunchtime talks (15-18 minute talk & 10 minutes for Q&A), prepared in an engaging & accessible "TED talk" style, suitable for our diverse, cross disciplinary academic audience. They highlight the wealth of expertise amongst our members, and showcase our holistic approach to tackling ageing and extending healthy lifespans.
Access event (TUOS staff only)


How do we really feel about sharing our health data? Changing attitudes across the lifecourse

Dr. Jonathan Foster

Information School

As part of the Tools for Life: Data Sharing and Public Health project, we engaged patients and the public in a dialogue about the benefits and risks of sharing their patient data for purposes beyond their own direct individual care.

In this talk I will introduce the Tools for Life project, its methods, and some of the key findings that emerged. While the public are willing to share their data for the benefit of public health, their willingness to do so is conditional on a number of ethical and information governance principles being met. We also found significant variations in attitude according to age group, with older groups more concerned about the ethics of sharing patient data and about data handling and sharing with organisations outside the NHS, when compared with younger groups.

I will explore these findings and discuss the implications on how we develop tools that will better inform patients and increase their confidence across the lifecourse.

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